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wonder if anybody had a similar experience to me and what they did about it?
I've had long standing ME/CFS/Fibro and a whole lot of complications secondary to same. I'm house bound for long periods and times when I can make it outdoors but v. exhausted & in pain. I had a ''Universal Credit'' assessment & to make a long stormy short, they have taken almost all my benefits off me. I was on enhanced level DLA. I'm left with circa £78 a week to live on and am on an expensive Protocol that means that I'm not house bound all the time. on the amount allocated, I can hardly live on it and the protocol will have to be dropped. It's what keeps me moving about and not bedbound.
The report from the assessment didn't remotely resemble what transpired at the actual assessment. I was on my own. any comments welcome.
with thanks in advance
p.s. the stress of the assessment has left me totaly washed our, weak and with new symptoms.
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