Undiagnosed and unresolved stomach pain

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I have always had an left upper abdominal pain but it really got bad last year. I was referred to a GI Doctor by my PMD who did an MRI and found a narrowing in my common bile duct. But since my pain was on the left he did an endoscopy and colonoscopy which came out normal. He suggested ERCP with stent placement but that did not help the pain. Thereafter I was referred to a surgeon to remove my gall bladder because a stone was found stucked in my common bile duct. Reluctantly again I went for the surgery which didn't help the pain. A CT scan was done in November and result came out normal. I have done all blood work and xrays and CT scans but everything is normal. Now I only not feel pain in my left abdomen but all over my abdomen, pelvis area, shoulders, chest, back and the pain is really unbearable. My stomach sometimes is so sore that I find it difficult to eat. I don't know if anyone has experienced this. I really need help. This is too much to bear

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  • Posted

    Hi Susan

    In too have suffered with left side pain which became unbearable. Had an endoscopy which showed gastritis so am on

    Lansoprazole and Ranitidine. Had abdominal scan to check all major organs which thankfully came back clear. The pain has

    now spread to my neck, shoulders, abdomen, elbows plus many

    other symptoms. Because I have also had stiff joints for a long

    time I am being referred to a rheumatologist as they believe I

    may have fibromyalgia. My gp thought it might be this for a long time but until you get the all clear from bloods and other tests

    they can't consider it. Now they can and if you read up on the symptoms of fibromyalgia, I do have most of them. This may or

    may not be the case in your situation but it's worth an ask. Sorry I am not too helpful and please keep us updated with your

    progress.

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    • Posted

      Hello Caole90410,

      My endoscopy and colonscopy were normal. I am kind of really tired feeling this way. I have even sought second opinion and all they want to do is to expose me to more dangerous scans(radiation) and I have way too many in one year already. If only doctors will just listen sometimes and not quick to order these tests. I even have an enlarged lymp node under my clavicle. I got freaked out. An ultrasound was done and found to be benign. Definitely pushing to see a rheumatologist

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    • Posted

      Hi Susan

      I can understand your frustration. It's very difficult when you

      can't be diagnosed with something that you know in your own

      body to be wrong. It would definitely help to push for

      a rheumatologist. At least they can look at everything, especially when all other tests have come back normal. Fibromyalgia is

      guilty of causing many symptoms and whilst I am not

      suggesting that this is what you have, I'm saying it is a

      possibility. Are you based in the U.K. or elsewhere?

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  • Posted

    Hi Susan

    I just wondered as here there seems to be quite a wait to see

    someone, but I guess in the U.S. its different in that you can see someone quicker but you pay for it. Please let me know how you get on. Will be interesting, but also read up on fibro as it makes

    an interesting read. I'm not always an advocate of reading too

    much on the Internet regarding health as everything you read

    can lead you down the serious illness path, which just makes us panic even more, but in most cases this is not a serious illness

    at all. The fact that our bloods and other major tests have come back normal suggests something much less serious. Have a

    read and see what you think then speak to your doctor. Good

    luck xx

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