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Update on possible fusing or ???

Posted , 6 users are following.

helen99763
helen99763

15 days ago i wrote that I feared fusing was taking place at the back of my vaginal opening or perhaps not fusing but a new LS-caused tear just behind this on the perineum.  I did get to see my gyno a few days later and she confirmed a tear, not a fusion, thankfully.  So back to the initial routine of clob daily for one week, then 3x per week then 2x per week.  The area did heal but it is in such a difficult area  - impossible to keep dry and hard not to disturb by wiping etc.  But the bleeding there has stopped and  so it must be healing slowly.  I think my gyne doctor was mildly annoyed that I didn't just start the clob routine there on my own rather than make this extra appointment.  I would have done that if I had known for sure what was happening. 

You may remember that on the previous visit in January, she had advised me to stop the clob application another area  - to give it a long rest - as she said the skin there was thinning too much.  I did stop and that area seemed to feel more normal and I saw no sign of a flare up there.  But tjos visit, I asked how much longer I should let this area 'rest' from clob and she said, "Oh you must go back now to applying the clob twice a week in all areas, and especially rub it into the new bleeding area.  you must do that to keep the LS from coming back there"

Now if I had not gone for this new visit because of bleeding, how would I have know I was to start routine all over the area again.

I find this applying, not applying, resting, applying adviced rather confusing. 

But I am so relieved that the problem was not fusing but just the LS attacking a new area.

I heard today that more gynochologists area recommending coconut oil as a lubricant for women for vaginal dryness and irritation in general - not just for LS sufferers.

Next week i go for a sigmoidoscopy to find out whether it is the LS or internal hemmoroids that area causing anal bleeding.  My GP thinks it is the LS but my Gyne Dr. thinks it is hemmoroids.  Maybe I will be told it is both.

Thanks to all who are suffering through this along with me and yet so helpful in sharing what they learned as to ways to live with and cope fairly well with it.

2 likes, 4 replies

4 Replies

  • Chrisy
    Chrisy helen99763

    Posted

    Hi Helen, Have you listened to Dr. Goldstein's webinair regarding Ls. It is an hour long but was the best hour I ever spent in relation to this condition. In it he fully explains the condition and why we treat it as we do and the best way to treat it that he has discovered with his patients. You will find a link to this in the first post pinned on this forum. It is so worth listening to. I hope you have not also got hemmoroids. They will not help your comfort. Good luck.

  • lizziewizzie
    lizziewizzie helen99763

    Posted

    hi helen

    have you tried   nels on's haemorrhoid cream? Its a homeopathic blend and highly effective. Do you have constipation? It can be a sign of food intolerances. These can come on as we age and many here ...me included have found that quitting grains (espec gluten) and dairy is key to helping.

    I'm trying to manage to drink a couple of large glasses of water first thing in the morning and through the day...except not with meals...so I don't dilute my digestive juices!

    Green drinks and eating a lot of veg also seeems to really help me

    Good luck x

    • helen99763
      helen99763 lizziewizzie

      Posted

      Thanks, lw,

       If hemorroids are the cause of the occasional soreness and bleeding from the anus, which I suspect they are, I will just have to live with that as evidently the rest of you do.  I have changed my diet so much the past year - loads of fibre, water, greens almost every day, green drinks, veggies too. I find cooked greens and fruit help more than fresh but I eat them both.  I am so tired of having to do this on and on though - it doesn't leave me time for normal activity hardly or at least it seems that way.  My GP thinks it is th LS causing the bleeding and my Gyne. thinks it is hemorroids.  I just would like to know for sure.  How often do you experience the hemorroids? 

    • helen99763
      helen99763 lizziewizzie

      Posted

      when you do have them, do you just use the Nelson's cream and they go away until you lapse in sticking to you diet routine?  I would love to be able to eat the way I used to - still very healthy food without having to consume large quantities of fibre, Metamucil, psyllium, and water and being able to enjoy a potato and bread once in a while - gluten free still causes hard movements which result in bleeding.  Thanks for sharing you thoughts.
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