under active thyroid and burning feet syndrome

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hi, i was diagnosed about 5 years ago with under active thyroid. apparently i had been walking about with this for 5 years before being diagnosed. so 10 years in total. i was falling asleep 5 times a day, chest pains ,freezing cold, skin like cold hard rubber, stiff muscles, broken nails and hair like a horses tail.i was called back to the docs after a blood test and told i was so near a heart attack.i came out smiling once i had my thyroxine (to the docs surprise), i thought a course of tablets and it was all gone, little did i know that it was a life time illness.anyway i since found out 5 other family members had under active also and 1 over active.my son who i was pregnant with, later went on to have a thyroid operation as he had a thyroglossal cyst(i think i spelt that right), his thyroid and toungue were joined by a tract, and he couldnt lift his head.he still worries me, he may have a few over active symptoms, although he has been checked. any way i have been to a specialist and my doc many times as i still feel very run down, and am in a lot of pain,with burning feet sydrome ,which is linked to under active thyroid.does any one else have this?

i also have arthritis,vertiligo,and nerve damage.and am in constant pain, i gave up on my doctor years ago as he says im just depressed,and once even called in the receptionist as i was crying with frustration and he told her i was depressed. i no longer go to him unless i really have to, and spend my days in constant pain and tears,it my 2 children i feel sorry for, as they must be so fed up with me.does anyone else have this burning feet syndrome?please reply im in agony

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  • Posted

    i also forgot to mention i have bad memory loss and a fuzzy head and also suffer with anxiety and panic attacks. im on 150ml of throxine at the moment, which has just gone up from 100ml,and still i f so tired. my doc gave me folic acid a few month back, which had no effect at all,i still know that something isnt right.
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  • Posted


    If your dose has only recently increased it will take time for it to have an effect, all your symptoms do sound hypo so it may be that you were just not on a high enough dose before.

    Have you had a recent blood test ? Do you know what your TSH and T4 are?

    Most people feel better with a TSH of 1 or below and T4 at the top of the range.

    Are you taking your meds at least 30 mins before food or drink ? and leave a gap of 4 hours or more before taking vits or iron.

    Join a specific thyroid forum for support and advice ****** is a good one.

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  • Posted

    Yes!! I have hot feet ALL the time and have thyroiditis! I've been wondering for a while if there was a link... I'm not currently taking the meds as I should be... I'm waiting for a blood test result to find out how much... then I'll see if the hot feet thing changes.. its also really painful when I walk or stand for long. Drives me NUTS.. I can't sleep because of it.

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