Undiagnosed severe left flank pain for months - is this kidney related?

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I have had severe left flank pain for 3 months now and still not been able to get a diagnosis. I am a 24 year old usually fit female.

The pain started towards the end of April while i was in work (an office desk job). It was on my left side in between my hip and ribs, spreading down to my groin. The pain got worse over the next couple of hours, and it has been a constant dull ache since then. The pain is most strong on the back of my left side but i can also feel it from the front.

I went to the doctors with this pain where i done blood and urine tests and got put on antibiotics for a suspected kidney infection, as well as codeine to ease the pain. The results came back with an apparent slight kidney abnormality showing, but a week later, i was still in a lot of pain and unable to move much, so i went back to the doctors where i got referred into hospital. I spent the night in hospital where i had more blood and urine tests, as well as an ultra sound. The hospital told me my results showed a UTI, but the ultrasound was clear, so i got put on another course of antibiotics and sent home. A week later, i was still in a lot of pain so i went back to the doctors where i was put on another (stronger) course of antibiotics for 2 weeks. The pain eased slightly above the groin, but the main pain on my left side was still the same.

My doctor then referred me to gastroenterology at the hospital where i had to wait weeks for an appointment, only to be told that he didn't think it was bowel or stomach related (as i can still eat and pass stools normally) and that i should have been referred to urology.

My doctor referred me to urology where the waiting list was 2 months, so i decided to get a private consultation with a urologist. The consultant done a urine test, which confirmed i had blood present in it. He went over my symptoms and suggested a CT scan in case i had a small kidney stone stuck which had been missed by the ultrasound. He was also concerned at my frequency as passing urine (this is usually over 20 times a day with anywhere between 3 to 8 times through the night). He referred me back to the NHS for the CT scan which i had a few weeks ago.

The CT scan results came back clear of kidney stones. My consultant now thinks the issue could be musculoskeletal but he still wants to see me to do some bladder studies as he is concerned about the frequency of urination. I have an appointment with my urology consultant for a few weeks time, but to see someone to investigate if the pain could be musculoskeletal there is a 3 month waiting list.

I am still in a lot of pain, both when moving and sitting (it never eases), and it is effecting my every day life. I can't go into the office to work due to the amount of pain i am in, i can't drive with it, and i haven't left the house the past few month apart from doctor or hospital visits. I am constantly feeling down and tired, and often get spells of dizziness and my eyes blacking out when i stand up (i am unsure if the tiredness and dizziness is related or not). I had a breakdown the other weekend where i cried for 2 days straight with the pain, the frustration of not being able to get a diagnosis, and not being able to do anything. I am worried that depression is kicking in with how long this has dragged on for.

I had no injury or knock to the area before the pain started. My mums side of the family also has a history of nephritis (kidney disease) with 4 of my aunt and uncles having it, but my urology consultant doesn't think there is a connection.

Is anyone able to provide any help or suggestions on what they think this pain could be as well as how to help ease it (the codeine doesn't help)? I feel like i have been passed around so many different people who still have no idea what is causing this pain.

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  • Posted

    I will make this as simple as possible. I have also suffered with the exact same thing: The pain in my right kidney and down in the front of my groin, I urinate fine, no fever, no blood in my urine, no stones.

    I have found the cure for me and I have discovered what my issue is through trial and error and much reading and knowing my own body and paying careful attention to what I eat.

    I have discovered that my issue stems from a sugar allergy. I have noticed now that when I eat heavy sugars I start having dull pain in both kidneys. I combatted this for a while by using olive leaf extract. I would take it and within an hour my symptoms would immediately disappear; until, after months of drinking sweet tea. My pain became unmanageable. My pain would not go away with just simple olive leaf extract.  I thought my problem was from my old injured herniated disk for a while, I would sit and my kidney would hurt worse and when I lay down I would not have any pain until it became really bad. I would bind over and pick something up I could really feel it in my groin.

    I thought maybe I had kidney stones at first, but when I took 1 ounce of olive oil and one ounce of lemon juice together and drank unsweetened 100% pure cranberry juice the symptoms went away within two days, I knew it was something different than kidney stones. I did these three times a day. Stones do not go away that quick I thought. What I believe happened is my kidneys became inflamed from my sugar allergy, the ureter tube gets inflamed and parts of the kidneys as well, which can cause much pain without it affecting your flow of urine.

    Olive oil is an anti-inflammatory. The lemon sends plenty of vitamin C and if there are any stones it will dissolve them when mixed.

    So, what someone would be wise in doing if they were to combat this issue is remove all tea, coffees, sugars from their diet, take 1 ounce of olive oil with one ounce of lemon juice, three or more times a day. Be careful because it can be ruff on the stomach. Just take what you can at first. I have an iron stomach and it causes me a little issue. But, I do it on an empty stomach. Drink some pure 100% cranberry juice with no sugar. It is sour, so have fun.

    • Posted

      You know you might have something there I know what you say works I have seen it works hwck lemons saved my life from Ovarian cyst Cancer. If its a sugar allery how can you be tested for that? And if so what does a person eat I mean everything out there as some type of sugar in it?
    • Posted

      The idea is not to remove all sugar from your diet. Even someone with a sugar allergy can process certain amounts. The idea is to not eat heavy amounts of sugar. You never want to get off of all sugars, because then the body will reject it even worse. You want your body to be able to build up its system against the allergy. I control my allergy with olive leaf extract. I will take it after I have eaten heavy sugars. I cannot eat heavy sugars before I go to bed or I really wake up with sore kidneys. Sometimes when I drink alcohol I will get some weird burning in my chest and through my body. Alcohol is the strongest of sugars and I have to really watch. Sometimes my body does real well with it, but other days not so. I still take my olive leaf extract. Olive leaf extract is known for its natural antibiotic qualities. This stuff is so potent against viruses, bacteria, worms, candida yeast, etc. It is the only thing I know that kills candida yeast within minutes of consumption. Sometimes detox headaches come very soon after. It is so strong my sister had hepatitis "C" and was cured of it by taking olive leaf extract. Now she carries the antibody. It is recorded by her doctor. My wife uses it every time she gets any yeast infections or bladder infection. It is gone usually with the first day of taking it. It is freeken amazing stuff. As for detecting a sugar allergy, only a handful of doctors will admit it is a sugar allergy or can detect it. Look it up online and do some studying. Sugar allergies can cause any organ in your body to become inflamed. It is usually the kidneys it attacks the worse. I keep mine under control with olive leaf extract by taking two capsules twice a day if I have heavy sugars. Good signs are pain in the kidneys after drinking alcohol or eating heavy sugars, burning in the chest or upper abdomen drinking alcohol or eating heavy sugars, and sometimes headaches soon after. Candida yeast is very high in people who have kidney problems. Once this is gone out of the body the body can heal as long as heavy sugars are not used.
    • Posted

      Thank you I will for sure getnon this as soon as I can buy some smile
  • Posted

    I am also having the same thing happening to me right now I am a 24 year old female that isn't for nand I am out of shape but for the most part I eat really good. I have been in pain a week now and it started with what I thought was the flu then from there I had to pee every 2 minutes I bad to go 18 times in one night, the pain is so bad even on high meds I still feel it, first trip to the ER it was labeled a UTI, went home started my antibiotics the pain never stopped it got worse I haven't eaten in 5 days I haven't had sleep, yesterday the pain was so bad I went back in th y took tests and a ct both coming back negative for everything no kidney stones found, no UTI even yet my side hurts so bad its like I am being punched withna fist full of sharrded glass. I was sent home again being told they have no clue.what is wrong with me ever time they can't figure it out but when the wave bits me I am like almost screaming out in pain sad I was sent home this time with a pain killer Indomethacin it helps but its only covering the pain not fixing it, I also have been having severe back pain, nauseated all the time head aches, what is wrong I am so scared I have had Ovarian Cyst Cancer before back then they didn't call it a cancer now they do depending on the case. Ovarian cysts are so painful they are the closets thing to child birth pains

    So I am in bed again wondering why I am in so much pain for no reason, there has to be a reason pain can't exist without a cause of it, so why can't anyone fond me answers and help me get ride of this pain? Why? :'(

  • Posted

    Oh and everyone the pain is in my right side and flank not my left.
    • Posted

      Hi wondering how youre doing?  Did you ever consider acupuncture?
  • Posted

    Doctors are not so wise when it comes to candida yeast. You have an overgrowth it sounds like to me. The sure way to fixing your issue is cut out heavy sugars, take olive leaf extract 2 capsules of 500mg in the morning and at night. Drink 1 ounce of olive oil with 1 ounce of pure lemon juice with no sugar two to three times a day. Be careful because it can be a lilttle ruff on the stomach, because you will not be use to it. Eating crackers will help. To counteract any issues you can take baking soda water mix. I can guarantee you will start seeing a major turn around within 24 hours. You may get some headaches at first, because you will be going through major detox. Drink plenty of water to flush your body. I may even take 48 hours since you are in very bad shape. By the way the antibiotics are cause you to be worse. Antibiotics kill all the good bacteria in your body and leaves you very vunerable and makes things worse. I would get some probiotics too, because your good bacteria in your body is destroyed by the antibiotics. These are so important to fighting any disease and can lead to more serious issues over time if you do not counteract the antibiotics.
  • Posted

    i am hoping I can help at least a few of you on this blog.  I am the mother of a 14 year old boy.  The nightmare started last october when he began to complain of blood in his urine.  And I mean lots of blood at times.  We were referred to a urologist and they found that his ureter (the tube that carries urine from kidney to bladder) was narrowed which was causing him to have the blood and pain in his left flank area.  In Novemeber he had a 8 hour laparoscopic major surgery to cut out the narrowed area of his ureter and reconnect with a stent to keep the ureter open.  He went back in January and had the stent removed in a short same day procedure.  He felt good a bout a week later for i would say about a week. Then the real nightmare began:

    He began to have severe left sided flank pain along with left sided abominal pain.  We assumed it had to do with his kidney/ureter.  WE went to the urologist 2 or 3 more times.  Nothing, I was getting so upset as the Urologist kept telling us his kidneys were fine. He was not fine. He was in severe pain from mid January to Mid April, he had gained approx 20-30# in this time, looked bloated, was nauseous, headaches, body aches and the continued left flank and left abominal pain which were the main issues.  We went from ER  to ER and heard the same story time after time. There is nothing wrong with your son.  He had missed pretty much the entire 2nd semester of his 8th grade year. He had no energy, he cried and it broke my heart when we would leave an ER and he would ask me, "why won't anyone help us mom?"  That was the worst part.  I am a nurse and I did not know what to do to help my son.  Finally, he he was so sick, he looked like death one morning. We loaded him up and went to the ER - they did labs and CT Scans, told us he had Strep Throat and Mono and was dehydrated. and were going to send us home. He was in pain he was very sick!  I told them I wanted him admitted.  This doctor was finally willing to help us. He was admitted and the next day a pediatrician came  in and again, couldn't find anything wrong and didn't think it was the mono and the strep that was causuing his pain to flank and abdomin.  We were that morning sent on to Sanford's Children Hospital in Sioux Falls, SD.  We had a team of doctors and they ran every test in the book.  We were warned that they may not be able to find the cause of the pain.  For started they found out he was severely constipated even though he had been having watery bowel move 4-5 x day everyday for the past 2-3 months.  So they began treating that.  We were there for I think 3 days when one of the doctors came in and told us they had found "A Problem" they didn't know if it was "THE Problem" but it was a start.  Keep in mind his pain had never been below a level of 8/10 for the past 3 months. Nothing helped, Not even narcotics (in reality they probably worsened the problem).  Anyways, they told us they were certain he had Celiac Disease (Gluten Intolerance), and scheduled him for a Scope the next morning to verify this... they were going to take a biopsy of his intestine to see if this is what he had.  The next morning before the procedure the doctor came in and told us that his labs were so so high that he was pretty much positive he had Celiac Disease and unless we wanted to put him through the procedure they didn't feel it was necessary.  We opted out.  So the Gluten Free Diet began the night before we were discharged.  By the next morning, his pain was down to a 7.  I had to clue was Gluten Allergy or Celiac  Disease was.  By the way Celiac Disease is worse than Gluten Allergy. 

    For somewhat of a happy ending but not so much - lol... his pain went away after being on the diet for about a month.  Which was pretty hard on him as he was a ramon noodle and breaded food eater.

    Now the pain comes when he cheats on his diet, which btw he has strict orders to NOT EVER cheat no matter how good he is feeling.  His chance of getting Colon Cancer increases every time he eats gluten.

    Gluten intolerance is becoming more and more of a problem these past few years and many doctors dont do testing for it or don't know to do testing for it.  Many doctors we saw afterwards, like our family doctor were not familiar with the disease. It makes life tough but we did find the reason for the pain and with proper diet - it is relieved. !!

    Please let me know if i was able to help anyone... I hope and pray that I am. 

    keep me updated... please! Good LUck and God Bless

  • Posted

    I forgot to mention.. they said that someone in our immediate family has to have the same Gluten Intolerance as it usually is genetic.  To our knowledge noone does.  I was actually the only was tested tho. 

    But Celiac Disease is brought on my surgery or a stressful event in your life. Which they figure his surgery is what stirred it up. Go figure.

    It has so many symptoms... pain, nausea, loose stools, frequent stools, eat and it goes right thru you because you intestines are not functioning properly.  Joint pain (which he began to get the last month), weight loss is the major symptom but he actually had weight gain, brain fog, unable to function properly because your body isn't absorbing all the nutrients and vitamins thru the intestine that they should be!  Also, his enamel on his teeth which i had noticed the past few months before being diagnosed was deteriorating.  Wasn't till after being diagnosed and researching did I put it together that that was a major symptom! 

    Anyways, just wanted to add that addt'l tidbit of info ! 

     

    • Posted

      You sometimes wonder at what you go through to get a diagnoses and treatment to improve, for me it was intersticial cystitus that took an age to get diagnosis for, started following surgery, as happens for some.

      Through it l met an old lady with same condition, support group. She,s a coeliac, so lve learnt a bit from her, and know she,s quite strict, if she went out for a meal she,d take her own gravy or sauce for chef to use. She uses a lot of genius products, gluten free range, quite expensive, even for a small loaf or biscuits bars, dont tase too bad. She does occassionally forget or tempted and pays for it with pain and rest.  Glad you did finaly get a diagnosis, its horrendous watching your kids suffer, to the extent of being in and out of hospital, my sons are in their 30s and l still worry, of course, if theyre ill, my eldest with diabetes, another condition where they can break the rules on diet, being young and healthy most of time, and it all adds to damage for later. Anyway good to hear he,s well again, big relief for you.

  • Posted

    Hi. I have had sevre right flank pain for over a year and a half. It's just under my ribs, tender to press in that area, goes around to my back and down to my groin area sometimes. The pain is so bad I can not walk long or stand or sit. I can't do much of anything. Pain is much worse with activity. Sometimes lying down with a heating pad will help. Only sometimes. I have pain meds but they are of no help most the time. I do have a history of kidney stones. I have been passing them since 1999. This past year and a half, I have been constantly with stones in both kidneys. I presently have a 10 mm in my left and a 4 mm or 8 mm in my right depending on what ER I go too...lol. My right side pain is dull but goes into these intense wave like spasms or cramp like pains. It's like someone is squeezing my kidney as hard as they can. It's the worse pain ever and I can take some pain. Everytime I go to the ER, I am told it's renal colic from my kidney stones. My question is why is it just on the right then? I have a 10 mm stone in my left and have passed just as many on that side. Why would my right kidney be in a state of constant renal colic and not my left? My left hurts sometimes but it's my normal stone pain if that makes since. It's not constant over there. I can't even sleep on my left side anymore because when I do it feels like someone pulling on my right kidney. It causes pain to sleep that way now. I have been urinating a lot more. Sometimes I go and it feels like I really had to go but not much and sometimes it's normal amounts. My last ER visit showed blood microscopicly in my urine. It usually does. I have noticed lately sometimes there is a trace of protein, sometimes not. My most concerning thing is that my eGFR non African American has dropped from 82 to 60 in the past month and my creatinine has gone from always being around 0.7/8 to 1.10. We have no urologist in our area that take our insurance and its been a battle but finally the insurance company has added the best urologist in town to our insurance since there is no one. So, hopefully once the paperwork is faxed, I can get in asap! This pain is really taking it's toll on me and I am getting worried my kidney function isn't so great on the right side. Does anyone know how they tell if one kidney isn't working as well as the other? I know if one is blocked or bad the other kidney will work for both and you can urinate normally. Oh, I have had CT's which just shows kidney stones. Nothing else. Any suggestions or answers?
    • Posted

      I just suffered from this for 7 Years... Nov 2008 - March 12 2015 😂 ... My Right Kidney was Falling onto my Hip when I sat or would Stand Up ... look at Nephroptosis aka Floating Kidney ... It Shut down my Entire Body and at 7 months post op I'm Closer to the Normal Me than Ever 😂😂😂 .... My Body was Shutting Down and I was giving up hope. Dr's all disregarded me because I was Frantic for Help. If Diagnosed and Corrected within a few years the Body Damage is minimal ... Mine just happened to be extreme
    • Posted

      Thank you for responding so quick.. Really appreciate it.

      Was your pain like a stabbing, clenching pain, making you stop what you're doing... If that even makes sense?

      How were you finally diagnosed and what consultant did you see?

      I have booked an appointment with a private urologist next Wednesday, very expensive but I feel like the NHS just look at me like they have nothing to say and I don't have a choice. I am also waiting to see the urologist through the NHS but have been dealing with this pain for a very long time and the past year has been unbearable.

    • Posted

      I described it as a "BOWLING ball On FIRE in My Ribcage" and "Satan Himself Pulling Out My Will To Live Through My Hip" 😉 ...

      But yes, it was a Constant Heavy - Burning - Dragging - Dull - Stabbing - Ache that Never Went Away. I had 4-5 Days in almost 7 Years that I was not in Excruciating Agony ...

      When you go to the Urologist - Demand an "IVP (xray) WITH POSITION CHANGE and After Emptying the Bladder" It's Very Simple... just an Xray while you are Laying Down and again with You STANDING to determine how much the Kidney is Dropping **5 Centimeters is What they normally require for Diagnosis or 2 Vertebrae... Mine was not only dropping but it Fell Back and cut off the Kidney Function so I always had Infections even on High Doses of Cipro (Antibiotic)... I'm in the U.S. and had to travel 800 miles to Austin Texas for an Accurate Diagnosis followed by another Trip 3 weeks later for Surgery to Correct it. Which is done Laprascopically (easy breezy 😉) and they Clip the Sutures so the scar Tissue Holds

    • Posted

      Thank you so much!!

      I feel like this is what it may be, but I am worried as I have lost hope as I have been sent from one department to another.

      I'm in the UK but I would have loved to seen your consultant so thats a slight shame!

      Thank God you finally have a diagnosis and have had treatment.

      It's horrible being in pain from always being fit and healthy and not getting any accurate answers.

      Thank you again... Much appreciated xx

    • Posted

      If you can get the Urologist to Order the Xrays I would be More Than Happy to Help Connect My Texas Urologist (Who Actively Visits with Patients via Live Chat to stay Connected, So I'm Positive He would Assist 😉) and Yours in the UK so they can Get You Fixed!! Also, Make Certain with the Xrays that they get a View AFTER you've emptied you're bladder... *This is what caused mine to drop as far as it did that AWESOME Day. And I don't know if you have limitations, but I Strongly Suggest that You Request a Copy of the Scan for Yourself. This is again an area that my Local Radiologist Fell Short. They Mis-Read and Incorrectly Reported my results as "No Nephroptosis" when in fact I was almost Twice the Required Measurement ... but The Scan is what My Urologist used to accurately diagnose me. 😉
    • Posted

      Hi sorry for late reply. Went into emergency room today, only to be discharged by the same urologist who saw me in March 2015 by saying he wont do nothing because he done a CT scan in March.

      My pain is beyond excruiciating, I have no idea what to do or who to go to.

      It sucks and nobody can figure out whats wrong with me.

    • Posted

      Sorry to hear what your experiencing, lve been in that position, as have many, my symptoms a bit different to yours, but frequent severe pain, poor health, drastic affect on lifestyle, knock on affect to partner, kids, desperate go into gps, exams, tests, xray, scans, no diagnoses, so it goes on and time passes, l paid for private twice, and not well off, so a struggle, but desperation, and it didnt bring diagnoses, just more exams, scans, scope, by which time l was quite ill, in hospital, sent home in same state, you cant believe whats happening going on and on, l didnt, the whole experience shocked me to the core, that you can be just left to it, thought l was unique, but reading on here see so many going through same desperation for just a diagnoses to start with,  l did eventually get one, found a decent gp referall scope and intersticial cystitus, but left a long time to do damage. but meds did help, so there is hope, so hang in there.  Have you had cystascope, if not you need one, as it shows what scans dont, or you could pay to see private if your able, or l think youve a right to have a second opinion from a different consultant.  l hope you get a diagnoses soon, best wishes.

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