Unsolved Pancreas / Gallbladder - Normal tests

Hello,

I am from the UK, 31 years old 3 young children. Youngest is 9 months.

I have similar symptoms to you. I have right sided pain and left sided pain. When I have an attack it hurts to take a deep breathe on my right side. I feel sick and have diarrohea. The pain on my left side is worsened by eating but generally it has no pattern. Left side is almost constant and right side flares up with a large meal or fatty foods. I have loose stools. No visible oil but I have a sheen on the top of the water. My stopls have some undigested food in them (usually vegtables) and they smell a little bit chemically.

I saw the surgeon to have my gall bladder removed and he said he wouldn't take it out as he believed my problems to be caused by chronic pancreatitis.

I've had the following: 2xMRI/MRCP, 2x ultrasound, lots of bloods including: full blood count, amylase, lipase, liver functions, bone profile, vitamin D, iron, clotting, hepatitis, HIV, thyroid. Stool sample for feacal Elastase.

All my results are NORMAL!! Even my gall bladder!! And pancreas!!

I see the gastro at the end of April. I still need to have a Hida scan, endo and colonoscopy.

Have u had any stool samples taken? Have you heard of an EUS? (endoscopic ultrasound).

I too have seen a chiropractor and it did relieve my upper left sided back pain however I do still suffer with back ache but it across my ribs at the back and feels a different type of pain? If that makes sense!

I also find no pain killers take the pain away. I have been taking paracetamol and naproxen when having a flare up. It doesn't help at all. As I'm still feeding my baby I'm limited to what I can try.

I do honestly feel your frustration and desperate need for answers. It's driving me crazy no knowing and I have 3 kids under 4 to look after I find it hard work

I hope you manage to get some resolve soon. Please update this thread with more info once you have it.

In relation to seeing another Dr. I am currently moving to another Dr as my dr didn't take my symptoms seriously and refused to refer me to anyone and continuously diagnosed me with a pulled muscle and gastris.

I eventually got to see a surgeon and its gone from there

All the best Gem

I am in the same boat mine has been going on for a year now. it started bizarrely had throat pain but not where you tonsils are mainly in the larynx area.

also having nerve- Electric shock type little pains in between my shoulder blade's and mid back which would come and go.

after six months of this I then suffered really horrendous at abdominal pain. which lasted a month non-stop it was worse at night when I was laying down and it was a really strong dull ache that would radiate right through to my back. one day it gradually started to fade out and I've not had it since like that maybe the odd twinge here in there.

but I do have a constant pain around my shoulder blades and when I take a deep breath it feels like my shoulders are being ripped out. i've had nausea and I was sick once and it had traces of blood in it, only tiny amounts though. I was told this could've been a burst blood vessel but I don't think it was because I'm 35 and I've never had blood in my sick before and normally I am a real recher when I'm sick.

i've had your chest pain here and there as well now my pain is right-sided under my ribs that sometimes makes my right shoulder ache as well. and when I wake up in the morning is my left side feels like it's all cramped up bruised internally it's horrendous but the more I move throughout the day it gradually wears off. I still have a slight pain but has been continuous for year now. i've also had flashes of a pain at times as well.

i've been going to the GPs for the first six months when this started for them to treat me for depression telling me it was all in my head I was imagining the pain making the pain worse. eventually I collapsed with the pain I was taken to hospital where I had a CT scan and that was normal. i've also had an MRI scan ultrasound. Fecal test, A blood test for autoimmune pancreatitis. A blood test for tumour markers. all came back normal. (I had to pay for all of these things as the GPs were not interested)

The specialist I am seeing now did go over my scans again and said my pancreas does look on the plump side but has told me because all my blood tests are negative for pancreatitis it can also be plump if there is a lot of healthy tissue. I just don't buy that when I've got this many symptoms and in this much pain.

I also have two children and it does terrify me.

i've lost friends and family over this as everybody thinks I'm going crazy and should see a psychiatrist. but I know there is something wrong your body does not give of symptoms for no reason

I hope that this finds you feeling better and you've made positive progress in getting answers ... hugs

I realize this is from 3 years ago but I am desperate and I just joined this page just so i could reply to you. How have you been feeling?  I feel like I could have written your post as I have a very similar situation. I al 31.  I've had a 10 year history of unexplained abdominal pain and chronic diarrhea. I thought I had food poisoning. I keep having vomiting/severe pain/diarrhea attacks and they will go away after rolling around for a half hour in agony. After about my 3rd attack I had a blood test with slightly elevated amylase and lipase. Dr said mild pancreatitis eat a low fat diet for a week. I did. Then had another attack and another. And another. Then blood tests are all normal. Ultrasound normal. Ct normal.  Fecal labs. Normal.  They don't know what's wrong. I'm breastfeeding so I refuse to do the hida scan. 

I'm curious if you ever got an answer or a diagnosis? 

Hey its probably late for this reply...but u should see a general surgeon . They can probably do an ERCP do determine if there are any abnormalities in the bilary tree or pancreatic duct.