Undiagnosed severe left flank pain for months - is this kidney related?
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I have had severe left flank pain for 3 months now and still not been able to get a diagnosis. I am a 24 year old usually fit female.
The pain started towards the end of April while i was in work (an office desk job). It was on my left side in between my hip and ribs, spreading down to my groin. The pain got worse over the next couple of hours, and it has been a constant dull ache since then. The pain is most strong on the back of my left side but i can also feel it from the front.
I went to the doctors with this pain where i done blood and urine tests and got put on antibiotics for a suspected kidney infection, as well as codeine to ease the pain. The results came back with an apparent slight kidney abnormality showing, but a week later, i was still in a lot of pain and unable to move much, so i went back to the doctors where i got referred into hospital. I spent the night in hospital where i had more blood and urine tests, as well as an ultra sound. The hospital told me my results showed a UTI, but the ultrasound was clear, so i got put on another course of antibiotics and sent home. A week later, i was still in a lot of pain so i went back to the doctors where i was put on another (stronger) course of antibiotics for 2 weeks. The pain eased slightly above the groin, but the main pain on my left side was still the same.
My doctor then referred me to gastroenterology at the hospital where i had to wait weeks for an appointment, only to be told that he didn't think it was bowel or stomach related (as i can still eat and pass stools normally) and that i should have been referred to urology.
My doctor referred me to urology where the waiting list was 2 months, so i decided to get a private consultation with a urologist. The consultant done a urine test, which confirmed i had blood present in it. He went over my symptoms and suggested a CT scan in case i had a small kidney stone stuck which had been missed by the ultrasound. He was also concerned at my frequency as passing urine (this is usually over 20 times a day with anywhere between 3 to 8 times through the night). He referred me back to the NHS for the CT scan which i had a few weeks ago.
The CT scan results came back clear of kidney stones. My consultant now thinks the issue could be musculoskeletal but he still wants to see me to do some bladder studies as he is concerned about the frequency of urination. I have an appointment with my urology consultant for a few weeks time, but to see someone to investigate if the pain could be musculoskeletal there is a 3 month waiting list.
I am still in a lot of pain, both when moving and sitting (it never eases), and it is effecting my every day life. I can't go into the office to work due to the amount of pain i am in, i can't drive with it, and i haven't left the house the past few month apart from doctor or hospital visits. I am constantly feeling down and tired, and often get spells of dizziness and my eyes blacking out when i stand up (i am unsure if the tiredness and dizziness is related or not). I had a breakdown the other weekend where i cried for 2 days straight with the pain, the frustration of not being able to get a diagnosis, and not being able to do anything. I am worried that depression is kicking in with how long this has dragged on for.
I had no injury or knock to the area before the pain started. My mums side of the family also has a history of nephritis (kidney disease) with 4 of my aunt and uncles having it, but my urology consultant doesn't think there is a connection.
Is anyone able to provide any help or suggestions on what they think this pain could be as well as how to help ease it (the codeine doesn't help)? I feel like i have been passed around so many different people who still have no idea what is causing this pain.
6 likes, 174 replies
tobiyah stefxgx
Posted
I have found the cure for me and I have discovered what my issue is through trial and error and much reading and knowing my own body and paying careful attention to what I eat.
I have discovered that my issue stems from a sugar allergy. I have noticed now that when I eat heavy sugars I start having dull pain in both kidneys. I combatted this for a while by using olive leaf extract. I would take it and within an hour my symptoms would immediately disappear; until, after months of drinking sweet tea. My pain became unmanageable. My pain would not go away with just simple olive leaf extract. I thought my problem was from my old injured herniated disk for a while, I would sit and my kidney would hurt worse and when I lay down I would not have any pain until it became really bad. I would bind over and pick something up I could really feel it in my groin.
I thought maybe I had kidney stones at first, but when I took 1 ounce of olive oil and one ounce of lemon juice together and drank unsweetened 100% pure cranberry juice the symptoms went away within two days, I knew it was something different than kidney stones. I did these three times a day. Stones do not go away that quick I thought. What I believe happened is my kidneys became inflamed from my sugar allergy, the ureter tube gets inflamed and parts of the kidneys as well, which can cause much pain without it affecting your flow of urine.
Olive oil is an anti-inflammatory. The lemon sends plenty of vitamin C and if there are any stones it will dissolve them when mixed.
So, what someone would be wise in doing if they were to combat this issue is remove all tea, coffees, sugars from their diet, take 1 ounce of olive oil with one ounce of lemon juice, three or more times a day. Be careful because it can be ruff on the stomach. Just take what you can at first. I have an iron stomach and it causes me a little issue. But, I do it on an empty stomach. Drink some pure 100% cranberry juice with no sugar. It is sour, so have fun.
HisPandagirl tobiyah
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tobiyah HisPandagirl
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HisPandagirl tobiyah
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HisPandagirl stefxgx
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So I am in bed again wondering why I am in so much pain for no reason, there has to be a reason pain can't exist without a cause of it, so why can't anyone fond me answers and help me get ride of this pain? Why? :'(
HisPandagirl stefxgx
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lori40961 HisPandagirl
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tobiyah stefxgx
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bobbie20451 stefxgx
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i am hoping I can help at least a few of you on this blog. I am the mother of a 14 year old boy. The nightmare started last october when he began to complain of blood in his urine. And I mean lots of blood at times. We were referred to a urologist and they found that his ureter (the tube that carries urine from kidney to bladder) was narrowed which was causing him to have the blood and pain in his left flank area. In Novemeber he had a 8 hour laparoscopic major surgery to cut out the narrowed area of his ureter and reconnect with a stent to keep the ureter open. He went back in January and had the stent removed in a short same day procedure. He felt good a bout a week later for i would say about a week. Then the real nightmare began:
He began to have severe left sided flank pain along with left sided abominal pain. We assumed it had to do with his kidney/ureter. WE went to the urologist 2 or 3 more times. Nothing, I was getting so upset as the Urologist kept telling us his kidneys were fine. He was not fine. He was in severe pain from mid January to Mid April, he had gained approx 20-30# in this time, looked bloated, was nauseous, headaches, body aches and the continued left flank and left abominal pain which were the main issues. We went from ER to ER and heard the same story time after time. There is nothing wrong with your son. He had missed pretty much the entire 2nd semester of his 8th grade year. He had no energy, he cried and it broke my heart when we would leave an ER and he would ask me, "why won't anyone help us mom?" That was the worst part. I am a nurse and I did not know what to do to help my son. Finally, he he was so sick, he looked like death one morning. We loaded him up and went to the ER - they did labs and CT Scans, told us he had Strep Throat and Mono and was dehydrated. and were going to send us home. He was in pain he was very sick! I told them I wanted him admitted. This doctor was finally willing to help us. He was admitted and the next day a pediatrician came in and again, couldn't find anything wrong and didn't think it was the mono and the strep that was causuing his pain to flank and abdomin. We were that morning sent on to Sanford's Children Hospital in Sioux Falls, SD. We had a team of doctors and they ran every test in the book. We were warned that they may not be able to find the cause of the pain. For started they found out he was severely constipated even though he had been having watery bowel move 4-5 x day everyday for the past 2-3 months. So they began treating that. We were there for I think 3 days when one of the doctors came in and told us they had found "A Problem" they didn't know if it was "THE Problem" but it was a start. Keep in mind his pain had never been below a level of 8/10 for the past 3 months. Nothing helped, Not even narcotics (in reality they probably worsened the problem). Anyways, they told us they were certain he had Celiac Disease (Gluten Intolerance), and scheduled him for a Scope the next morning to verify this... they were going to take a biopsy of his intestine to see if this is what he had. The next morning before the procedure the doctor came in and told us that his labs were so so high that he was pretty much positive he had Celiac Disease and unless we wanted to put him through the procedure they didn't feel it was necessary. We opted out. So the Gluten Free Diet began the night before we were discharged. By the next morning, his pain was down to a 7. I had to clue was Gluten Allergy or Celiac Disease was. By the way Celiac Disease is worse than Gluten Allergy.
For somewhat of a happy ending but not so much - lol... his pain went away after being on the diet for about a month. Which was pretty hard on him as he was a ramon noodle and breaded food eater.
Now the pain comes when he cheats on his diet, which btw he has strict orders to NOT EVER cheat no matter how good he is feeling. His chance of getting Colon Cancer increases every time he eats gluten.
Gluten intolerance is becoming more and more of a problem these past few years and many doctors dont do testing for it or don't know to do testing for it. Many doctors we saw afterwards, like our family doctor were not familiar with the disease. It makes life tough but we did find the reason for the pain and with proper diet - it is relieved. !!
Please let me know if i was able to help anyone... I hope and pray that I am.
keep me updated... please! Good LUck and God Bless
bobbie20451 stefxgx
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But Celiac Disease is brought on my surgery or a stressful event in your life. Which they figure his surgery is what stirred it up. Go figure.
It has so many symptoms... pain, nausea, loose stools, frequent stools, eat and it goes right thru you because you intestines are not functioning properly. Joint pain (which he began to get the last month), weight loss is the major symptom but he actually had weight gain, brain fog, unable to function properly because your body isn't absorbing all the nutrients and vitamins thru the intestine that they should be! Also, his enamel on his teeth which i had noticed the past few months before being diagnosed was deteriorating. Wasn't till after being diagnosed and researching did I put it together that that was a major symptom!
Anyways, just wanted to add that addt'l tidbit of info !
lynne69494 bobbie20451
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Through it l met an old lady with same condition, support group. She,s a coeliac, so lve learnt a bit from her, and know she,s quite strict, if she went out for a meal she,d take her own gravy or sauce for chef to use. She uses a lot of genius products, gluten free range, quite expensive, even for a small loaf or biscuits bars, dont tase too bad. She does occassionally forget or tempted and pays for it with pain and rest. Glad you did finaly get a diagnosis, its horrendous watching your kids suffer, to the extent of being in and out of hospital, my sons are in their 30s and l still worry, of course, if theyre ill, my eldest with diabetes, another condition where they can break the rules on diet, being young and healthy most of time, and it all adds to damage for later. Anyway good to hear he,s well again, big relief for you.
bobbie20451 lynne69494
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GoIrish3 stefxgx
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amanda33492 GoIrish3
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neelam143 amanda33492
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Was your pain like a stabbing, clenching pain, making you stop what you're doing... If that even makes sense?
How were you finally diagnosed and what consultant did you see?
I have booked an appointment with a private urologist next Wednesday, very expensive but I feel like the NHS just look at me like they have nothing to say and I don't have a choice. I am also waiting to see the urologist through the NHS but have been dealing with this pain for a very long time and the past year has been unbearable.
amanda33492 neelam143
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But yes, it was a Constant Heavy - Burning - Dragging - Dull - Stabbing - Ache that Never Went Away. I had 4-5 Days in almost 7 Years that I was not in Excruciating Agony ...
When you go to the Urologist - Demand an "IVP (xray) WITH POSITION CHANGE and After Emptying the Bladder" It's Very Simple... just an Xray while you are Laying Down and again with You STANDING to determine how much the Kidney is Dropping **5 Centimeters is What they normally require for Diagnosis or 2 Vertebrae... Mine was not only dropping but it Fell Back and cut off the Kidney Function so I always had Infections even on High Doses of Cipro (Antibiotic)... I'm in the U.S. and had to travel 800 miles to Austin Texas for an Accurate Diagnosis followed by another Trip 3 weeks later for Surgery to Correct it. Which is done Laprascopically (easy breezy 😉) and they Clip the Sutures so the scar Tissue Holds
neelam143 amanda33492
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I feel like this is what it may be, but I am worried as I have lost hope as I have been sent from one department to another.
I'm in the UK but I would have loved to seen your consultant so thats a slight shame!
Thank God you finally have a diagnosis and have had treatment.
It's horrible being in pain from always being fit and healthy and not getting any accurate answers.
Thank you again... Much appreciated xx
amanda33492 neelam143
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neelam143 amanda33492
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My pain is beyond excruiciating, I have no idea what to do or who to go to.
It sucks and nobody can figure out whats wrong with me.
lynne69494 neelam143
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