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Unexplained pain for 1 year

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shak2340
shak2340

Hi ,I'm a 28 year old guy never had any medical issues before last year,one day out of the blue I noticed I started to urinate frequently this was quite weird for me I was going maybe once or twice in a hour but interestingly I have never had issues at night..this carried on for a few days until I went to the doctor who did a urine test which came back normally but it did have traces of blood but he said it wasn't a big deal..anyway a few weeks went by and this annoying urge wasn't going away so instead of waiting for months through the NHS I went to see a private uro he checked everything out and said it seems like it's OAB told me to retrain my bladder and sent me on my way so I was in process of retraining my bladder when I started to feel a discomfort in my left groin meanwhile I had a blood test which came back as 28mm ESR which meant immflamtion in the body I went back after a week for a repeat test which again still showed raised ESR because it was on the lower end they didn't think much off on my follow up app with the uro I discuss this new symptom with him and he did a prostate check and diagnosed me with prostatits so he wrote up a few meds antibiotics and Advil took them for 14 days but no luck I went back to him and he prescribed flomax which had a awful side affect..seen as I wasn't getting anywhere with this uro I saw 2 on the NHS both useless in that time my frequencey has more or less evened it self out but I've had ultrasound ct scan prostate checks MRI and a cystocopy again all test negative this is really after affecting my life and it's also stress my wife out to see me in a mood.the medication they have put me on is amtrip 50mg and lycria 75 day n night.my main symptom now is discomfort in the groin area which gets relived by urinating I normally go 4-6 a day I can sleep through out the night..my GP is a good man but we are both getting frustrated..the last time I saw a uro again private money out my own pocket was suppose to be a specialist on urological pain syndromes I showed him my file with all the tests and results I told him about my pain/discomfit which is like somtimes has a tingling feeling which goes all around my groin scrotum and inner thighs and makes everything feel senstive and once I urinate I get relive until it starts to happen again after a few hours My flow is also weak now not strong anymore I use to be able to urinate 30 seconds at a time with lot of pressure but now barley 10 seconds.he again did a prostate check which he confirmed was fine and I did not have prostatits he said my symptoms are musculoskeletal/nerve issue and that I should go n see a physiotherapist I did mention intrestial cystits to him but he dismissed it and said would have more bladder issues i saw a specialist in pelvic floor who said I had tight pelvic floor muslces and my lower body was out of anliment and she will be working on this tbh I haven't got high hopes seen as nothing else so far has worked.,if u are still reading this I thank you and I honestly hope you can help me find some relief thanks S

1 like, 3 replies

3 Replies

  • Guest
    Guest shak2340

    Posted

    I have had similar pain on right hand side of my bladder for over 3 years, I  am on my 5th urologist and have had virtually every test they have, and still no diagnosis.  I have pain /pressure every time my bladder fills which is relieved on emptying it.  My GP prescribed Tolterodine for the frequency/urgency which sorted that out but didn't take away the pain.  If it is interstitial cystitis then the mild haematuria is something that should be looked at as that can indicate IC.  Also blood in the urine gives you the urge /frequency to pee.   It will be the Amitriptyline that is making your urine stream weak, it did the same to me, I was advised to stop taking it as I have an enlarged prostate too.  The trouble with getting an IC diagnosis is it tends to be one of exclusion in men as about 90-95% of people with it are women and most urologists will focus on your prostate if you are a man.    Suggest you look up the EUA Guideline on Chronic Pelvic Pain from 2012, very medical but also thorough on causes of such pain, then go back to your GP.  If the GP thinks it might be that then get them to put it in the referral letter to urology, then they may consider it.  That's what my GP did.
    • shak2340
      shak2340 Guest

      Posted

      Thanks for the reply...the problem with me is I do not have frequency/urgency I normally urinate between 4/6 times a day and can sleep through the night..also my pain is not in the bladder it's mostly in the groin area,the pain /discomfit Is the primary issue..this is really baffling to me
    • shak2340
      shak2340 Guest

      Posted

      I'm still no wiser to any diagnose or any relief..I can't belive being 28 years old and developing these symptoms..I'm not sure how I got this and how I can get relief..I don't urinate a lot maybe 5/6 during the day max!! After having this problem since October 2014 I can sleep through-out the night but the discomfort that develops in my groin area which gets relived as soon as I urinate makes me think ther is a connection to the bladder
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