Under 50: dx with PMR
Posted , 15 users are following.
I am a 47 year old female who was dx with PMR in February 2018, but I’ve suffered from all of the S&S of this since my 30’s. I have been an RN for 10 years. With that said, I’ve thought the worst about what I’ve been going through: malaise, joint and muscle pain, pain during sleep so bad it wakes me up, hard to turn over in bed, so painful to walk when I finally roll out of the bed, blah, blah, blah! I could go on and on😳 So paranoid about my symptoms that I could really have bone cancer instead of PMR.
PMH: Type 2 diabetes, HTN, osteoporosis/arthritis, Hypothyroidism just to name a few🙄. I’m too young to feel this darn old! Which brings me to this question..... typically PMR affects older people right? Why is that? And how likely could I have been misdiagnosed?
I was put on a tapering dose of prednisone yesterday, and ofcorse after one dose, I already feel a little bit better! I have read others horror stories about taking prednisone. It has been dubbed “Demon drug”. As a nurse, I already know all of the horrific side effects. I already have DM so high glucose will not be a shocker to me. But I can tell you, as for me, living the way I have is next to death, and if I could dig my own grave and roll over in it, I would. So I pray that the prednisone works, and I can manage the side effects. I do plan on weaning off of the prednisone, but I’m doubtful😕
i would love love to hear from others that are young as I am with PMR!
0 likes, 18 replies
shelleysinclair Guest
Posted
Hi there. Glad you found this site as it has been extremely helpful to me athough I don't usually post, I often read. I am 52 (also a nurse) and was diagnosed with PMR 14 months ago. I woke up one morning and felt like I had just run a marathon without training. Neck, shoulder, thigh and butt pain and fatigue.I could barely get out of the bed and walk. Crazy and very frightening. I was fortunate to see a rheumatologist promptly and although my markers have NEVER gone up Idid respond to Prednisone. The journey from 20 mg to my present 5 mg has been up and down. I have found that pacing and planning my activities has been the most important tool to allow me to continue to working full time and enjoy life. I am not the same person I used to be and my body feels quite weak but I know I am better then I used to be and time heals...I hope you get the support you need. As I said I have found such comfort from this forums. Thanks to everyone who responds to postings regularly.