Unmarried with Fibroid and Adenomyosis

Posted , 8 users are following.

Hi,

I am 27 years old unmarried woman. I have too much pain in my stomach and uterus and vomiting almost daily.

After ultrasound doctor said I have a 30mm intramural fibroid in my uterus. And there are symptoms also of adenomyosis(endometrium tissue inside the muscle wall of uterus). And he said operation should be done as soon as possible to remove uterus.

I don't want my uterus to be removed.

I found on some sites that andometriosis can be treated with laparoscopy because tissues are outside of the uterus wall. But only a complete hysterectomy is a way for my adenomyosis as endometrium tissues are in the middle of uterus wall.

Kindly suggest if any of you have faced similar situation and found any solution.

Thanks.

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9 Replies

  • Posted

    Uterine artery embolization can be used to treat adenomyosis. While it's 90% effective in relieving the symptoms of fibroids, it's about 75% effective in treating adenomyosis. But that gives you a lot better chance of having a baby in the future than hysterectomy.

    -Suzanne Slonim, MD

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  • Posted

    Hi Karishma

    I am so sorry you are having all these troubles. I don’t know what the answer is, but in the meantime I highly recommend that you buy some magnesium spray and spray it on your skin, asap. For the past 3 months I have been using magnesium spray and all my fibroid symptoms have virtually disappeared, including the flooding. My periods are also shorter.  4 days as opposed to 7 days on my regular schedule. I too was told to have a hysterectomy, but I was not in as much pain as you are. But I did have pain and thought that I would have to have a hysterectomy. I feel like my fibroids are shrinking, but I have yet to confirm this with my doctor. My fear is that you are in too much pain for it to help you quick enough, but it will help with your symptoms until you find a solution to your problem. Apparently women who have fibroids are deficient in magnesium. Our bodies do not absorb magnesium well through our digestive system, so the best way to get it is through your skin. Getting enough magnesium is also vital to balancing our hormones. Fibroids problems start from having unbalanced hormones. The brand that I use is very inexpensive and has been very effective for me. It’s the Life-flo brand. It’s about $10 and a bottle will last months. I bought it at a health food store, but you can also buy it online. I have been on Fibristal (Esmya) 3 times, while it was helpful, the magnesium spray has worked better for me without the side effects. I hope you can find a solution that will work for you. Best wishes.

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    • Posted

      I have heavy bleeding/flooding every month due to my fibroids. My period usually lasts up to 8-9 with heavy bleeding for 3-4 days. I read your response and immediately ordered the magnesium spray. How much and often do you spray it and where on your body do you spray? I hope and pray it will work for me the way it's worked for you! Thank you for sharing it.

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    • Posted

      I spray it every night before I go to bed. I spray it right on my stomach. The bottle says to use 4 to 5 sprays on your skin. I spray it directly on my stomach, where the fibroids are. You will feel a slight warm itchy feeling from the salt drying on your skin. I try to think of it as a hot water bottle being placed on my stomach, which is why I spray it there. If I spay it other places I tend to want to scratch the area. I use about 10 sprays on my stomach(165mg of magnesium). The directions say it supplies 66mg for 4 sprays(16.5mg/spray). The recommended daily dose of magnesium is 310mg a day. Do not exceed the daily dose as you are most likely getting magnesium from the food you are eating as well. Getting too much magnesium consistently could be dangerous to your kidneys. I also spay it on my knees. I’m quite active and sometimes have knee pain, when I spray this on my knees my knee pain goes away. I believe it’s the muscle relaxing qualities of magnesium that is keeping the muscles around my knees relaxed and minimizing the pain. The spay will get on your cloths and make the material weird, but this will come out in the wash.

      I am so happy that I found this information out. Just three months ago I was considering that I should just go ahead and have a hysterectomy, but I came across a post from linda86253. She recommended the magnesium spay, so I thought I would give it a try. It has changed my life! I do have a completely new diet, because of a sulfite allergy and problems with gluten. I believe my new diet has helped with the pain and pressure against my bowels, but when I started using the magnesium spay I started to feel better within days. If I forget a day, I start to feel a little ill and get right back on it. I now feel like my fibroids are shrinking. When I drive my car and slouch I used to feel my fibroids push against my ribcage on the right side of my stomach. I have not felt this for the past couple of months. I have an gynecologist appointment at the end of the month and will do an update. Whether they have shrunk or not my fibroid symptoms are now minimal and I no longer feel like a need a hysterectomy.

      I hope anyone who reads this and tries the magnesium spay has the same results.  If you do, please share your story.

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    • Posted

      Here is an update on my situation. The magnesium spray was working great, until I fell off my strict diet and also started going out drinking with the girls, then my symptoms started coming back and I had to go back on Fibristal/Esmya. I recently had an ultrasound and the results were that my fibroids had shrunk, but she couldn’t tell me accurately how much because I had switched doctors and clinics that did my original ultrasound tests. My current doctor told me that the same clinic needs to do the testing to get an accurate reading of how much they shrunk. I’m not claiming that the fibroids shrinking was from the magnesium spray, because I had taken 3 rounds of Fibristal/Esmya. I just know that the magnesium spray greatly helped with the symptoms, especially after I went off Fibristal/Esmya. I am convinced that the magnesium spray works, but obviously not alone. I have a sulfite sensitivity and gluten issue. I have to stop eating processed foods and stay away from wheat. And apparently alcohol and fibroids do not mix well sad .

      So now I have to think about if it is realistic to continue to rely on a strict diet, with no alcohol and the magnesium spray to control my fibroids or do I consider another alternative. At this point I’m considering a hysterectomy because I feel that most women who have tried to save their uterus have eventually ended up getting a hysterectomy in end and have commented that they wish they hadn’t waited so long. I feel that if having children are not in your future, it is probably the most effective approach available at this point. As well you don’t have to worry about the possibility of uterine cancer in the future. Currently I’m still waiting for Magnetic Resonance-Guided High-Intensity Focused Ultrasound to be approved in Canada, but I’m not sure realistically how long I can hold out, before I opt for the hysterectomy.

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  • Posted

    hi!, you should look for a second opinion. I just had the uterine artery embolization, and in two weeks you feel great. I'm sure that there should be another option before removing your uterus.

    good Luck!!!

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  • Posted

    Hi Karishma, where do you live? Get a second opinion from a doctor who specilase in endometriosis. Ask your gp to refer you again. In uk they have recently started changing policies for endometriosis 
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