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I havn't posted for awhile but wanted to update everyone with how im doing and new info I have. So I believe my LS was from birth. I had what the drs thought as constant thrush at about 5-6years old that settled down after a few years. But it peaked again at about 19-20.
I was in a bad way with it, again I assumed thrush and just kept slapping thrush cream on. Of course this didnt help and my skin came off. Something I havn't shared before.
It took parts of my skin coming off to make me go to a dr as i was embarrased.
Crazy huh. I was lucky my g.p sent me off to a specialist now age 21 and moved to London. I was diagonised with LS in my late 21's.
I do feel I have been lucky to get my LS confirmed at this age and also to have such amazing support from my drs. I can not recommend the team at Kings College London in Dermotologie. I see Sarah Walsh but also Candice McDonald who is from sexual health background.
Candice lets me email her whenever I want. I emailed her only last week as I found a unknown bump she got me in on Monday. Its this level of care I want every LS woman to have.
Some things I found out in my last few months I thought my LS was back earlier in the year. I actually had gential warts. Most people are infected with them, but our steriod cream makes them come out with prolonged used. So ladies if you notice any odd white patchs appear get it looked at. We tried a treatment as the LS would make the normal injection not a good option. We went for a cream. It cleared them in two treatments.
I was scared as the cream kicks your auto immune system in to clear the warts faster than your body does. All fine. Again Candice was there to support me, answer any dumb questions I had.
Talking to her on monday with my lump check up ( im all fine yay!) It seems new LS research shows woman have two big peaks of LS. At the momemt its not know why. But too me that makes me feel better.
My LS has been under control for about 5 years. It took a lot of work. I was even considering surgery but I was patient and put the leg work in.
I just wanted to say it can and does get better.
She also said in the LS clinic the ladies who do the best are the ones who moistorise everyday after the toilet. I agree with this. Specially if your struggling with sex. That helped me a lot with massage too.
If anyone wants to ask me anything please do.
I just wanted to let everyone know the new things I found out.
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