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Update on recent flare and house move

Posted , 12 users are following.

kay56703
kay56703

Hi everyone.

So glad to be back online after 7 weeks..but feels like a lifetime away! Flare seems under control and pred down from a high of 25mg to 16mg (first week at lower dose). However, still in some discomfort over shoulders and down arms but bearable. Have good days and bad depending on weather. Very cold and damp here in Oxfordshire at present! Probably goes for much of Britain lol.

Currently reducing 1mg per week although new gp wanted 2mg reduction and to be at 12mg by now. I said that the pain needs to settle before any further reduction should be attempted. Hence the compromise. I still feel that this is going too fast and I need time for pain to settle before reducing further. Am I being reasonable or just a wooss? By the way I have only just printed off the link to the Bristol programme for pmr, but have yet to show him suggested reduction plan advised due to internet problems. I am not due to see gp again until Mch 9th.

1 like, 52 replies

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  • teenyjeeny
    teenyjeeny kay56703

    Posted

    you are no woosse!! I have had PMR 14 years  nowI also have so many other things wrong  as I have mentioned before so I am in a lot of pain most days. But the PMR is different and when you up the pred and it goes away you know its the right dose for you and you must stay on it for a good few weeks before even thinking about going down ok. I find the docs and the rheumi want you off the preds but its ok for them they don't suffer the pain. I know steroids are bad for you and your bones kidneys etc. But I have known a lot of people on them for years and thankfully no ill affects.I cannot cope with pain I am afraid . So after this long time I work out whats best for me ,at the moment after  a long year of being ill with other things as well as PMr I am down to 10 from 25 I tried coming down a few of weeks ago   to nine then 8 and was ok till I fell down my sons stairs and broke my coxis . then the pmr went mad so back up to 10 still not right if no better by weekend will up to 11. my doc doesnt know  I just do it on my own now I find thats the best way . wishing you better . Its all well and good being brave and suffering but life is so short without being  in pain all the time just because the docs and rheumi's want us off them .
  • liz12234
    liz12234 kay56703

    Posted

    Hi all, Can someone tell me what i should be looking for on the lab report on my blood test the Dr said my level had gone up to 35 but i cant see any 35 0n the report the one i thought it was reads Plasma C reactive protein 16.4mg/L   <5.00mg/l is the one i should be looking at and is it good or bad what should it be help is="" the="" one="" i="" should="" be="" looking="" at="" and="" is="" it="" good="" or="" bad="" what="" should="" it="" be="">
    • tina-uk_cwall
      tina-uk_cwall liz12234

      Posted

      Hi Liz, sorry I can help you here, I know nothing about blood tests, hopefully tomorrow you'll receive a reply from a member with knowledge on this subject matter. All the best, christina 
    • EileenH
      EileenH liz12234

      Posted

      I'm sorry - without seeing the results and knowing what previous levels were it is difficult to say much. That CRP figure sound raised and that is an indicator of inflammation. 
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