Unsure on gallbladder.. very anxious.. help

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Hello-

Not sure if anyone can relate but i need some insight.. 3 months ago i started having some toght upper quadrant pain under the breast bone that felt like muscle cramp (like if you run too hard) very excrutiating.. went to ER was ruled it was muscle pull.. saw several doctors since then who continued to say the same thing .. told me could take 12 wks to heal.. here we are 14 wks later and my symptoms have worsened.. went to ER x 2 last weekend with new GI symptoms now ..

  1. increased horrible acid reflux with burping and feeling like something is stuck in my chest with horrible what feels like esophageal spasms
  2. right upper abdominal pain that comes and goes but never goes away permanently can be burning.. dull .. sharp.. crampy its diff all the time
  3. light clay to light yellowish stool soft or diarrhea sometimeS
  4. sour taste in my mouth
  5. pain in chest
  6. pain in back
  7. itching

    I have had HIDA 58% normal.. US of gallbladder normal.. CT of abdomen normal... EGD with US is normal.. blood work x3 normal.. i have seen a general surgeon who says it all sounds like gallbldder and is willing to take it out but says he cannot guarantee anything or that i will feel better. My GI doctor advised me not to remove after EGD he says i will have diarrhea but what i am dealing with right now is causing me so much angst and anxiety .. i havent been feeling myself.. im becoming depressed and i cannot exercise or eat without reflux or feeling like im going to burp it up.. idk what to do anymore.. should im torn in if i should remove gallbladder.. i dont want worse problems.. anyone going thru this same thing???

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  • Posted

    your symptoms do sound like gallbladder problems, i had to go through an ultrasound( useless for me, it did not detect anything abnormal with my gallbladder) it found a mass in my liver ( thanks God when i went for a CT scan, it was just a calcified granuloma) endoscopy and colonoscopy, everything checked out good except a tiny little ulcer and H Pylori. My problems continued, the pain used to wake me up at night, and the frequency and pain level kept on increasing as time went by. The day of my colonoscopy when i left the clinic i was super hungry and went to an Ihop for some fatty food, that was the nail in the coffin, about two hours later the pain in my upper right quadrant started again, but this time it was extremely strong, radiating to the middle of my back like a band, it was very tough, after a few hours i could not take it anymore and told my wife to take me to the hospital, as soon as the guy did the ultrasound he told me your gallbladder is in pretty bad shape, very very swollen, he said if they gave me the option to do the surgery right away, not to think it twice, because it was so inflamed he was afraid it could rupture and then more seirous problems could arise. As soon as the surgeon saw the ultrasound findings, he gave me the option to do the surgery right away, i accepted and that same night i was getting that crap organ out of my body. next day i was already home, and for the most part i am doing very good, no more excruciating pain and my digestion has been good, even though i am not taking care of what i eat. So if they find out its your gallbladder and its giving you a lot of pain, dont think twice and get it out. Hope everything works out for you.

    • Posted

      Thank you so much .. i am happy to hear you are recovering great!! i just wish i knew 100% that it was my gallbladder before removing it.

  • Edited

    you definitely need to be sure, but the whole point of my story is that sometimes specially with ultrasounds they miss it, remember ultrasounds are highly dependent on their operator. if its the gallbladder sooner or later the pain will let you know, they say kidney stones are horrible, i have never had those , but i can tell you gallbladder pain is bad, would not wish it to anybody. keep on trying until they come out with a diagnostic, the digestive system is complicated since there are a bunch of organs involved.

  • Edited

    Yikes! I guess I am "lucky" in that my symptoms were so acute, it was hard to miss (although the ED still misdiagnosed). If the surgeon thinks that it's gallbladder and is willing to remove it, and you feel miserable, I'd definitely consider having it done. EGD wouldn't likely show gallbladder disease unless you were in the midst of an attack/inflammation/infection - which would show on labs. CT can show some GBD but frequently misses stones. Ultrasound is most sensitive for stones - but still only picks up 85% of them in symptomatic patients. AND you can have GBD without having any stones as well.

    It's odd to me that the GI doc isn't recommending it given that a laproscopic choly is one of the most frequently performed operations especially among women. Curious question - any of these docs women? I ask this because there are a number of studies that show GBD and other digestive disorders tend to present differently in women than in men, yet most of the symptoms that doctors learn about in med school and in practice are those that stem from research done primarily on men. It's not sexism per se, just that women present the same disorders differently from men because we have very different anatomies. You hear about it a lot with heart disease, but it's true with many conditions.

    I'd have it out. I had significant nerve damage and daily migraines after a car crash three years ago, and had numerous specialists tell me that I shouldn't be having the pain I was having. Finally, I used family connections to get in to see one of the top neuros in the US. He said it would be 50-50 if surgery would improve my condition since many of the damaged nerves wouldn't regenerate. I realized I couldn't have much of a life with the pain and loss of function I was living with - so I went for it. 12 week recovery, still living with chronic pain, but a million times better and no regrets.

    Risk of diarrhea post-cholecystectomy is less than 1%. Other side effects and risks are less than 7%. Risk of not getting better if you don't do it - 100%.

    Good luck!

    • Posted

      thank you for your insight, i am really not sure what to do. i am not sure if removing my gallbladder is the way to go, i have seen some horror stories on here that people's issues got worse..makes me reluctant to go for it. i am having more testing done, i am seeing another specialist in another city and he's trying to rule out some things so we will see what happens.

    • Posted

      I too am very much in two minds about my GB removal. I have also read the horror stories of people still in pain, with residual digestive issues, months, even years after cholecystectomy, and then basically abandoned by their medical practitioners, as there is nothing more they can do for them. Yes, they may be very much in the minority, but even so, it makes you think about the risks involved, and potential life-long impact. The surgeon I saw said she 'didn't believe' in PCS (Post Cholecystectomy Syndrome), even though it is actually mentioned on their NHS web site!

      At least you are getting the scans and appointments you need. I'm still waiting for my second ultrasound appointment (that my GP will be able to see the results of this time), but no letter has arrived as of yet. My symptoms have abated for now, but I had a rough week a month ago, with several nights of lost sleep and 2½ days off work. Just worried my workplace may take action against me re: sickness level if I refuse surgery, and am unable to obtain a course of Urso. I looked up the cost - it seems to be about £87 per box of 100 tablets. Doesn't seem that expensive to me. Not sure why NHS won't prescribe for me. Hell, I'll even pay for them myself, if somebody will just write the prescription.

    • Posted

      Do you have stones? low functioning gallbladder? any if your tests come back normal? i am torn because so far all my testing has been normal.

    • Posted

      Lots of small stones, apparently. I have had no tests, other than blood tests during the GB infection. So, no HIDA scan, or anything like that; just an ultrasound. As they are small, probably cholesterol-based stones, I asked to try a course of Urso, but was refused. I'm just sticking with low-fat diet for now. I'm not sure how well my GB is performing, or whether the infection damaged it in any way. I've not had any actual pain for a while now, but tend to have occasional digestive 'discomfort' some nights, usually in the early hours, depending what I have eaten, usually resulting in sleep deprivation. I had some problems a months or so ago, but sometimes I'm not sure now, whether symptoms are GB related, or just some Winter cold/gastric flu/stomach bug I would have caught anyway.

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