undetermined colitis.

Posted , 5 users are following.

In Jan 2015 I got septic shock. This shut. down my kidneys and I nearly died. The NHS saved me. This has caused undetermined colitis. I have had diarrhoea since January.

My life is now living in my front room and 18 steps to the loo. I hate it everything I eat makes it worse I try not to eat. I take oral morphine for the pain.

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  • Posted

    Hi bob1234 you've been through a very shocking & difficult time. I'm so sorry to read that you are now having to deal with the misery of frequent loos trips. You Must eat! Especially if on medication. I know from experience that you get to the point where you think if I don't put anything in my body then nothing will have to come out but it doesn't work like that. You will Still have diarrhoea but you will be loosing weight getting no nutrients & becoming more unwell. Starving yourself unintentionally  & loosing lots of fluid also affects how you are feeling, you can get down really easily & not realise how unwell you are.It might be a good idea to avoid hi fibre items & curries! But please eat a balanced diet, smaller meals & drink plenty of water. Also don't suffer in silence there are support groups & ring your clinic. Keep in touch, you will get through this. x
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  • Posted

    U r having horrendous time and I am sorry to hear it. I agree with bustergutt . What is ur gp saying . Have u seen a consultant of any description that deals with inflammatory bowel disease regardless of cause of it. There is obviously inflammation of some description going on. Has gp tried steroids to c if it helps. It is a long time to be on morphine and nothing else. I would be demanding to be referred to some one who can give u something that will deal with problem . Are you taking imodium for the diarrhoea to slow down gut motility. I would also say read up on psyllium husk and psyllium seed 2 different things but come from same plant...they may be useful . It is not a pleasant way to spend ones life and please keep us posted. MJ
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  • Posted

    Thank you for your kind advice and concern. I graze food small amounts over a few hours. Low fibre.

    I was unconscious for ten days and had no memory of the week before.

    I am slowly getting better but sometimes the colitis hits hard. I find a slug of morphine and laying on my left side helps.

    To make things worse my knee start to swell up. This ended up 7 days in hospital.

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  • Posted

    Hi Bob,

    I agree with bustergut, you need to keep eating small portions every so often and drink lots of water/ cordial to keep yourself from getting dehydrated and the last thing you need is another issue.

    You need to stay strong and bloody chase the GP/specialist because it seems like they are taking far too long especially when you're already this ill.

    If you need any advice or support just message all of us ok.

    Sam

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