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philkev1802
philkev1802

Hi guys

I have posted on here a few times. Basically I have chronic lung disease, 28 yo, and suffer with chest infections 3/4 times a year. Iv had pneumonia twice in last 4 years, most recently April this year with sepsis pneumonia. My doc has given me a sputum pot and I'm guessing he might be testing for different stuff. As chronic lunch disease is just an umbrella. I don't want to ask my doc to check as Iv been looking online as I know docs hate the Internet. Any idea? I have a good few symptoms of the subject but I am still unsure. I cough every morning, bring stuff up, suffer with infections year in year out.

Any thoughts guys.

Cheers

Phil

Liverpool UK

0 likes, 16 replies

16 Replies

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  • debbie15945
    debbie15945 philkev1802

    Posted

    Hi Philkev

    How long have you had your lung disease ?

    Do you see a specialist or just a gp

    I was diagnosed with mine for 3 1/2 years ago

    And i have sputum tests all the time to see what bacteria I'm growing.

    Do you have bronchectisis or another lung disease? .

    • philkev1802
      philkev1802 debbie15945

      Posted

      All my life, was 6 weeks prem. 28 years. I was only ever diagnosed with chronic lung disease. Just a GP for now. How long did u have symptoms for before u was diagnosed and what were they?? No Iv never been told I have it, only chronic lung disease and asthma.
    • debbie15945
      debbie15945 philkev1802

      Posted

      I have asthma also had it for yrs.

      I got a really bad cold and cough, cough wouldnt go drs just kept saying chest infection giving me antibiotics, had the cough 12 months saw a different dr she suggested a sputum test results came back i had pseudomonas infection sent me to a specialist she did every test i could have and found i had bronchectisis

      The untreated infection damaged my lungs.

      I had a 6 week treatment of cypro antibiotics and it got rid of it but its come back and she thinks its colonized so i will never really get rid of it. I had iv antibiotics

  • gary87083
    gary87083 philkev1802

    Posted

    The key for me has been clearing.  I finally bought an inversion table, rather than hang over the bed.  The more stuff I bring up, the less often I seem to get infections.  My Doc told me of a patient that actually reads a book while hanging upside down.

    Just my experience...

  • judy09425
    judy09425 philkev1802

    Posted

    I have a respiratory doc it was found in ct scan I cough on and off all day and night I get a lot of bad chest infections I get close to pneumonia so they gave me pneumonia jab with my flu jab you need to ask for answers 
  • elizabeth49611
    elizabeth49611 philkev1802

    Posted

    Hi,

    I was diagnosed with asthma in my late 30s.  Then progressed to copd.  My lung issues were getting worse, so a CT was done to confirm that it is bronchiectasis two years ago.  Talk about miss-diagnosis.

    Bronchiectasis is due to childhood illnesses and infections.  It causes weakness of the airway walls, so it's different from copd and asthma which has to do with the inframmation of the airways.

    So you need to find out what you have. So you can receive the proper treatment.

    • philkev1802
      philkev1802 elizabeth49611

      Posted

      Wow yeah talk about miss diagnosed!!

      Didn't know it stemmed from childhood.

      I'm getting my sputum pot sent off tomorrow so let's hope something comes of it.

      Cheers

      Phil

    • debbie15945
      debbie15945 elizabeth49611

      Posted

      I never had any childhood illnesses

      I was always in really good health except for asthma which i developed in my thirties

      And i wasn't ill i was 43 when a got sick with a cold and chest infection and its been a rollercoaster since.

    • elizabeth49611
      elizabeth49611 philkev1802

      Posted

      Im 66 now, so I've been dealing with this for 27 years! 

      Im becoming more proactive about this and asking my specialist a lot of questions.  and thru this website, learning of other ways to treat this thing. 

      Keep healthy, Beth1949

    • elizabeth49611
      elizabeth49611 debbie15945

      Posted

      What have the doctoers diagnosed you with ; asthma, copd or bronchiectasis?  Or chonic bronchitic?
    • debbie15945
      debbie15945 elizabeth49611

      Posted

      I have had ashma for yrs Bronchectisis for 4 yrs diabetes for 3 and gerd for about 5 yrs

      Its the psuedomonus thats the problem

      For me im about to have my third excesabation treatment

      As my infection is back its been really good for 7 months ive had no treatment no infections but have had a cold for 2 weeks now and its back

      So now i will have i.v antibiotics for 3 weeks i have hospital in the home then i will have cipro for a few months as well as gentamiacin through a nebulizer for 3 months and hopefully it will clear it again for a while

    • philkev1802
      philkev1802 debbie15945

      Posted

      Thank you for your reply Debbie.

      Thanks for your input and I wish you well in your treatment and good health going forward after it!!!

      Phil

      Liverpool Uk

    • sylvia91360
      sylvia91360 philkev1802

      Posted

      Bronchiectasis is a permanent enlargement of bronchioles while COPD is narrowing of the airways. Treatments of the two diseases are different.
  • cofalot
    cofalot philkev1802

    Posted

    The only way you can get a difinative diagnosis is to have a ct scan.  You really need to get a referral to a respiratory consultant from your GP.  The sputum sample will just tell them what bacterium, if any, you are growing at the moment.

    I have had brochiectasis since a baby 67 years ago and my advise to you would that you have to be more proactive.  It is your right to see a consultant.  

    Good luck.

    cx

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