Update on RA nerve pain

Posted , 7 users are following.

I now have Nuerton. I took one pill last night and boy howdy they are strong. I am supposed to take 300mg 3x a day but I don't think I will. They really can mess you up. I still have burning in my shoulders this morning but the elbow and carpel tunnel pain is almost gone. I will try 3 pills today if I don't get to messed up. It may take a while for them to start working because now I can feel numbness and tingling in my hand and fingers. If anyone else takes this, do you know if this is a temporary cure or if this is something I will have to take long term? I can't ask my dr because he went on vacation and a stand in gave me this prescription. I don't think I want to take this long term.

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  • Posted

    Yes, it truly is a harsh or strong medication, and I know of others on this for nerve pain when surgery is not an option as in RA, and after back surgeries. Did the doctor try Baclofen first?? I am on this medication at this time, in which the Dr says she does not want this to be a long term thing. Everyone I know of on neurotin is on this regularly, with some breaking the dose in half, 3x a day. Does this medication effect you psychologically in any way? That is a fear that i have about this medication.
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  • Posted

    I began this drug when my pinkie and finger next to it on both hands were numb.  I take 600 mg. every night before bed.  When I first started I had a hard time waking up in the morning and felt like I was drunk!  I didn't think it was working so I went off of it.  Big mistake!  It was working and I didn't know it until the numbness was horrible.  I have been taking it for about 2-3 months and have no issues with it.  The numbness is al it's gone.  Maybe your body will eventually adjust to it.  Good luck and keep us updated.  BTW...take at night if possible!
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    • Posted

      LOL Buckeyes, that is what I am worried about. Yesterday I thought what if this stuff really is working and I stop taking it and it's worse? OMG I can't imagine.
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  • Posted

    Stick with them, a lot of treatments take a while to work and get used to. 

    I haven't had neurotin but I take lyrica for peripheral neuropathy and muscle spasms. It took a couple of months to kick in and get used to, although every now and again I take the dose and feel really spaced out, not so bad if it happens at the weekend! 

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  • Posted

    Hi river22; yes I've been on Neurontin for years....my dose 400mgms x 2 daily....and if I don't take mine, the sharp/knife-like pains come back...so stick to it....yes it prob does take time for your body to adapt....but it will...and it will help with the pain....it is a Nerve blocker...so will do it's job..perhaps don't need to take all 300 x3 per day...just take what you feel you need, and then as your body gets used to it...then increase to the desired strength???    good luck.........Bron
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    • Posted

      yes, it's amazing I am getting adjusted. Yesterday I took the whole 3 pills . The first two I felt like I was on speed and cleaned house like a banchee. I couldn't wait to take the third pill and when I did it knocked me for a loop. I could hardly walk, couldn't read anything. It felt like my eyes were doing funny things. I am going to try the whole dose again today to see if I am adjusting to it
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  • Posted

    I'm really interested in knowing more about neurological signs in rheumatoid arthritis.

    I have been getting joint pain in my fingers, wrists and toes, plus pins and needles in my hands and feet for a few months now - plus morning stiffness that ranges from mildly annoying to virtually disabling.

    My doctor zoned in on the pins and needles, but scans have ruled out nerve entrapment in the spine.

    He's now referring me to a rheumatologist. I have started to lose some function in one hand. I can't join the thumb and pinkie, or click my fingers, and gripping anything is exhausting. None of the usual signs you'd expect with carpal syndrome though, except what looks like slight thenar atrophy.

    Meanwhile, my joint pains are persisting. My knuckles occasionally look a little red, but nothing really "angry". My big toes are the same and one has started to develop a bunion.

    More recent symptoms include a burning sensation on the soles of my feet, sharp chest pain above the right breast when breathing in (this has happened twice but went away after about half an hour each time), pain in elbows and one shoulder, muscle spasm in the neck. On the plus side, the pins and needles are less frequent.

    It's obviously troubling me because it's been going on for a while and because I'm losing hand function. But I just don't know whether a rheumatolgist is the right way to go. It seems like a lot of my symptoms are neurological.

    I can't find much reliable information about the link between these neurological symptoms and RA. Maybe actual RA patients who have neurological symptoms could shed some light?

    I don't want to have a load of expensive tests and referrals only for them to find nothing wrong.

    My bloods were taken nearly three months ago, when my symptoms were quite new. RF was "20<", crp was 4. the only abnormalities were slight anaemia and low creatinine (which i understand is okay except it can indicate muscle wastage).

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    any advice or information welcome.>

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