1. Community
  2. Bones, joints and muscles
  3. Methotrexate

Understanding me

Posted , 6 users are following.

Pops_grandma
Pops_grandma

Is is selfish to want how bloody awful you feel to be recognised ? cry

0 likes, 16 replies

16 Replies

Next
  • Bababoyd
    Bababoyd Pops_grandma

    Posted

    I hear you. I hide it most of the time and suffer in silence, but wish people could understand how bad it is.  Be strong and know there are many of us that know how you feel. We all have our moments.
    • Pops_grandma
      Pops_grandma Bababoyd

      Posted

      Thank you. I'm normally so positive, but new does of methotrexate has knocked me for six, add to the mix the menopause and all of life's pressures a slight melt down occurred !!! 

      Also, when you do say something, it's like, oh yes my so n so aches, and I want to be imagine that all over every day x 1000, that's my ache !!!!!!!

    • Pops_grandma
      Pops_grandma

      Posted

      Sorry, feeling sorry for self alert redface
  • johnfs49
    johnfs49 Pops_grandma

    Posted

    Only those that have been there know what it's like.

    Keep strong we are all in the same boat together.

    John

  • Lisa_Batts
    Lisa_Batts Pops_grandma

    Posted

    No of course it's not selfish. I'm an incredibly strong person and don't really convey my feelings but when I do nobody is listening. I've had my meltdowns though trust me! Trouble is people think because I'm strong that it's not that bad.... Sometimes I want to just scream at people! I understand how you feel. You are not alone.... 😊😊 keep going. Today's Hell is taking you to better days
  • joanne27239
    joanne27239 Pops_grandma

    Posted

    I know how your feeling. I'm on 25mg injections and I feel so rubbish on it lately. Feeling really sick and completely drained all the time. I've been on it 5 years. But now its worsening. Go back in 8 weeks but feel like I've had enough of it.

    Chin up to the Methtrexate gang. We have to keep going xxxxxxxxxxxxxxxxxxxx

    • Lisa_Batts
      Lisa_Batts joanne27239

      Posted

      Chin up indeed! It's my MTX day tomorrow and I get so anxious the night before. I try to eat loads of chocolate because I know my appetite will go as from tomorrow so that's a silver lining! Joanne I was told that after 4 months if you are still not tolerating side effects they try something else or are you just talking about the general MTX feeling? It's crap isn't it? I can't deny it is helping my symptoms though so I'm going to keep going with it and see where it takes me... For now 😊
    • joanne27239
      joanne27239 Lisa_Batts

      Posted

      It's just the general Mtx feeling! 👎😞

      My skin and aches and pains had cleared up great on the medication so made it worth while, but now it's all flared up again so it makes it harder to cope with.

      Can't go any higher on this medication. Not that I want to!

      I find if I'm hungry it's worse or just moving to quickly makes me feel nauseous.

    • Lisa_Batts
      Lisa_Batts joanne27239

      Posted

      Oh Joanne I understand that. Now my side effects are easing I've realised that the general MTX feeling isn't too great either. 5 years you've done. You have strength. Keep going 😊☀️☀️
    • joanne27239
      joanne27239 Lisa_Batts

      Posted

      Thanks Lisa. Every cloud and all that ⛅️🌈

      There's always people worse than we are xxxxx

    • penelope76067
      penelope76067 Lisa_Batts

      Posted

      phew i thought I was the only one that got super anxious the night before!! this is craziness, but in the long run we will be better offsmile so good to read all you guy's  inspiring words for this newcomersmile

       

    • Lisa_Batts
      Lisa_Batts penelope76067

      Posted

      I get in such a muddle the night before I go to bed ridiculously early just to lose that anxious feeling! My stomach goes over. Even though the MTX is no great ride when I take it the anxious feeling goes straight away..... 😊
Back to top
Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.