Update on testosterone and estrogen pellet, and PRP
Posted , 5 users are following.
Hello, i had posted last year about testosterone pellets ( with a small amount of estrogen) implanted for slow release, and its impact on the LS. i promised id update you all on it. I wasn't having too much discomfort and seemed to be unfusing while it was in effect. When it wore off, it seemed to return via itching and more white skin and fusing on the lower edge of the vaginal opening especially.
My Naturopath is now doing PLATELET RICH PLASMA injections and says he's having great success. just thought I'd update you on this, as several people had questions. Now that i just got the new pellet, I will let you know what happens this time.
2 likes, 21 replies
pamela70431 pat_72618
Posted
good luck with it !
pat_72618 pamela70431
Posted
thank you!
sandra00110558 pat_72618
Posted
Pat, thank you for sharing that information! As you know, we are all always looking for treatment options that WORK with this dreaded disorder, and appreciate the sharing of what seems to get rid of the horrible itching and pain that comes with LS. Does your insurance cover some or all of this cost? Is it costly ? Do these injections hurt? Are there side effects?? THANK YOU in advance for any guidance on these questions! AND BEST OF LUCK!
pat_72618 sandra00110558
Posted
hi, insurance does not cover the pellet at this time. THE PRP is also not covered. range of charges depending on provider, but for mine the pellet is about $ 250 and covers about 3-4 months. The PRP would be about $600.
pat_72618 sandra00110558
Posted
p.s yes the injections hurt but they use local anesthesia, so for some its worse than others. the pellet wasnt bad, the PRP more awkward.
sandra00110558 pat_72618
Posted
I can imagine! thank you for answering my questions...I will be on the lookout for your updates! Again, best of luck
pat_72618 sandra00110558
Posted
thanks, Sandra! You too!
beverly52803 pat_72618
Posted
Do you mean you are having the same type of pellet implanted? If you are in the US is this covered by your insurance? Particularly the plasma injections?
I wouldn't chance estrogen pellets as just using the cream has had an effect on my breasts. My gyn said this is not common but some patients report it. There has been estrogen dependent breast cancer in my immediate family so I am particularly adverse to using it. Are you past menopause? Sorry for all the questions, but I think we need to be as specific as possible so we aren't all chasing treatments that may not be possible or appropriate for us. One year into this and I can't say I am any closer to knowing what to do about this disease and so far no doctor has offered anything but steroids. I was doing fine with a medium strength steroid...till I wasn't.
pat_72618 beverly52803
Posted
yes, post menopausal.... the pellet is mostly testosterone and only a small amount of estrogen. neither is covered by insurance. I've heard that some docs can use insurance for the hormones. side effects.... from the pellets.... sex drive! i use a shampoo that prevents hair loss but the ND said it shouldnt be a problem. my skin and moisture in my eyes is improved when i use it. My doses are relatively low.
beverly52803 pat_72618
Posted
I could most definitely use some moisture in my eyes. Not sure if it is caused by allergies, age or what. Using antihistamine and lubricating eye drops a lot. Didn't occur to me hormones would be affecting them. As topical use of the estrogen is already affecting me I would not feel comfortable about using the pellets.
Wondering if increased sex drive and LS is a good combination? Am assuming it's OK for you. Enjoy!
pat_72618 beverly52803
Posted
i just went to the eye doctor and she said that virtually anyone she has seen with LS or Lichen Planus has dry eye problems. i had tried all the eye drops and ointments, allergy pills, etc and nothing worked. As far as sex drive, just the fact that I'm interested again makes everything better.... motivates me to take care of everything health- related and not give up!
beverly52803 pat_72618
Posted
pat, did the eye dr say how to counteract the dryness other than hormones? This makes me quite concerned as the dryness can really cause a problem trying to focus while driving.
pat_72618 beverly52803
Posted
yes, first we tried the otc drops and "scrubs" each night and ointment. when that didn't take care of it after about 6 months, she put little plugs in my tear ducts and gave me a prescription eye drop called Xidra. its working much better and since i just got a new pellet last week, I'm hoping it helps even more. I too was having night vision problems and she said I had a lot of little scratches in my eyes from the constant dryness.
beverly52803 pat_72618
Posted
Thanks for the info. I know a woman slightly who has those same problems with her eyes and much of the same treatment. I think she is even getting injections and has to wear goggles much of the time. I wonder if she has LS or LP. This is all very discouraging as I cannot stand to have anything or anyone near my eyes. Having an exam is almost intolerable for me.
TexinSF pat_72618
Posted
If you don't mind me asking, what kind
of shampoo are you using and is it working well? I am losing tons of hair on my head. Thank you!
pat_72618 TexinSF
Posted
its called Revita. there is both shampoo and conditioner. i buy the large sizes to offset the cost. it seems to be workibg fairly well, but my hair isn't as thick as it used to be before menopause. but no bald spots; hairdresser thinks its good.
pat_72618 beverly52803
Posted
also, there are some ayurvedic remedies for dry eye that are very effective.... maybe check google!
TexinSF pat_72618
Posted
Thank you!
beverly52803 pat_72618
Posted
Thanks, pat, but I can barely get regular eye drops in my eyes. I would not feel comfortable letting ghee run into them if that's the remedy you meant. Not that it would be any worse than eye drops sold in drugstores that have what appears to be a form of plastic in them, but I would think the ghee would prevent clear vision for quite a while.