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I was suspected of having polymyalgia rheumatica after a heart op. that went well - only I didnt recover muscle strength in spite of time effort and remedial classes. Now four years later even standing is becoming exhausting work; Im tired dull and depressed . Oddly it doesnt hurt, never has, which seems to mean it is NOT p.m.r ?
Has anyone any knowledge of "unidentified myopathy" ? Please say if you know anything about it! Doctors say I will just get worse, slowly with any luck, ending up in bed too feeble even to hold up a book.
I really wd prefer to know just what Fate has in store but Docs I've asked refuse to be clear. Steroids didnt work for me, I'm told, but maybe there are courses, medecines, regimes, that can extend ability? . I am a bit desperate and would love to hear from someone with knowledge.
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