Underactive thyroide playing up big time😔

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Hi. I have had an underactive thyroide now for 31 years since I was 16. I was up to 150mg. It plays up once a year & this time very low results.

Had a call from gp how said it was extremly low so up the doseage by 25mg making it 175mg. Been on this dose for over a week now but Im still feeling rather blur. No energy can sleep at a drop of a hat. My depression has hit rock bottom. Its even effecting my driving.

I normally feel better after a few days but not this time. I was wondering if anyone else has had the same problem.

Thanks P

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  • Posted

    Hello Paula:

    My name is Shelly and I am a nurse in the USA.  I have Hashimoto's autoimmune thyroid disease since 1987.

    Many of us need changes in our meds as we age and after time.  in some of us, Levothyroxine can not work as well and it must convert into T3 the useable hormone in the body.  Some of us have problems with our bodies doing this.   So you can ask your doctor for Liothyronine T3 only and it may give you that boost you need.

    I know people myself included, who took Levo for years and it did not work as it should.  Normal doses are 75 to 150mcg.  Over that you can feel your heart race., feel anxious, have insomnia or loose bowels.

    Some of us need a bit more T3 and always take these meds without food. wait at least 1 hour before eating.    Food will block absorption of  all thyroid meds.   NHS will supply Liothyronine T3 only and you can ask your GP for that.

    Some people try it at night and some take it very early in the morning.  I am only on T3 now and have become stable.  some people buy the natural thyroid from a  pig's gland and it is called NDT or Armour Thyroid.  NHS if you are in the UK will not supply it.  It has more T3 and is very close to our human thyroid hormone.

    Also when switching, it can take about 6 weeks to see a difference in the blood, so you may want to give it some time.

    Any questions, just ask,



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    • Posted

      Hi Shellyc19.

      Thanks for reply.

      I never knew that so will ask my gp.

      Yes I have the racing heart that feels like it will explode out of my chest.

      Weight loss ect ect.

      Ive just never felt as bad as I do at mo.

      Ive never seen a specialist gps keeps asking but does nothing.

      I do have to wait 3 months before next blood test.

      Thank you so much for advice

      Paula x

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    • Posted

      Hello Paula:

      Some of the signs and symptoms are of Hyper in a large dose. Such as, insomnia, loose bowels, headaches, racing heart and fast pulse, thyroid eye, and jittery feeling or anxious a lot, feeling HOT or sweating.

      You can reduce the dose, but ask your MD about it.  Always reduce slowly and in 25% increments.  So some people take a lower dose of T4 Levo /synthroid and add in a small dose of T3, Liothyronine. 

      Push to see an Endocrinologist as they specialize in this area only.


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