Unexplained neurological symptoms
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I have suffered a series of unexplained neurological symptoms for the past 13 yrs. Muscle twitching in various parts of my body, tingling and numbness in feets, hands, face, scalp, face, tongue, lips. I was tested for a variety of central nervous system disorders back in 2006, all came back negative. The years between have seen these symptoms come and go, annoying, worrisome some days but essentially benign. However about 18 months ago they intensified in severity and time wise. They came with other symptoms, fatigue, lightheadness, muscle cramps, chest pains, tinnitus etc. Again the neuro symptoms were deemed to be essentially benign. I received a diagnoses of CFS. Doctors tell me that the CFS is exacerbating the unexplainable neuro symptoms. Does anyone else suffer from this? Not CFS but benign unexplained neuro symtpoms? I am still not convinced that there is no explanation, as I feel surely there must be some issue with my nervous system. I should say that have had two clear MRIs 12yrs apart.
Does anyone else suffer from so called unexplained neuro symptoms?
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Lodge charlie19
Posted
Yes I have suffered from what they call idiopathic neuropathy for the past six years or so. Started with some numbness in my right foot and has now progressed to both feet and and lower legs. Always worse in bed and when I first get up - I also get terrible cramping in my feet and legs. Another symptom is it feels like there are pebbles under my toes when I walk. All very disconcerting and, like you, some days are far worse than others. Sometimes it is my hands and face, but fingers-crossed not that often. I had an MRI scan and nothing significant showed up - just a bulge in my lower spine, which apparently is quite normal for someone of my age. I have tried different supplements but none of them seemed to make that much difference. I still take a good quality fish oil capsule every day and magnesium (when I remember). No way that I would take Gabapentin or Pregabalin.
charlie19 Lodge
Posted
Thanks Lodge. With the term idiopathic I understand that to mean unexplained damage? In which case the symptoms are practically permanent? If that is the case then I probably dont fall into that category, in the sense that mine are transient......although there would not be a day where they did not occur.
I also take fish oil and magnesium.....although I see no benefits as such. Perhaps my CFS is the dominant condition here? I have looked at pregabalin although none of my doctors have suggested it. I do know someone with CFS who was prescribed it a few years ago and they reckon it had a positive effect on them.