Unilateral and Bilateral M.D.
Posted , 8 users are following.
High to the Group,
I'v have M.D. in my right ear for many years but i believe it is
starting in my good ear as i have noticed tinnitus and intrucive
high and low pitched noise but none of the fullness i experience
with my bad ear..i haven't had a bad attack for ages but am still
getting dizziness and ragging tinnutis plus balance issues ..I'm interested
how M.D. started for those who suffer M.D. in both ears..
Did you have M.D. in both ears from the start or did it migrate to the
other ear after several years and when did you first notice the change
plus what were the symptoms..I'd say i have 10% of my hearing left in
my bad ear but i'm death in that ear if i'm stressed or the tinnitus is
bad..i'm worried if it has started in my good ear i'd be almost death..
I'v got 4 months to wait for my audio tests at the E.N.T....
1 like, 17 replies
Debbieb34 stephen61100
Posted
I also started back with spinning attacks for the past 6 weeks, just took a diuretic for 3 weeks which didn’t help my ears or spinning and I’m stopping it because it’s making me dehydrated, I will call doc Monday to explore betahistine.
I too am interested how people have handled or even stopped this from going bilateral.
I know stress is a huge trigger for me and even though I haven’t been out of the house, I try to do something daily that makes me feel good/productive so I’m not always concentratating on my symptoms.
I sincerely hope you get some relief and that this does not go bilateral for you.
Please keep us posted
stephen61100
Posted
Hello Debbie,
It seems with have a lot of symptoms in common,
I'v had meniere's for 17yrs i had an audio test at my
surgery about march last year and have an appointment
booked for june so that should show if there is any hearing
loss also i had my good ear syringed but i think that
made it worse as a lot of the tonal quality in that ear as gone
..i noticed it as soon has i got out the surgery i ignored it
thinking it would come back but it hasn't yet that was 3 weeks ago
i have also noticed i'm turning up my tv more than usual..
can i ask you do you pick up any tinnitus in the hearing aid ?
is it an hearing aid the device you describe or is it something else
that helps with tinnutus ..I'v read that there are 3 stages of meniere's
stage 3 being that the attacks stop but the tinnitus deathness and poor
balance also nausea remain..i think this 3 stage is where i am as the
bad attacks have started getting further apart and the odds of contracting
it in both ears 50/50 ..like you i have to deal with a lot of stress and anxiety
also i only go out if i have to you carnt make plans with meniere's it's
about if your going to chance it or not..at christmas this year my sister
had 14 family members round i dont think i would have lasted 5mn before
feeling in over my head and having to go home so i stayed home..
sorry to hear your going through it to....
Debbieb34 stephen61100
Posted
The first is set for a regular amplifier since I have lost hearing in that ear. The other 3 settings are varying degrees of pink noise, from soft to louder to mask my tinnitus. The audiologist set them up, you could pick any noise as a masker depending on what you hear as your tinnitus.
I never use the first setting because I always have tinnitus and sometimes just sleep with it in. Other times I will sleep with a headband that has built in flat speakers connected to my phone or iPod that plays white noise.
I also have a second device called a streamer pro that goes around my neck, if my tinnitus is louder than the 4th setting, I can connect the hearing aid through Bluetooth to my phone and the streamer to play an assortment of relief sounds, (I have been using this a lot lately since my symptoms have returned and sometime will listen to birds chirping, etc., anything that masks the sometimes maddening noise in my ear).
I hope this help, I live in New York, hearing aide was partially covered through insurance, it was several thousand and the streamer I had to buy, I believe it was several hundred but so worth it for me.
Good Luck.
Debbie
stephen61100 Debbieb34
Posted
Thanks for the info Debbie,
Do they have blue noise for a boy...Lol..
just joking ..
I'm in england the e.n.t. has talked about hearing aids
but because i can not work i would have to rely on our
N.H.S but what they provide is pretty basic probably
your no 1 setting that you don't use..
I use an air filtrater for c.o.p.d.at night with a bit of imagination
the fan sounds like running water and blends in with the tinnitus..
thanks again for the info..i have another e.n.t. in may ..
baggiebird stephen61100
Posted
Hi...I was diagnosed 10 years ago with MD in my right hear. Over the years my hearing as deteriored in my right ear. Went for hearing test Nov to be told my left ear is nearly as bad as my right and now have 2 hearing aids. I'm asking my gp to refer me back to ENT because I believe I have now got MD in both ears. I have balance problems tinnitus, fortunately for me I don't suffer with sickness just nausea. My attacks are getting more frequent but vertigo not as severe, if that's make sense!!!! I now just have giddiness when moving. Constant tinnitus and fullness in right ear. GP told me that MD can burn itself out between 12 and 15 yrs....Here's hoping . Good luck to all MD is a horrible condition but stayin positive helps
stephen61100 baggiebird
Posted
High Baggiebird,
Hope your holding up..
you have my sympathy for having lost some of your hearing
in both ears..The E.N.T. did talk to me about hearing aids do
they really work as i'm under the impression that they will amplify
the tinnitus as well as improving the hearing in other words
i don't want to hear what i hear now only louder..
I no what you mean about shorter attacks with less vertigo
it happens to me mainly when im walking or sudden head movments
it's slowed me right down and now i use a stick so if i feel an attack
i use it as a prop and stop to recover my balance...
Bertman stephen61100
Posted
Hello Stephen, The meniere's started in my left ear and then overtime it became bilateral and included the right ear. I begin to lose balance when the first ear started, I could walk with a cane, this would prevent me from leaning to the left. Then when the right ear started I had to use a walker because I would lean both left and right. I was able to get around for about a year using my walker and then I begin to fall back away from my walker, so it was wheelchair time for me. Have a great day
ø¤º°`°º¤ø-:¦:-•:*'""*:•.Bertman •:*'''''*:•-:¦:-ø¤º°`°º¤ø
stephen61100 Bertman
Posted
High Bertman,
That's interesting that your M.D started with balance probs..
I believe my Meniere's started when i was 29 as when i played
guitar i would have tinnitus for a long time after and the fact that
it was only in the left ear and not both which was wierd i dont
nos if i had balance probs because being in the building trade
i was doing a lot of drinking but my mates were always saying i was accident
prone so may be it was not the beer but the actual attacks didn't start
until i was 40 and my deathness was slow in process from there..
do you still have any hearing left...
barry61472 stephen61100
Posted
Hi Stephen,
I had unilateral md in my right ear for 20+ years, with all of the associated symptoms (vertigo, dizziness, nausea, tinnitus, fullness and balance issues.)
In December 2016, I had a Labyrinthectomy on my right ear that left me completely deaf in that ear. However, I was symptom free for 8-9 months.
In about the Oct/Nov time frame, I started having symptoms again, only on my left side. My ENT and I now believe I may be developing bilateral MD. We are early in the process so haven't done very much yet. Will keep you posted.
Barry
stephen61100 barry61472
Posted
High Barry,
Thanks for the reply ..
I'm sorry to hear about your condition when was it you were first aware
their was something wrong with your good ear,
with me i noticed a need to turn the tv up higher and high pitched tinnitus
which i thought was tricks of the mind then i started getting high pitch and low
pitch tones the would come in quick and go just as quick this is when i decided
to get it checked out this is how it started in my bad here so i'm understandably
worried.....
anna-lise66666 barry61472
Posted
I am new to this forum but am wondering that when you said you were symptom free after you had the Labyrinthectomy for approx. 6-9 months was that also the tinnitus and has it stayed away.
I have md in my left ear it started after I washed my hair in the sink and got water in it. A year later after seeing my doc who referred me to an ENT who sent me to a audiologist who told me I was loosing my hearing (which I already knew ) 70 percent loss in that ear He suggested a hearing aid . I am trying not to get stressed out but my other ear had lost 60 percent hearing when I was told I had conductive hearing loss and a staphendectomy was performed 14 years ago and my hearing improved to 85 percent and is still holding .
now with being told I have md and loosing my hearing I am hoping this other ear will keep working
I never had any vertigo or ringing in that right ear I was just loosing sound. With the left I have vertigo nausea vomiting and this horrendous noise in my ear.
Last week it was so bad I thought I was having a heart attack so My husband called an ambulance ( I have AFIBB and a leaky Valve) My head felt like it was exploding with the pressure and the roaring in my ear was horrid to add to that I started vomiting so my stress level was sky high and I went in to full blown AFIBB .The attack has subsided but I am left with the horrendous screaming ear . the labyrinthectomy did it solve your problem ?
barry61472 stephen61100
Posted
Stephen,
I actually did nor notice a dimunition in the hearing in my good ear. I started getting episodes of tinnitus, fullness in that ear, dizziness (where there had been none for months,) vertigo (where there had been none for months,) wooziness and nausea. It was only after meeting with my ENT to discuss the new symptoms that he suggested I have another audiogram. I just had that a week or so ago and that's when I found out about the diminished hearing in my good ear.
Barry
barry61472 anna-lise66666
Posted
After the Labyrinthectomy, I was completely symptom free for almost 9 mos. It was only when I started developing bilateral MD that all of the symptoms returned.
Barry
stephen61100 barry61472
Posted
Thanks Barry61472,
I had an audio last march at that time he told me
there was hearing loss in my good hear but it was consistent
for my age ..he went on to say there was a lot of wax buildup
and booked me in for syringing to remove it..
i wish he hand't now as i'v lost a lot of clarity in my good ear
due to that process..the very process you described is the same,
theres no fullness in the ear but i'v but my balance and my head feels
like an attack with no vertigo but ragein tinnitus in bad ear but not
so bad in the good ear also feeling sickly ...
i have another E.N.T. in may i no there is hearing loss so its matter
of wait and see...wishing you well ...stev
mary16977 stephen61100
Posted
Hey Stephen,
I have MD in both ears. Started in my left, which has much worse hearing loss than my right. Migrated to my right ear a few years ago with the same symptoms...tinnitus, fullness. My right ear still isn't as bad as my left. I'd say it took about 10 years before I noticed that I was having symptoms in my right ear as well. I have the bilateral hearing aids now, which are helping. I'm the same as you...I woke up in a panic one morning, thinking what if I lose hearing in my good ear? I'll be completely deaf. It spurred me to look into hearing aids.
Stay on top of that diet. Do meditation or yoga to help with stress. If possible, cut out as many stress inducers as you can.
All my best wishes for you...make sure to tell your ENT all of your concerns and keep pushing for answers and relief. Be your own best advocate!
-Mary