Undisguised abnormal Fainting syndrome (does anyone have similar symptoms?)
Posted , 6 users are following.
Hi all. So I'm a 22 year old female with an undiagnosed abnormal fainting syndrome. I say undiagnosed in the sense that doctors are / and have been astonished with my condition and are clueless as to what might actually be wrong.
I have exercise induced fainting episodes in which I have complete body paralyses with palpitations and extreme lethargy. These episode may last from anywhere between 20mins to 2hrs.
Symptoms include :
- weakness
- loss of speech
- tachycardia
- palpitations
- unconsciousness
The big thing that seems to have doctors puzzled is the length of unconsciousness as well as the fact that I am mentally awake / can hear during these unconscious episodes.
If there is ANYONE out there that may have similar symptoms or a diagnosed condition with similar symptoms PLEASE reply!!!
I have had this condition for 8yrs now. I am desperate for a diagnoses!
Julia.
0 likes, 15 replies
SteV3 jsherar
Posted
Are you under a Consultant Neurologist at all? You seem to have many symptoms of what is more commonly known as "Functional Episodes", these are seizures that do not show up under an EEG.
A better explanation would be on Dr Jon Stones (Consultant Neurologist) website which you can find here: www.neurosymptoms.org - it may also enlighten your own doctors to the symptoms you are suffering from. Many of your symptoms are listed on that site, so it maybe worth you reading up on it.
Most conditions are diagnosed within 18-24 months, seems strange that you have not had any diagnosis in 8 years!
Regards,
Les.
tiswas24537 jsherar
Posted
a homeopath will hear all your symptoms and ask you many questions that a doctor wont , and what ever they prescribe will either work or not and wont hurt
look up regestered homeopaths in your area on the net .
sorry i cant be more helpful but this has got to be worth a try, homeopathic mednicine has been around for centries , and there are even homeopathic hospitals a lot of famous people and the royal family are users of this form of medincines . i use it for fiibro and it works well for me .theres a homeopathic hospital in scotland i found it easy with just putting that in the search engine contact them they maybe able to give you some advice.
have they ruled out epilespy .?
mrsmop jsherar
Posted
I don't have your symptoms but I do recall watching a programme on Television about a girl who was having multiple fits and who had an operation of some kind, in Manchester or a hospital near to that area
mrsmop jsherar
Posted
http://www.channel5.com/shows/brain-hospital-saving-lives/articles/about-the-show
darren1971 jsherar
Posted
jsherar
Posted
They've ruled out Epilepsy, Cancer (brain tumour), they suspected a migrane related syndrome but the sypmtoms are somewhat un related.
I've had EEG's, ECG's, MRI's, CAT scan, Exercise Stress Tests.. All came back inconclusive.
The only test that show any positive results was a Tilt Table test.
VERY VERY baffling. Im partially suspecting an Adrenaline related parasymathetic neuron response ... but I am no medical professional.
SteV3 jsherar
Posted
It may be a good idea to ask your Neurologist to check the condition I have mentioned, because it is overlooked by many.
Regards,
Les.
HazzaMcBazza23 jsherar
Posted
mrsmop jsherar
Posted
You've mentioned a lot of Specialists, have you seen an Ophthalmologist?
jsherar mrsmop
Posted
Ophthalmologist? haven't seen one yet but i supose is worth a try.
certainly do with Dr house wasn't a tv character and a real doctor.. maybe he would be able to find out this mystery.
Quering now Functional Nuerological Disorder.. still not sure thought given the assumption that a nuerologist would've already looking into this.
tiswas24537 jsherar
Posted
and thats mine , il stay with alternative remedies and treatments for as long as they work . i hope you find out whts wrong soon .
mrsmop jsherar
Posted
I hope one of your doctors has sufficient time to be inquisitive and want to investigate your problems until s/he finds the answer. It does sound like some form of fit, doesn't it.
Does it happen at a particular time, or does it not happen at a particular time, say for example, does it happen when you are in bed?
jsherar mrsmop
Posted
My episodes happen following extreme physical exertion ( such as competetive sporting events or evens involving hightened adrenaline)
mrsmop jsherar
Posted
jenny60469 jsherar
Posted
Sorry no experience of this.