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Quick recap, I had achalasia and dysphagia for many years. Finally diagnosed with an esophageal Leiomyoma which is a nonmalignant tumor. My symptoms are tolerable but my Gastroenterologist was pushing me to surgery which was scheduled. The surgeon wanted my GI to do another endoscopy with deep needle biopsy which again I was reluctant to do but wanted the endoscopy to see if the tumor has grown.
My GI told me the tumor has not changed changed since the last one in 2014.
After the biopsy I thought I would die. I had severe painful spasms every minute (I timed them) even two a minute and cried and cried. I called the on-call Dr who said it was probably acid and to take antacids which really didn't help. I slept the whole next day. The spasms slowly subsided over the next few days.
GI called me with results of the biopsy and said it was "nonspecific" and that since the tumor hasn't changed I should discuss with surgeon holding off. I cancelled my surgery but did not speak to the surgeon.
I was able to get my Cytology report on line since hospital has an ap for patients to keep track of everything. THE CYTOLOGY REPORT SAID NOT ENOUGH MATERIAL TO TEST. So my GI lied to me and that explains why I was in such pain. He tried to get the biopsy the surgeon wanted.
So now I have more heartburn then ever. Trying Prilosec which doesn't help much. Tums do help.
Anyway I am taking a break although I still have some syptoms but can live with them for now. What scares me the most is waking up feeling like I will choke so sleep with extra pillows. Stopped eating late at night.
When I am ready I will change Gastroenterolgosits and get another opinion. Thoughts?
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