underactive thyroid
Posted , 4 users are following.
Tsh 1.19. T4 17 4weeks ago
yesterday
tsh 0.64. T4 18
feel terrible and dnt no why dont feel normal but cant explain why does any one no why I could be feeling this way have felt very anxious too
0 likes, 21 replies
marey rachel03291
Posted
rachel03291 marey
Posted
yes I am on 50mcg levothyroxine been takin it 10 years now but felt ill for the past 5 months
Jill6969 rachel03291
Posted
rachel03291 Jill6969
Posted
yes iv had all that checked my ferretin is 50 people have told me its low but doc said its ok as my iron in normal my t4 seems to be getting higher every few months
marey rachel03291
Posted
do you think this ferritin reading for rachael is ok?
and her T4 level? ...now 18.00 (from 17)
mine is 16.2 pmol/L i see the normal range is stated to be between 12.00 - 22.00 pmol/L
so thats ok for both of us?
Do you have your free T3 readings rachael?
T3 normal range is said to be 3.10 - 6.80 pmol/L ....mine is 4.0 so is within range
suzanne00 marey
Posted
marey suzanne00
Posted
very helpful without being too directive ...so rachael hope you can see how others are thinking and like me ....in uk....you're also wondering if we have compounding pharmacists and someone to prescribe inorder to direct for appropriate dosages?
there is an english guy who blogs about how he sorted his hyper thyroid. he got well...but his labs don't make any conventional sense and he ignores them....think he may have had a partial ablation tho.
sorry i can't remember his name but if it comes back to me i'll post it as a resource x
rachel03291 marey
Posted
my docs have never said anything about my t3 so dont know if iv had it checked
suzanne00 rachel03291
Posted
marey rachel03291
Posted
so shall we try to compose one !! Lets think:
TSH
T3
T4
C Reactive Protein
ANTIBODIES
(a list of these is needed. eg TPO, )
Various mineral balances eg pottasium/sodium
calcium/magnesium
Vit - hormone D
My serum calcium is a bit low at 2.10 mmol/L
normal = 2.15 - 2.60mmol/L
I asked for RT3 but my GP said there was no such thing!!
ie he doesn't know about it!! But you could still ask or ask a new practioner if you decide to change or can find a naturopath.
Also I have now seen all my lab results and note that in Feb 2013 I had raised ANTIBODIES for TPO. Thyroid peroxidase
The note on the lab report beside this result advises of the need for an annual review. But that wasn't done....and on 8th August 2014 I had a TSH reading of 5.1 mu/L...but no antibody readings...however my CRP was down to 1 mg/L (normal range = 0.00 - 5.00mg/L) but presumeably the ideal reading is zero indicating we're not reacting to anything! I had a prior raised reading but can't find that on my notes and a lower TSH reading of 4.5 also can't be found...but that was erroneously considered to be normal (lab results are skewed by a majority of sick people. ideal Tsh is apparently around 1.00 but its got to depend on how we feel?).
Need to hunt out a definitive list of antibodies...Have seen one somewhere...a blog?
suzanne00 rachel03291
Posted
rachel03291 suzanne00
Posted
my symptoms have been
palpatations
feeling nervous
feeling sick
fluttering feeling in neck and chest
Had a 24 hr heart monitor on and showed a few eptopic beats waiting to see. Cardioligist next month
how iv been feeling for 5 months just isnt me at all
thanxs
marey rachel03291
Posted
i have prob a cardiac pre-disposition as both grandparents died young from this...
yes i get the odd palp...am on 25mcg levo...but when i stopped taking levo my tsh went up from 4.5 to 5.1...and i now have a small goiter but i'm not very good with supplements so haven't got it together yet with a good regime. are you taking any?
think i'll stay on 25mcg levo til i've clearly worked out another way...then will try to reduce.
x
suzanne00 rachel03291
Posted
marey rachel03291
Posted
but there's no need to be feeing anxious....you are doing great!
with or without supplements your body has kick started more thyroid hormone....
rachel03291 marey
Posted
thanx for replying
my doc wont reduce my thyroid med but I do think I would feel better not takin as much my doc is rubbish
marey rachel03291
Posted
but meanwhile cut your tablet in half and YOU decide for yourself what you feel. to me it sounds like you're going hyperthy
i'm looking into a regime to get off thyroxin and onto a 'natural regime' suzanne sent me the link...would love to follow along with others...happy to stay on your thread. xx
rachel03291 marey
Posted
I am going to change docs I think I have felt crap for too long now
I would love to come off thyroxine altogeather im just hoping that my cardioligist agrees with me that my thyroxine is causing my eptopic beats
iv been so scared when I have the fluttering in chest and neck but iv spoke to people with underactive thyroid who get these flutters too.
marey rachel03291
Posted
can i take back the suggestion that you change docs at this point ...they are all trained in the same way. it may be less stress for you to stay where you are for the mo. but you could ask the cardiologist if he would order antibody testing for you....cardiac features can be autoimmune related (but then he may not be of that mindset either). But he is able to order them for you...so you could say how very grateful you would be for antibody testing and how it would put your mind at ease. Try to get him/her on side...whilst ensuring you get what info you need...to take elsewhere if you prefer ...thereafter perhaps. But they are pretty much all the same.
a naturopath might be able to help you.
however since you are seeing a cardiologist...who may do an EEG and frighten the life out of you....(i prob need an EEG from a conventional perspective).....try to hang on to the reality that you can be in control of your health and don't let the system cut you into little bits....quite literally...as a nurse i've seen this....instead since the cardiologist will write back to your GP/MD (ARE YOU UK?) to report back his findings...sometimes even leaving you out...i see from my notes that I had raised antibodies a year ago now and a specific note from the lab saying....monitor annually for TFT's ....thyroid function tests...but this hasn't happened. (Instead I took myself off gluten and my CRP dropped) but I don't know my latest thyoid antibody markers...Suzanne just asked me for them...so I'm quite angry!! sorry going off track.
at this point anti body testing would help you.
My thyroid peroxidase antibody level was 245 .00iu/mL
Normal is <34.00
so i was very inflammed....and prob still am as am having symptoms...in my case sluggishness and brain fog.
hope this is some help to you with respect to finding your way around the system and asking the most helpful kind of questions. thyroid uk are very helpful and are a supportive group. xx so="" i="" was="" very="" inflammed....and="" prob="" still="" am="" as="" am="" having="" symptoms...in="" my="" case="" sluggishness="" and="" brain="" fog.="" hope="" this="" is="" some="" help="" to="" you="" with="" respect="" to="" finding="" your="" way="" around="" the="" system="" and="" asking="" the="" most="" helpful="" kind="" of="" questions.="" thyroid="" uk="" are="" very="" helpful="" and="" are="" a="" supportive="" group.="">34.00
so i was very inflammed....and prob still am as am having symptoms...in my case sluggishness and brain fog.
hope this is some help to you with respect to finding your way around the system and asking the most helpful kind of questions. thyroid uk are very helpful and are a supportive group. xx>
rachel03291 marey
Posted
im in uk .
im just hoping their is nothing wrong with my heart but I really think its thyroid related so fingers crossed .
marey rachel03291
Posted
I was so upset with my GP...well and angry...that he didn't follow my anti body readings. There was even a note beside the result saying Thyroid UK advise to follow these .
If it wasn't for suzanne I would have been none the wiser.
I am so grateful to her!!!!!!
Now I'm onto it and trying to discover what is causing this inflammation. Have quit gluten and am now trying to keep off dairy...have started making coconut milk...its delicious!
There are tests to locate allergens but positive results don't usually show up til things have got really bad...well I'm sure that like me you're not going to wait around for that to happen!!