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Hi all I am Tiffany I am 29 years old I was diagnosed with fibrmyaglia in october. I have been in pain for a very long time. I don't sleep at night I have the worst pain in my hips shoulders knees ankles. Migraines everyday. I just am very unsure of a lot of things it hurts to do things. I cry more than I laugh anymore. I work in the health feild and it kills to do some of the work I do. My doctor hasn't really done a whole lot just put Menon symbalta and gabaphetin for pain don't really help a whole lot I am also diagnosed with server depression. I have two little boys I can't even bring myself to go outside with most days what are some things I should. Be doing or what are some things to help I was never given anything about this I am lost and be giving to be very hard to cope with things please help

1 like, 3 replies

3 Replies

  • Posted

    My heart goes out to you, I'm 48 so don't have any kids to look after, I understand how bad it must be. I can't work now, people underestimate fibromyalgia unless they suffer from it, it's one of those illnesses because you can't see it, it's hard for you to explain how bad your suffering. Good luck and hope you get some help and relief
  • Posted

    Poor you tiffany, i really feeling for you...gentle hugs from over the seas ive had fibro for 30 years..i only get flare ups now..they are just horrid..i have a few issues all the time, however ive had it long enough to know the real pain etc..doesnt last forever. .there is light at the end of the tunnel, its soo very hard when you have children..or and have to work...i can only share with you my story we are all sooo different what med works for one doesnt work for another sometimes. I taje quite a few supplements and i akwats doubke the recommended dise..i taje only Amithriptylin 25mg..at night..it blocjs the oai at the nerve end, giving me a great night sleep yoo making ut much easuer to deal with day..i was itiginally given 50mg. But i was like a zombie all day..still now after all theses years i must be woken up but once awake im fine, ive been on the same dosage for 25 yrs..some take 150mg, some take 10mg..we are all different..this med was originally prescribed for depression, but becaise it blocked pain at the nerve end from travelling to the next nerve, hence stopping oain fro all over uour bofy...but most of us on hrre have a depression...gee winder why, that really must be a help to us too. The worst thing you can do for fibro is to be STRESSED it loves stress..you really need good friends/family to surround you, that is a must, there are some really good information out there on the web for fibro, but yiu must be carefull that whoever you do research from, that they are not backed by a oarmasutical company for obvious reasons. I have 3 autoimune issues, many of us on here do too, nearly everyone of us have Chronic Fatigue Syndrome too.. i really hope you find some help , once you get your head around everything im sure you will feel brighter with it all, just keep on here you will get lots of encouragement, from people who are on the same journey, lots of empathy because we all know what your going through we have either been there or are there right now, you will get loads of help...be blessed, have a lovely day😍😍😍
  • Posted

    Hi tiffany:

    Welcome to the forum as most of us here in this section suffer with the same thing.  Your so young and yet to have these problems which I am sorry that you have.  I always thought that it strikes most older people like me which I have been suffering for years.  I have been on so many pain medications and I think this one after trying so many different ones does help take away the agonizing pain.  What I take is Percocet 10/350.  The generic is called Oxycdodone..  The 10 mg 4x/day seems to help.  Of all the other ones I tried such as Dilaudid, morphine sulfate, vicodin, and a few others did not help.  I have been on pain meds for over 30 years.  The generic Oxycodone costs though. Even the generic.  I have to pay $90 for a 30 day supply.  If insurance didn't pay for it, it would cost me over $400 a month.  Way too expensive for my blood.  How long have you been on Cymbalta?  The reason why I ask is I was on it for a few weeks, fainted, hit my head on the kitchen floor and ended up in the hospital for 3 days.  I was immediately taken off of it.  The other medication Gabapentin or Neurontin I took many years ago and suffered from extream tiredness and would blank out.  I was taken off of that as well.  You really never know how these medications can affect you.  At least your doctor tried something.  By the way is he a rheumetologist?  If not, you should make an appointment to get another evaluation and they at least know what fibromyalgia is and try to treat it.  I am not saying that a GP doesn't know this as some do but many really don't.  Also rheumetologists are more involved with these types of conditions and other autoimmune diseases.  For one thing, fibro is difficult to diagnose and still there is no cure for it.  It is a on going condition and have to treat it as best you can.  When you read other posts, you will see that many have a difficult time trying to understand the condition and do their best in helping themselves.  You just have to keep a positive feeling and communicate with others here.  Everyone is here to help you and you commenting as well is beneficial to other patients.  We learn from each other.  Just don't let it get you down and become more depressed as it does affect you not only physically but mentally as well.  I wish you the best and just keep up your strength.  I find self hypnosis works, meditation, warm water pool and event the bathtup, applying heat is beneficial.  Massage and accupuncture is another consideration.  Best of luck to you and feel better.

    mel

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