Update, gemma.

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Hi all, just an update, I'd posted last week about having to stop leflunomide. I had my rheumatology appointment this week, so, rheumatologist was fab, she could see the amount of pain I was in and my 23 affected joints. She's putting me forward to start the anti tnf biologic called certolizumab pegol. Anyone on it or been on it? I have to self inject it every two weeks. I got a depo injection, it's bliss, already my joints are less painful. No joy with my jaw yet though, it's still locked and very painful, I still can't chew cos my teeth are not lining up properly and my back teeth don't even touch each other. Rheumatologist said the jaw prob is due to all the inflammation in my body. My jaw is really freaking me out, I'm worried about that, it's been locked for over a week now. Anyone had similar with jaw problem and been on certolizumab pegol? Anyone know what I can do about my jaw?

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  • Posted

    Hi Gemma

    delighted to hear all this! Wow- 23 affected joints! Good they have taken action to put you on a biologic. We are privileged to be eligible for them as they cost a lot but are so effective. It took a huge flare to get me put forward for one but it's made a big difference. But I am on Rituximab- not the same as yours . 

    I haven't had jaw problem, but other parts of me like feet and shoulders have improved- even ribs and top of leg sciatica pain ! Though I can't get the rheumy nurse to agree they  could be part of RA ! Who knows?!

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    • Posted

      Thanx Rowbirdie, Yeh it's good, I was always wary about the biologics but it's amazing what you'll do when you're in so much pain. Just my jaw to sort now. G. 😃
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    • Posted

      It is off putting to read all the possible side effects ......but I agree, when the pain is that bad you are just happy for anything that will work. All the best
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  • Posted

    Hi Gemma - yep, had problems with my jaw too. Try a massage. When you're in pain everything tenses up and really tight neck and shoulder muscles affect your jaw too. I've just spent 2 and 1/2 hours in the dentist's chair getting two crowns done and my jaw seized up. A half hour massage helped a lot.
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