Undiagnosable, untreatable, life destroying, illness with sometimes unbelievable symptoms!!!:-('
Posted , 12 users are following.
Hello...I am a 46 year old man that lives in the NE USA. I have been suffering for years with an undiagnosable, untreatable, life destroying illness that matches nothing... ANYWHERE.
I will start by telling you what my current symptoms are, followed by confirmed health issues and life issues that may have contributed to it.
I have purple lesions from my feet to my head (really bad in my legs and rear). They scale over often,scab up, ooze yellow oil and bleed. they have been spreading all over me for the past 3 years. My skin itches on top but stings down deep. There's a continuous shed if what looks like dead skin, but is always triangle shaped and seems to come infinitely out of these lesions. I am losing the ends of my fingers, and areas between my skin and bones everywhere the lesions are.
I have lost all my teeth, a lot of my vision, decreased hearing, my hair is patchy everywhere. I am losing weight @ an alarming rate. Blood tests show I am anemic. I am weak, tired, and always in pain (head aches, muscle cramp's, joint pain ).
I can't shower because I bleed, large tears in my skin open up, I get really nauseous, & the pain is intolerable.
I have been to every kind of specialist, ER's, clinics, etc...no solutions, treatments that work, or hope for a DX. The hospital's won't help me, my doctor's are out of ideas, and I am afraid this will kill me if I dont figure it out.
I welcome questions, ideas, or let me know if u r experiencing the same. Thank you...
1 like, 22 replies
Law13 Zeusdog
Edited
Hello Zeusdog! I assume you have scoured the internet for treatment or for what your condition might be. Have you looked into Morgellons? I have just recently read that some people who have Covid-19 are showing odd purple lesions on their feet. Look it up and see if they are what you are describing. Have the Drs. you have seen done any stool tests on you? Perhaps you have some type of parastitic infection unknown to American Drs. (like originated from somewhere else?) Have you traveled out of the country prior to all this? Look up some of the history on this site. There are MANY ppl on here who have posted pics of what they are dealing with. Perhaps you have something similiar to what somebody else has. I have been dealing with multiple parasitic infections as well as unconfirmed (by Western Blot) lyme disease. I haven't had much help from any Drs......I did have 1 round of Ivermectin & Albendazole but had a very odd reaction so i could'nt do the 2nd round. I have done TONS of research on all of this off the Internet for the past 7 yrs. I have some relief (diet, Infrared Sauna, Colonics, Enemas, ) etc but no cures....Keep researching and don't give up! I believe we are all dealing with the same thing which has taken on different forms and perhaps affects each of us differently. Keep your faith. Cut out dairy, sugar, etc...try alkaline diet. I just keep trying different things and trying to keep my sanity. Keep us posted on what you find. Also try posting some pics. Somebody on here might be able to help you.
Zeusdog Law13
Edited
i have had Lyme, brucellosis, dyverticulitous, and currently have dormant C-diff. stool samples sometimes say possible parasitic infection. I have done Ivermectin several times..
its not morgellans. I am currently in a not so good living situation. There are rodents, water damage, and my f'n septic was backing up into my shower and subfloor for at least a year .
My theory is a skin penetrating nematode...like thread worms. Any time i try to suggest this...im told nothing does this. Then they make it a psych issue...
Obviously something does this. The lesions r real... not in my head. The docs around here don't know anything about parasites. They won't do more than look at it. occasionally swab it, 3x biopsy. 1 biopsy came back melanoma. I don't believe it. biopsy never healed. they used to think the lesions were scars because they never di anything to see that they r holes.Now its obvious they r like large scaly, scabby holes.. . ( .
everretta97993 Zeusdog
Edited
antibiotics that end w azole are a class that fight fungal infections. u can get em for fish without a prescription. alternate, don't take the same one longer than 4 weeks. this will help prevent resistance from forming. personally I found nothing helpful until I ventured into vet sites. human Drs don't acknowledge what vets routinely treat for. the vet sites explain things in plain English. Also the peeling skin, it's a good thing. that's fungi that has been rendered inert by drying it out.
edie01709 Law13
Edited
u are the first person on here or anywhere that ive seen write that u think we are all experiencing something of the same thing but differently....ive had a start to an awakening and i have to say...i have lost almost all hope in people......but then every once in a bit it seems somebody catches my eye or i come in contact with them somehow, and they make me realize im not crazy crazy..just a little off...which is perfectly fine for me...thank u for being aware and open to possibilities that arent proven in a book and believing in something that is unknown and unseen to most.
jordan99304 edie01709
Posted
what ive noticed at times whatever we are all experiencing at times give me soft of morgellons symptoms but not to the full extent. im starting to wonder if what we all really have is an invasive fungal infection. like histoplasmosis.but then my sores on my hand looks like granulous or leshmanasis. my doctor sees exactly what im seeing but the tests are negative. i have put endless days into research and i can across something from cdc and zoloft has great response to resistant fungal and parasite infections. we will figure this out together . all of us on here
Law13 edie01709
Posted
HI Edie! Thank you for responding. I'm sorry i haven't been on here. Sometimes i just don't have the energy to write....also let's not forget that climate change is real and it's here. Which to me means that we probably have ALL kinds of insects (flying or otherwise) from other countries already living here in ours. What we all have could be from some kind of insect from South America (or somewhere else) So in addition to our healthcare system that does'nt recognize parasitic infections to (to begin with) they certainly will have NO knowledge of anything that is from foreign soil. Besides the fact that i feel like im dying from the inside out, what rally upsets me is the fact that our Drs. and healthcare system is gaslighting us and shoving us out the door like we are a nuisance. I pray for us all daily and am still searching for answers.
ptolemy Zeusdog
Edited
It sounds like you have been near a nuclear explosion! I must admit I do not know though. Have any medics any idea or suggestions?
Zeusdog ptolemy
Posted
they have dx'd it as every typical skin condition like eczema, ringworm, fungus, dermatitis, etc.. None of the treatment works. it actually gets worse.
ptolemy Zeusdog
Posted
You mean they don't really know?
Zeusdog ptolemy
Posted
0 effort. Because for a long time it just looked like a rash. when doctors only look, not listen, they dismiss it. I have been trying for several years now to express the seriousness of this. Now with this COVID 19 I am the worst I have been. This month it started spreading exponentially. The doctors offices are closed...ER's are swamped with Corona virus (it's to risky to seek, MAYBE, help) I am keft to try abd figure it out on my own. I am afraid that by the time I do it will be to late to fix 😣.
spencer84361 Zeusdog
Edited
What you need to do it get a copy of your medical records from you GP surgery or a hospital - as for one that goes all the way back too the begging.
Do you use you tube, the reason because some of the best practising Doctors in the world are on their, specialist the ones you normally have to pay for privately that costs thousands, but not on there you can ask on the chat box - one question or two at the most. If they answer most will help but will also ask for your blood work from pathology and want to analyse it themselves - people are generally kind, it is the industries themselves who want to make money.
Let me know how you get on with the 1-5 and then we will progress ok - Take good care of yourself -
Zeusdog spencer84361
Posted
I have had many cultures done... nothing...all blood work with in normal range accept I'm anemic & type2 diabetic...I will check out U tube though.
spencer84361 Zeusdog
Posted
Do you have Odema in your legs.
How far can you walk with the pain and do your legs get tired when taking pain medication.
When walking with pain medication, do your legs tire and then when you stop for a while,
does the pain subside.
Also when you lift your legs onto a bed does the pain subside.
What wound care management system do you have in place.
Do you have layered compression meaning bandaging or dressings.
Yellow or Blue line dressing, do you use Inodie for wound and infection management.
Are you having surgical debridement of the slough the yellow coating of bacteria in the wound removed, so that the good flesh underneath can heal - Do you cover the wounds - What are your medicines -
I need to know all of them - it is alot to ask - but it will help you in the long run i promise you that.
Zeusdog spencer84361
Posted
no infection, bacteria, staph, MRSA or signs of anything bad...ACCEPT THE BLEEDING, SPREADING, PAIN, ITCHING, AND NOT HEALING.. lol. my legs used to swell... now they sting and cramp.i have been on antibiotics (cream & pills), steroid cream and pills, anti fungal cream and pills all make things worse..
everretta97993 Zeusdog
Posted
I have had many of your symptoms. I haven't been able to completely cure myself but I am drastically better..may I recommend that u try Hypochlorous Acid. Topical spray
Also, probiotics..the good kind. Each are 30ish dollars. HA is what ur immune system produces to defend you from invading microbes. A genetic defect causes the body to not produce enuf. probiotics will fortify ur immune system so it can defend you properly. I highly recommend you do a liver/kidney cleanse followed by a total body cleanse.
Idk specifically what ails you. without doubt, it's toxins ur body can't kill or expel. the cleanses will reduce the toxins a great deal. the HA and probiotics will help immensely. Do you have a -rh factor?? ie: O-, A-... Also don't buy into the autoimmune retoric. an over population of parasitic microbes is a common cause. that's all I have for now. if you give me more details I can advise you better. the Drs don't want to cure you. there's no profit in it.
Zeusdog everretta97993
Posted
I just typed a long reply that was erases when I added a pic. So simply... what you see on my leg is all over my body. I am in pain, exhausted, and always hungry even though I eat non-stop, and lose body mass daily. I already take an expensive immune boosting probiotic and can't afford to keep buying things with out answers.
I will probably go to the hospital again this week. Hopefully when they see the extreme aggressive ness of this 5hey will put aside there EGOS and help me. Otherwise there won't be anything left of me soon at the rate its taking over.