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Unspecified kidney failure?

Posted , 5 users are following.

Josh301196
Josh301196

Hi guys wonder if anyone has anything similar 

I’ve had on going renal problems for a while now, repeat cystoscopy, catheter angiograms, scans , mri,ct. my urine dip sticks for 15 months have shown +++ blood and ++ protein, I’ve recently seen my nephrologist and urology team and they have since put on my clinic review letters unspecified kidney failure? 

Has anyone else had experience of this if so what if they would share there experience ? 

Thanks in advance ! 

0 likes, 10 replies

10 Replies

  • Guest
    Guest Josh301196

    Posted

    Hi Josh

    Not had quite the same probs but I have CKD 3a/b and only blood ++ in my urine, so far my scan and scope negative, they said I had kidney disease of unkown cause until recently.

    I went for a lot of anti body tests and came back with auto antibodies ANCA positive, so now they are suspecting autoimmune kidney disease.

    Did you have antibody tests? Just a thought.

    Hope you find out, did you have a biopsy yet? I think that is next on my list of tests.

    Good luck x

    • Josh301196
      Josh301196 Guest

      Posted

      I’ve had so many scans etc but they said nothing on the scan is showing but just in my 24 hr urine collection and urine dips etc. I’ve asked the consultant about a biopsy and he said he wasn’t comfortable doing one at the moment with the amount of blood I have already and he doesn’t want to cause me to bleed more. 

      I haven’t had any of them testings as of you I’m going to see them Friday and have a list of questions to ask them etc. 

      It’s been 15 months now and would just like to know what it could be or what’s causing it. I get infections a lot, sepsis quite a handful of times. 

      Thank you for replying and I hope your ok! X

    • MrsO-UK_Surrey
      MrsO-UK_Surrey Josh301196

      Posted

      Josh, likeJane I have CKD3b.  I also have just a sole kidney.  Last year I had a load of UTIs,  mostly e-coli bacteria and blood and protein being found by the Lab, and the infections plus the antibiotics to treat them adversely affected my kidney function.  One AB was prescribed for too long by a GP who should have known better and landed me in hospital from the dangerous AB-acquired Clostridium Difficile!  Some time later, an ultrasound revealed a small growth on the bladder.  Thankfully, when removed  under GA it was found to be benign.   

      Do you know what your eGFR and creatinine levels are?  These are good markers of kidney disease?  Are you drinking plenty of water and avoiding

      salt in your diet?  Also if you have been taking any anti-inflammatory medications, avoid them like the plague in future.  Jane’s suggestion of being tested for autoimmune inflammatory conditions is a good one - it was one such illness that led to CKD for me.  Lots of good luck wishes for a diagnosis and treatment soon so that you can get on with enjoying your life.

    • Josh301196
      Josh301196 MrsO-UK_Surrey

      Posted

      My GFR levels are fine my creatinine level is apparently above range, I avoid salt, I don’t take any anti inflammatorys. I’m going to see what they say this week when I go to see them. 
    • Guest
      Guest Josh301196

      Posted

      Hi Josh

      Are you male? Did they test your prostate? I expect they did, just a thought.

      How do they work out kidney failure if your GFR is normal???

    • Josh301196
      Josh301196 Guest

      Posted

      They did a month back and all was good. And I have no idea! I was wondering the same thing just want to know sad
    • MrsO-UK_Surrey
      MrsO-UK_Surrey Josh301196

      Posted

      Josh, intriguing if you’ve been told your eGFR is normal yet your creatinine is raised because the creatinine level is usually  the test that determines the eGFR percentage.  If my creatinine is raised then my kidney function reduces accordingly.  I’m surprised that you are being told your eGFR is normal but you

      have kidney failure, unless I’m missing the point here?

  • Guest
    Guest Josh301196

    Posted

    Josh

    Did they actually tell you you had renal failure or did you just see it on notes?

    If you have not been directly told then I wouldnt take much notice of what is written on the notes as this could just be an admin code etc..

    • Josh301196
      Josh301196 Guest

      Posted

      Yep they told me aswell. By several different consultants aswell. I’m very confused by them aswell! But I guess I will find out Friday. 
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