Update on my dizziness and headaches

Posted , 5 users are following.

Hi everyone, I am completely taken back by everyone response. I went to the hospital and they done a scan which is all clear thank goodness. Now by the sounds of it I either have to have live with it or see the GP again.

Thanks again for your support and advice 🤗😘😘

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14 Replies

  • Posted

    I am sorry but I speak to so many people about vertigo which I am so grateful for......but what tests have you gone through and what doctors have you seen???
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  • Posted

    I have been dealing with this for a year now, if there is 1 thing i have learnt is one needs to accept that this is the new normal, it does get better, but there is no cure, there times in the day when my ear feels full, my vision blurrs, goes out of focus, there is pressure in my ears. I just shake it off and move on, i know it sounds crazy, but i have been to a lot of doctors they all think im normal, well what doesnt kill you makes you stronger right. 

    Good luck

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    • Posted

      Thank you for responding.....I am having a hard time acceting this as a new norm...I retired a few years ago .....and I had so many things planned....its like I cant do alot of it.......I try so hard to keep moving...but some days are really bad....have a drs appt on april 7 i believe......have to go for a blood test the end of this week....I am also getting remarried in May.......and I feel like this!!!!
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  • Posted

    Hi - there is a very good  website on facebook called MAV SUPPORT.  You will get lots of help and advice.  Ive had it now for 3 1/2 years.  You need to see a neurologist they will prescribe some meds and your life may go back to normal.  Lots of people recover from this.  Ive improved but then had a virus and its gone down hill.  Hopefully just for a short while. 

     

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    • Posted

      hi Paula thanks.....I have seen a neurologist and she put me on gabapentin...I was doing great with actually almost no withdrawals.....after going dow to one every other day  50mg a day  I have been feeling horrrible....I can almost describe it as a virus....nausea headaches....almost like a slight migrane......feel horrile...no appetite.......this thursday will be one week........dont know if its from meds or i got a little bug....I dont work.......and I really dont feel sick...........Is this possible...can I have done good up to this point????   I am seeing a headache specialist (neurologist) I was also told about two weeks ago that I have a slight vertical imbalance with my eyes.......which may be causing this.....I just want my life back...getting remarried in May.........let me go on facebook now
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    • Posted

      Hi rita - there is also vestibular migraine website on facebook too.  For full info on migraine and symptoms including dizziness etc go on the migraine .com website.  It will explain everything.
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    • Posted

      Hi Rita

      I would get off Gabapentin horrible stuff my family doctor was on it for pain and said it was the worst thing to do. Plus it is toxic to inner ears. Ototoxic look it up.

      I am still having daily issues almost 4 years! Starting vestibular rehab this week. Desperate to be normal too.

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    • Posted

      Thanks for the info. I was down to 100 mg ever other day and them Wow. Headaches dizziness. Finally called dr after 6 days. Back on 100 daily. Just started that like 3 days ago. Feel horrible today. Don't know how long this will take to get back in my system Was so excited to get off of it. Also on depakoe. 500 mg. only at night. God please let me feel better
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  • Posted

    Hi Kerr anne - you dont have to live with this.  You need to see a neurologist and he will prescribe some meds for you.  Go on Migraine .com website and you can read up about it all.  You just need to find the right one.  GPs and ENT are useless.  They have no idea.  You need a neurologist. 
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