Posted , 3 users are following.
After discovering I had an ascending aortic swelling of 4.9 on an echocardiogram in May this year the cardiologist (The original investigation was for infrequent tachycardia and AF breathlessness - for which the echo was done) .referred me to his colleague (B) who he said was an expert on ascending aortic aneurysms.
2 months later I saw (B) and three months after that got an MRI since then I have only received a three line letter from cardiologist (B) saying it was 'encouraging news as it was stil 4.9cms'. With no follow up appointment. It seemed like a standard letter for ongoing monitoring. This is in Leeds in the UK.
I was then phoned and written to by hospital for an appointment last Friday. I naturally thought it was to do with the aneurysm which, as you will all appreciate, has been uppermost in my mind. But the appointment was with Cardiologist (A) just a routine 6 month check up!! He had no information on the MRI scan and unless I wanted to be fitted up with a heart monitor to see if I had any signs of AF he knew nothing else.
When said I had not heard back from his colleague except the three line letter and I was very worried as I have no treatment plan I was reprimanded and told that their Cardiac Unit for genetic conditions was the best place to be and they treated loads of women like me.
I feel quite upset. I will see my GP this week. It has been my GP who instigated genetic testing as I don’t have any of the other conditions that would explain the aneurysm which will take 4 months.
I don't want this to be a drama - complaints etc etc - having said that 4.9cm is big. That is the last thing I need. In my notes it was discovered that it was 4cms in 2013 but it was not recorded on computerised notes so neither GP nor I ever knew this. I think what is upsetting me most is not feeling cared for or listened to by the hospital and that is causing me some stress which can't be good.
I'd like some advice on this. What do you think I should do?
0 likes, 11 replies