Undisguised abnormal Fainting syndrome (does anyone have similar symptoms?)

Hi Julia,

Are you under a Consultant Neurologist at all? You seem to have many symptoms of what is more commonly known as "Functional Episodes", these are seizures that do not show up under an EEG.

A better explanation would be on Dr Jon Stones (Consultant Neurologist) website which you can find here: www.neurosymptoms.org - it may also enlighten your own doctors to the symptoms you are suffering from. Many of your symptoms are listed on that site, so it maybe worth you reading up on it.

Most conditions are diagnosed within 18-24 months, seems strange that you have not had any diagnosis in 8 years!

Regards,

Les.

well if the medical proffesion cant help , try seeking the advice of an alternative practioner a registered one , say a homeopath befor you think that i am a crazy women , the docs arent helping much are they so whats there to loose .

a homeopath will hear all your symptoms and ask you many questions that a doctor wont , and what ever they prescribe will either work or not and wont hurt

look up regestered homeopaths in your area on the net .

sorry i cant be more helpful but this has got to be worth a try, homeopathic mednicine has been around for centries , and there are even homeopathic hospitals a lot of famous people and the royal family are users of this form of medincines . i use it for fiibro and it works well for me .theres a homeopathic hospital in scotland i found it easy with just putting that in the search engine contact them they maybe able to give you some advice.

have they ruled out epilespy .?

Goodness Julia, how awful for you.  I assume you are seeing a Neurologist. 

I don't have your symptoms but I do recall watching a programme on Television about a girl who was having multiple fits and who had an operation of some kind, in Manchester or a hospital near to that area

I have just discovered, it was Liverpool

http://www.channel5.com/shows/brain-hospital-saving-lives/articles/about-the-show

blimey that is baffling hope they get to bottom of it asap

I've currently seen multiple nurologists, cardiologist, psychologist. 

They've ruled out Epilepsy, Cancer (brain tumour), they suspected a migrane related syndrome but the sypmtoms are somewhat un related. 

I've had EEG's, ECG's, MRI's, CAT scan, Exercise Stress Tests.. All came back inconclusive. 

The only test that show any positive results was a Tilt Table test. 

VERY VERY baffling. Im partially suspecting an Adrenaline related parasymathetic neuron response ... but I am no medical professional. 

What a dreadful condition. I'm so sorry to hear about it and I wish you all the best in finding the cause and solution. I think Tina's suggestion is a good one. If conventional practitioners are at a loss after 8 years, what's to lose consulting an alternative health care practitioner? In my late teens and early 20s (i'm female btw) I suffered regular fainting spells and migraines which lasted for a period of about 10 years before disappearimg as mysteriously as they started. Nowhere near as dramatic and distressing as what you're experiencing. My gut feeling was the root cause was hormonal. Maybe an endocrinologist could shine a light on this for you? Where's Dr House when you need him?

What did the tilt table show?

You've mentioned a lot of Specialists, have you seen an Ophthalmologist?

 

Sorry no experience of this.