Undiagnosed but maybe not crazy
Posted , 7 users are following.
I have been in pain since I can remember. When I was a kid, I would lay in bed and cry because my legs hurt so bad. My parents kept telling me it was growing pains and to get over it. So I learned to keep quiet. But the pain persisted. My knees, ankles, back, hands, feet. When I was 19, I was pregnant with my first child. The pain in my legs was so unbearable that I couldn't walk on them. The doc at the ER asked me "have you ever been told you have arthritis in your knees?" Of course I did. What else could explain the pain I had been in? He put me on crutches and sent me on my way.
There has not been a single day that I can remember that I haven't hurt,but the pain would travel and would be mostly managable with NSAIDs. Over the last 5 or 6 years the pain has become more widespread and constant. Stairs became a struggle in my early thirties. I had to get help opening things, or lifting frying pans.
I went to my primary care a few years ago in a panic because I was in so much pain. She actually listened. She looked at my hands and feet and told me she was 99% sure I have RA, but without insurance, I couldn't afford the test. She also said I had very low vitamin D and that could also be contributing to my aches and pains.
Today, I struggle to wipe after using the restroom, gripping my steering wheel, lifting a coffee cup. My fingers are twisting and look like I am a boxer. Out of desperation because I couldn't do my job (i'm a restraunt manager) I started taking prednisone my son had gotten for his asthma last month and never took. I am not in agony. I can do things I haven't been able to do in years like tie my shoes, or put my pants on like a normal person. The swelling in my feet has gone down so much that my shoes are too big.
I have been taking pics daily of my hands and feet to document the changes so when I actually get insurance maybe I will be listened to.
1 like, 7 replies
ruth03300 Alamode
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sukes Alamode
Posted
WOW, that's quite some story Alamode and I'm so glad to hear that the prednisone is helping. If I remember rightly it can help to decrease inflammation in the body, which ultimately will help the RA.
It's a pity you are not in the UK, you would have the necessary tests and treatments needed. I hope you can get sorted very soon. x
timothy11402 Alamode
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I pray that you will get help. Best of luck to you.
tory38006 Alamode
Posted
Alamode,I am so sorry for your situation.My husband was diagnosed with RA a couple years ago and was given steroids to reduce his flare.It brought immediate relief.Is there a medical college
near you or a low cost clinic that uses a sliding pay scale or you
could contact your local depth of human services maybe they
could suggest a program.Sometimes hospitals have programs
for those who can't pay you talk to the billing depth and request
forms for indigent I think it'should called it means you can't pay
I know you are in serious pain and need help.Keeping you in my
thoughts and prayers.Tory
tory38006 Alamode
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mary76396 Alamode
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linda17563 Alamode
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Just hope you can get correct diagnosis soon.....and treatment!!