Posted , 5 users are following.
Hi everyone this experience is absolutely horrid and scary. I'm currently going through unprovoked PEs & unprovoked upper-extremity DVTs. Dr.s are all at a loss because mine were both separate incidents, both unprovoked and all my blood work has come back excellent. I'm hoping someone might have experienced a similar situation with a similar lifestyle.
I'm a 36 yr old female non-smoker, never used hormone or birth-control pills, never been a drug user, active lifestyle, absolutely no trauma, have not been traveling, I do not drink, vegetarian,.....
I went to the ER a week ago Saturday with chest pain and right arm swelling. The ultrasound of my arm was negative for any clots and so was my chest X-ray...but the CT dye scan showed I have countless PEs in both lungs. I was put on Eliquis and sent home on Sunday. Wednesday morning my right arm and chest wall looked like The Hulk, all the veins protruding and swelling unfortunately I could not breathe but I made it to the ER. I now have extensive large blood clots under my clavicle, arm pit and down whole arm. After 2 days in ICU and on a Heprin drip I still was not able to get therapeutic. I was switched to Warfarin and Lovanox shots. I spent 5 days in the hospital, now I'm finally home.
I have fantastic Drs but none of them have any answers and because of the severity of my clotting and being unprovoked the outcome is Warfarin for life most likely. I own a horse farm and a hair salon... I can't work for the next month and I'm not sure if I will ever be able to have the active lifestyle with my horses as I did before. We have 4 children and I am in so much pain when I breathe and I'm so so tired it's difficult to move around much. The pain in my lungs come and go???
I've never experienced any health issues, I'm extremely health. This has been devastating to me and my family. I'm so greatful to have found a chat room with other PE/DVT survivers. Hoping someone might have some answers or suggestions for my situation. Praying I don't have to be on blood dinners for the rest my life but it's not looking promising . Thank you in advanced for any replies they're greatly appreciated I hope everyone has a beautiful day. Xxoo
1 like, 21 replies