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UPDATE : Dea

Posted , 5 users are following.

dea13
dea13

Hi everyone : Well I am still tapering as per my Rhuemy , but have dropped 2.5mg over 2 weeks not one week: 1st week was hell, so extended to 2. 

Yesterday I had my Simulation done to start the Raidation Treatment in 2 weeks, it has been very slow coming. It was not easy holdin that position for 3/4 hour with PMR : But all the ladies where understanding and it had to be done, and when I do start the treatment it will be just 10mins : I'm just annoyed it has taken so long, and now will run into Xmas, 5 days a week for 5 weeks: 

But I am grateful for all the Free medical we get here, the MRI, breat operation etc has not cost me at all, so I can't complain on the wait.

Thanks for all the great advice and information I get from here: I was not happy with the Rhuemy at all after waiting 3 months to see him.

0 likes, 5 replies

5 Replies

  • iellen32
    iellen32 dea13

    Posted

    First I do not havePMR, I have GCA. We have to do our tapering and a lot we have learned reading the Forums.

    As yours my Rheumy sees me every 3 months- not helpful not efficient either..

    Stay well.

    Iellen

  • EileenH
    EileenH dea13

    Posted

    Good luck with the radiotherapy - watch out for feeling tired! It doesn't happen to everyone but it can happen. 

    • dea13
      dea13 EileenH

      Posted

      Thanks EileenH , the Dr did tell me that, and I laughed smile I get so tired now after taking Preds, looks like a lot of rest and sleep for me :

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