Undisguised abnormal Fainting syndrome (does anyone have similar symptoms?)

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Hi all. So I'm a 22 year old female with an undiagnosed abnormal fainting syndrome. I say undiagnosed in the sense that doctors are / and have been astonished with my condition and are clueless as to what might actually be wrong. 

I have exercise induced fainting episodes in which I have complete body paralyses with palpitations and extreme lethargy. These episode may last from anywhere between 20mins to 2hrs.

Symptoms include :

- weakness 

- loss of speech

- tachycardia

- palpitations

-  unconsciousness 

The big thing that seems to have doctors puzzled is the length of unconsciousness as well as the fact that I am mentally awake / can hear during these unconscious episodes. 

If there is ANYONE out there that may have similar symptoms or a diagnosed condition with similar symptoms PLEASE reply!!! 

 

I have had this condition for 8yrs now. I am desperate for a diagnoses! 

Julia. 

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15 Replies

  • Posted

    Hi Julia,

    Are you under a Consultant Neurologist at all? You seem to have many symptoms of what is more commonly known as "Functional Episodes", these are seizures that do not show up under an EEG.

    A better explanation would be on Dr Jon Stones (Consultant Neurologist) website which you can find here: www.neurosymptoms.org - it may also enlighten your own doctors to the symptoms you are suffering from. Many of your symptoms are listed on that site, so it maybe worth you reading up on it.

    Most conditions are diagnosed within 18-24 months, seems strange that you have not had any diagnosis in 8 years!

    Regards,

    Les.

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  • Posted

    well if the medical proffesion cant help , try seeking the advice of an alternative practioner a registered one , say a homeopath befor you think that i am a crazy women , the docs arent helping much are they so whats there to loose .

    a homeopath will hear all your symptoms and ask you many questions that a doctor wont , and what ever they prescribe will either work or not and wont hurt

    look up regestered homeopaths in your area on the net .

    sorry i cant be more helpful but this has got to be worth a try, homeopathic mednicine has been around for centries , and there are even homeopathic hospitals a lot of famous people and the royal family are users of this form of medincines . i use it for fiibro and it works well for me .theres a homeopathic hospital in scotland i found it easy with just putting that in the search engine contact them they maybe able to give you some advice.

    have they ruled out epilespy .?

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  • Posted

    Goodness Julia, how awful for you.  I assume you are seeing a Neurologist. 

    I don't have your symptoms but I do recall watching a programme on Television about a girl who was having multiple fits and who had an operation of some kind, in Manchester or a hospital near to that area

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  • Posted

    I've currently seen multiple nurologists, cardiologist, psychologist. 

    They've ruled out Epilepsy, Cancer (brain tumour), they suspected a migrane related syndrome but the sypmtoms are somewhat un related. 

    I've had EEG's, ECG's, MRI's, CAT scan, Exercise Stress Tests.. All came back inconclusive. 

    The only test that show any positive results was a Tilt Table test. 

    VERY VERY baffling. Im partially suspecting an Adrenaline related parasymathetic neuron response ... but I am no medical professional. 

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    • Posted

      I have replied to your message. It does rule out everything you mentioned in the message above.

      It may be a good idea to ask your Neurologist to check the condition I have mentioned, because it is overlooked by many.

      Regards,

      Les.

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  • Posted

    What a dreadful condition. I'm so sorry to hear about it and I wish you all the best in finding the cause and solution. I think Tina's suggestion is a good one. If conventional practitioners are at a loss after 8 years, what's to lose consulting an alternative health care practitioner? In my late teens and early 20s (i'm female btw) I suffered regular fainting spells and migraines which lasted for a period of about 10 years before disappearimg as mysteriously as they started. Nowhere near as dramatic and distressing as what you're experiencing. My gut feeling was the root cause was hormonal. Maybe an endocrinologist could shine a light on this for you? Where's Dr House when you need him?
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  • Posted

    What did the tilt table show?

    You've mentioned a lot of Specialists, have you seen an Ophthalmologist?

     

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    • Posted

      Tilt table test confirmed muscular relatated tachycardia and hypotension. 

      Ophthalmologist? haven't seen one yet but i supose is worth a try. 

      certainly do with Dr house wasn't a tv character and a real doctor.. maybe he would be able to find out this mystery. 

      Quering now Functional Nuerological Disorder.. still not sure thought given the assumption that a nuerologist would've already looking into this. 

       

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    • Posted

      well you do what you think is right i know which side i am on .

      and thats mine , il stay with alternative remedies and treatments for as long as they work .  i hope you find out whts wrong soon .

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    • Posted

      I remember some years ago, they were looking into rose tinted specs for migraine sufferers,  I think they helped some people but now they appear to have moved on.

      I hope one of your doctors has sufficient time to be inquisitive and want to investigate your problems until s/he finds the answer.  It does sound like some form of fit, doesn't it.

      Does it happen at a particular time, or does it not happen at a particular time, say for example, does it happen when you are in bed?

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    • Posted

      Well my mother has somewhat similar symptoms but no where near as severe.. and the doctors are suspecting a rare form of a migrane syndrome. 

      My episodes happen following extreme physical exertion ( such as competetive sporting events or evens involving hightened adrenaline) 

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    • Posted

      I hope they eventually find out what is causing this.  I find it fascinating, which doesn't help you, so let's hope that a doctor is equally fascinated, so that he can help you.
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