Unexplained Pelvic pain for a year, can't cope 17
Posted , 2 users are following.
never thought of posting on here but it seems i cant get ANY good advice i am at the end of my ropes and need help. please listen to my story. im only 17 and have lost all hope.
Anexiety history
ive had anxiety for about 3 years which has only gotten bad since i started having pain. the anxiety started when i found a lump on my right testicle. It is an epididymal cyst, when i first found the lump at 14 i was very distressed as you can imagine at that age. and kept it quiet for about 2 years because i was so worried about it being something serious. I also worried for my future and consequences of what would happen if i told anybody e.g have to get my balls removed. so i kept it quiet. until somthing forced me to say something... i developed a sexual repression and was very insecure about myself. although i was still seeing girls and having sexual relations. the cyst continued to grow in size and cause me distress
Pain history
My pain started just more than a year ago just before the summer when i had sex with my first proper girlfriend. after about the 2nd/3rd time i started noticing a burning sensation in the head of my penis and in the uthrea. i presumed an std. which elevated my anxiety for i knew i would have to reveal the lump. i continued having sex (some unprotected) and to hide the lump. during this i saw the the doctors they give me std medication. i think it was trimethoprim and co-amoxiclav. one after the other. they didnt work. a month or so went by. i split up with my girlfriend. this caused me lots of emotional ditress becasue of the other things i was going through. soon after this time i started noticing loss of erections and depression and anexiety really kick in. around about this time the pain i was feeling comming from inside my penis changed... and sat in the pelvic reigion. i notice now that i was holding lots of stress in that area. and the points i have wrote are only some of the stress at the time that was contributing to this stress.
i finally tell a doctor about the lump and i really didnt want to it was because i was at breaking point. and i go get a testie ultrasound for that... epididymal cyst. suprisingly i didnt feel much relief, as the pelvic pain was the bigger problem (causing loss of erections). i wanted to tackle it one problem at a time. at this time numerous tests done e.g blood urine. pelvic ultrasound, chlamidia. ALL NEGATIVE. these tests were done around october/ december. oh yeah also i done kegels for the loss of erections. very bad idea made the pain worse. didnt realise how doing this would add to the tight pelvic floor i probably already had... oh and i also used to smoke a lot of weed thank f**k i stopped that.
you can probaly see why i blame myself for alot of this pain ahah.
i was then seeing a pelvic floor spesialist hoping for answers for about 5 months. she diagnosed me with an overactive pelvic floor. have been doing may stretches to try loosen up that area/trigger points/internal pelvic floor stretch. and deep breathing exercises.
Where i am today
i have now come to terms that my mental illnesses have caused all of this. seems silly thinking about it but for all this time i was lead on to beilive it was physical from doctors and to keep having tests done. ive started therapy and the lady has suggested i get the lump removed which i agree on. i have many theories that dont give me answers. i have heard of somthing called somatization which i seem to relate to.
my current symptoms.
Pelvic pain 24/7 non stop pain medication doesnt work. amtrypimine for 8 weeks no improvment. naproxen nothing.
bowel probelms. constipation/diarrheoa and burning sensation comming form the anus.
loss of erections. cannot maintain full erection for that long. almost complete loss of sex drive.
stress exasterbates my pain.
i need a plan of action of how to control my pelvic pain. i want to see girls again.
i appreaciate any replies you give and will be sure to provide any further information.
0 likes, 3 replies
George1234
Posted
Xoxo George1234
Posted
I am a woman so I don't know about male problems. But I went thru such bs I had chronic groin pain and muscle spasms I went everywhere I went to urologist , urogynocologist pelvic floor specialist , I had ovarian congestion surgery coils put in thru my neck, laparoscopy for pelvic adhesions, nerves taken out in my groin iliohypogatic and illioinguinal, was told I had a fractured pelvic Bone, then cancer in my pelvic bone then a hip surgeon told me there was nothing wrong with me. I still had terrible groin pain and pelvic floor pain and when I walked by nighttime I was in agony. And in the morning it felt like I had a bladder infection and my pelvic floor hurt. This was the answer and I hope someone learns from this. I went to the best doctors the Vincera institute in philly dr Meyers and had a complete exam you can google it and what they found was a hip tear a cam impingement and pincer the cam bump grinds on the labrum of the inside of your hip. I had an MRA of my hip and an AP MRI. They have a special muscular skeletal radiologist dr roedl After my diagnosis I went to Hhs in Ny and went to Dr Coleman who also works at Vincera two days a month. I had hip Arthoscopy on 2/23/17 and all the crap pelvic floor pain bladder pain is gone. So I'm sure anyone whose had a baby or played sports or even injured is still trying to find out why they have this pain and all along it's a labral tear. Hip pain refers to groin right at the level of your pubic hairline. It feels like the worst bladder infection tearing of your insides soreness right on your pubic bone. Trust me they do not need your business if u google them u will see they are top surgeons and doctors. It saved my life.
Xoxo George1234
Posted
Go to good physiatrist( pain doctor) Go to a good counselor make a plan write it in a notebook. How to make myself better and follow thru and break it down into weeks . You can do this! You're only 17, don't be anxious trust me you're going to be alright. It really gets easier. At 17 you own your body and take responsibility talk to your doctor about stds and stop having and worrying about sex. Having sex so young is too much pressure work on your inner self. Amitriplene has side effects is one of them sexual? Read about drugs u r putting into your body ask your doctor, find a doctor u trust and confide in him or her they have heard everything. Be brave you can figure this out. Work through your questions with your counselor.