Underactive thyroid with good TSH levels?

Posted , 4 users are following.

Hi, I've been experiencing extreme fatigue and lethargy for a while now, its really debilitating and my doctor has diagnosed me with 'chronic fatigue syndrome' as my TSH levels were 1.2 (range of 0.1-4.5).

I've read somewhere that TSH levels don't really tell you anything, so I've ordered a private test to test the other levels, t3, t4, etc.

I'm convinced I have an underactive thyroid, my symptoms are:

Fatigue (all the time)

Constipation (2-3 bowel movements a week despite eating a lot)

Cold feet (a lot of the time, even when im warm in bed)

Itchy patches (on my face, either side of my nose, dry and itchy)

Puffy skin on my face

Pale skin (despite 3 holidays and countless sunbeds)

I've had all routine tests for vitamins etc, but my doctor is hands-down refusing to do anything else hence why i've had to go private. Can i get anyones opinion on my symptoms and the normal TSH.

Thanks x

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4 Replies

  • Posted

    Hi,

    I recently saw an endocronologist ( I live in the uk) I was suffering from the symptoms you mentioned.

    The results showed that I'm low on cortisol. Perhaps this could be the case with you. I hope your doc will be more understanding.

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  • Posted

    Hi, the same thing happened to me this week. My TSH levels were at 0.7 and because of that my T4 levels weren't checked (I've congenital hypothyroidism). The doctor thought I was perfectly fine as I was within the reference range but I knew that something wasn't right. 3 months before last week, I was tested because I was feeling hyperthyroid symptoms. Story cut short, my L-T4 dosage decreased but yet I'd now put on 5kg and I'm feeling like crap, but yet my TSH levels are 'normal'. Doctors need to understand that TSH levels don't really mean anything as they can be influenced by external factors (weather, room temperature, and a few others). They're produced at certain amounts to cater towards your body's needs at almost all time. But if your thyroid isn't producing the right amount of hormones (i.e. it isn't responding to the TSH as it should be) then there's an issue there. I hope you do carry out the private blood test so that way, you'll have a better idea of what's going on inside your body.

    Best of luck! 😃

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  • Posted

    Hi,

    Are you taking other prescription drugs? Do you take vitamin supplements? What is your diet/water and other beverage intakes like: do you consume iron (heme vs non heme) and vitamin C rich foods?...Folate/folic acid, as well. Also, have you had your nitric oxide levels checked; and, do you consume nitric oxide foods/supplements? I presume that you've had the appropriate magnesium, iron, and b-vitamin levels checked, since you've mentioned that, but have you/can you take vitamin supplements? Also, what is your age? I presume that you are male because of your posting name: dan (although, could be short for danielle/daniella, etc.). Have you been checked for Lyme Disease, because there had been (still?) suggestions/evidence that there is a connection with Lyme and Chronic Fatigue.

    My recommendation would be that you seek consult with a gastrointerologist, an endochrinologist who specializes in cases such as yours, and an infectious disease specialist. Aside from the thyroid and adrenal tests, I would have the most efficient tests for progesterone, testosterone, and pregnenolone as well.

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