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Update- This never ends

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Mandie29
Mandie29

So for those of you who havent seen my previous posts my symptoms have been choking feeling and breathlessness for about a month (gone now), then heart palpitations and high heart rate, then chest pain and discomfort, then low heart rate, then burning in my stomach and shaking, and now arm weakness and hand tingling and fatigue. I don't know what to do. I had several ECGs, a chest X-ray, and lots of blood work and they found nothing. I got an echo on my heart done yesterday and never got a call about it which my doctor said is a good sign so I'm trying not to worry about that. But I'm terrified of the new symptoms with weakness and tingling. I'm scared I have MS. I don't want to go back to the doctor because I feel like they're so sick of seeing me with my random symptoms all the time. The breathlessness has gone, I still have heart palps, my HR is all over the place, no more chest discomfort/pain, stomach burning and getting shaky when hungry still there, and of course the weakness thing. I can still excercise and pick things up so its not a real weakness? But then I'm so tired and my muscles feel so exhausted all the time mostly my arms. Sometimes it hits me like a wave over my whole body. I can feel it in my head too. Like I'm too tired to continue living. I get maybe 4-5 hours of sleep at night and I wake up frequently. But I've always been a bad sleeper so idk if that's it. I've also been so worried about my heart these last few weeks that maybe I'm more exhausted and stressed than I thought? I'm so scared right now any words of advice would be nice.

0 likes, 19 replies

19 Replies

  • lisalisa67
    lisalisa67 Mandie29

    Posted

    I dont think you are the only one going to the doctors with all this at all. Its one in five people walking around with anxiety disorder of some sort. You Have every right to check out your whole body and they know that too. This disorder has a way if blowing up any symptom, especially new ones, even if they are an ailment.  I view it as a intense bully personally. Not even going to except it as part of my personality or as me over reacting because at times i have to say im not in on it. I dont want to be, i dont want feel that way and i dont want to play into it...so its a bully to me. I think we all know what we need to do, we all know to self talk it down, breathe it down, pray it down and nor fear the symptoms..and some can be some so damn weird. and it knows to flip us the bird and keep doing its thing. The real answer is not to fear it. im dealing with some eustatian tube dysfunction thing and i hear strange buzzing noises and i just would aporeciate it all went away, stopped whatever. But as this bully seems to watch and wait  it triggers anxiety attacks as if it all wasnt miserable enough. I just hope im around to see the day this is figured out so then its my turn to flip the bird at all this. There are asoects of this we can control and some we can not and only  can manage. So dont feel guilty or embarrassed you want to be checked out completely by the doctors, its your right. All the labels need to be changed because this is a horrid disorder and saying its anxiety doesnt even scratch the surface of what it can do to a person. We already that. We have to all continue on this journey. So knock iut any other alternative option. I kind believe that crosses every ine of our minds from time to time how could it not. But then those good days, and thise good moments come and all is well. i am waiting for my good moments now. 
    • Mandie29
      Mandie29 lisalisa67

      Posted

      Lisa,

      You always have the kindest most uplifting things to say! Thank you for all your kindness on this website. I know others are thankful for your presence as well. This is the worst part of anxiety. Knowing that no matter what you overcome it will throw something else at you. Just when you think you're strong enough to overcome the disorder it reminds you who's boss. I'm returning to therapy next week and hoping to maybe try some anti anxiety meds and sleeping meds to get myself back on track. I'm also going to go to urgent care tonight see what they say about it. Btw I had an ear issue a while back myself. Ringing in one ear at a time randomly throughout the day and then buzzing when I would lay down at night. It was horribly annoying and scary but turned out to be a side effect of my wisdom teeth growing in sideways. I've heard though that the buzzing and ringing isn't really dangerous just annoying so I hope that is relieved for you asap! Not a fun symptom at all and def exacerbated by anxiety. Thanks again Lisa for lifting my spirits as always.

  • Aquin
    Aquin Mandie29

    Posted

    Hi Mandie,

    Did you get checked for mono? (also called glandular fever depending what country you're in). Your symptoms could definitely be anxiety related but just wanted to say that i have experienced all of those symptoms since being diagnosed with this virus. I never had typical symptoms of sore throat etc. Just something to keep in mind. You'd be surprised at how many people get really strange symptoms for this virus.

    • Mandie29
      Mandie29 Aquin

      Posted

      Oh ok thanks. What symptoms did you have if you don't mind

    • Aquin
      Aquin Mandie29

      Posted

      My first symptoms were IBS, limb weakness (which scared the crap out of me), a feeling of off-balance, general weakness on and off and a constant feeling of malaise or something not quite being right, then the tingling and goosebumps feelings started and i would get them on my legs and sometimes on my arms and scalp. It's crazy how common these symptoms are with viruses but they're not well known.

    • Aquin
      Aquin

      Posted

      Oh also brain fog and feeling distant/disconnected from reality, and of course bad anxiety.
    • Mandie29
      Mandie29 Aquin

      Posted

      I have all that too. Obviously the symptoms could be a lot of things but I won't rule virus out. Thanks a lot

    • Aquin
      Aquin

      Posted

      Another common symptoms is breathlessness by the way. The ehealth website has a helpful mononucleosis forum where people talk about breathlessness. Also with the burning pain in your stomach, whereabouts would you say it's located? Your spleen is located under your left rib and often causes pain during mono .

    • Mandie29
      Mandie29 Aquin

      Posted

      I'll look into that! It's my whole stomach really and then my chest on the left side. Hard to pinpoint it really.

    • Aquin
      Aquin Mandie29

      Posted

      Good luck with it all. I hope you find some answers!
    • lisalisa67
      lisalisa67 Aquin

      Posted

      You aquin are on to something. There is a huge theory out there that anxiety disorders can stem from the epstein barr virus even if they do not have the proof of the blood work to proove it. That would be sciences fault. When its very active like mono yes its easy to proove..but afterr the active part of it can buries into to you and the tests arent accurate anymore. It disguises itself. A nuero opthamologist explained this to me and blamed my optic nerve pallor on that theory that even after i recivered whether i knew i had it or not it can worm its way deeper and into any part of the body. It how to actually destroy it permanently theres a book coming out on this i believe in october or November..foods to kill the epstein barr virus. Everyone on here should look into foods or suppliments.,and such for that. Wouldnt that be a kick in butt for us all. Its still just theories. but many doctors do mention this..in the specialty areas. 
    • Aquin
      Aquin lisalisa67

      Posted

      Yes exactly! I've been through hell with this virus and i don't put that lightly. It's been the worst time of my life. I think EBV causes so much illness in this world but it can be hard to detect because 95% of adults have antibodies.

      In the US they check your titers though, and most doctors will happily diagnose EBV infection if your titers are over a certain amount. I'm from Australia and we don't do it that way here, but my IGM IGG and IGA are all positive which indicates current of very recent infection. I think if all of your blood work is normal except for EBV then it's safe to say it's the virus causing your problems. I feel so sorry for all of the people out there experiencing horrible but invisible symptoms and just being brushed off by doctors as having anxiety or depression. These symptoms are real and debilitating!

      Sorry for hijacking your thread Mandie. If i can help anyone by getting to the bottom of their anxiety and health issues i'd be so happy! 

    • lisalisa67
      lisalisa67 Aquin

      Posted

      I think its hijacked. But informational. Do you want me to send you the names of the book..and the new one coming out. I have asked some soecialists how to kill it they dont know. where i live they do mention it. It would be how to kill it..still theories. Do you want me to send you thru pm the info. On the book im talking about and the new one to come out. Its frustrating for sure and if it ever oans out to be true still will frustrating.
    • Mandie29
      Mandie29 Aquin

      Posted

      No need to apologize! I learn a lot from people on this site. New ideas new coping techniques new angles to explore with my doctor. It's also great to hear from people who are going through the same thing. So thanks

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