Ureteroscopy

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 I have a 5mm kidney stonein the lower lobe of my kidney that is not showing up on an ultra sound or a KUB xray, so they can't do lithotripsy. In 2 days, I will be having a ureteroscopy?. I've been to the ER twice because of stomach pain and that's where they discovered the stone on 2 CAT scans. I've been having anxiety attacks. They told me the stomach pain was unrelated to the stones. I was also having flank pain and upper back pain. I've had an upper GI series, ultrasounds and xrays plus the 2 CAT scans and they can't find a reason for the stomach pain. I'm so nervous and stressed about the ureteroscopy. I would appreciate any words of advice. 

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  • Posted

    Hi Lori, 

    Sounds familiar. I too have been told that the multiple stones in the kidneys would not cause me pain. This is untrue. Someone on this site had posted a study to prove this theory wrong. I wish I could find it. Anyway good luck with the ureteroscopy. 

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    • Posted

      Thank you Donna. I haven't had any stomach pain since discovering the kidney stone on the first CAT scan. I now have occasional flank pain and still have occasional upper back pain by my shoulder blade. I guess I'll find out tomorrow after the ureteroscopy if the pain goes away.

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  • Posted

    I posted the study about a month or so ago. I will have to see if I can dig it up.

    I just had uretorscopy in October. It was about an hour or so long procedure, but mine was also in the lower pole and in a tight nook. He struggled to get it out, but fortunately he managed. You are going to wake up with a stent and it's going to be the most unpleasant part of this process. Make sure you are given a script for an anti-spasmodic (urabel/uramit), a ureter dilater (flomax or something like it) and a good pain pill (they always give me Norco/hydrocodone). Get the Urabel and flomax in your system as soon as possible and take the next doses as soon as it is safe to take them. If you keep on a consistent dosing cycle, the discomfort from the stent will be tolerable. I've had two stents in the past few years and while immediately upon waking from the procedure, I'm miserable...I get those drugs in me as quickly as possible (Urabel takes a bit to get to a therapeutic level) and a few hours after I'm almost back to normal. Also, make sure you get the stent out as quickly as possible. Some doctors seem to not mind leaving us with them for months. I had my first for about two weeks. The second one I had for I think three or four days (I made them squeeze me in). It said on my discharge notes to come in for stent removal on a specific date and the people at the urologists front desk tried to push me back. I insisted that I was to follow the discharge notes and made it happen. I've found you have to be pushy about your care or they will treat you at their convenience.

    Now as far as your stomach pain... definitely could be the kidney stone. I had mild to severe pain in all the areas you described. Sometimes I was bed-ridden from it. I was convinced something serious like cancer was growing inside me. I had an entire gynecological work-up (including vaginal ultrasound), was told I might consider seeing a GI doctor since they could find nothing. Saw the GI doctor and shortly after, underwent a colonoscopy and an upper endoscopy. Nothing. GI doctor decided to send me in for a barium x-ray and a CT scan with dye because she thought it could be a joint/hip problem. And there it was, a 1 cm stone. Referred to a urologist. I was lucky that he did not question whether the stone was causing the pain...he knew it was. Started me on hydrocodone and it gave me immediate relief. Once the stone was removed, all the pain went away (stomach, back, flank, pelvic). One stone was causing me that much pain, it was unreal. Now I know there is a stone in my left kidney when those pains come back. Oddly, I'm unsymptomatic with my right kidney. Had no idea it had stones until I was in the ER passing them. I've now had two procedures (shockwave lithotripsy and uretorscopy with laser lithotripsy) and passed six 4mm stones on my own. I go back this month to see if I've grown anymore stones.

    I have a panic disorder, but have been able to get through all this without losing it. I'm getting used to this being an annual problem. I'm trying a few different things in hopes of preventing future stones. I know it's scary where you are with this right now, but be proactive with your treatment and you will be fine. In my experience, the stent is the worst part, but even it is manageable. It sucks, but it's going to be okay!

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    • Posted

      Thank you Luna Sea. I was told I would have the stent in for about a week. After the 2nd visit to the ER they gave me Flomax and it made me dizzy and nauseous. The 2 doctors I saw in the first practice were horrible, didn't let me ask questions, kept me waiting, etc. I refused to go back to them. Got a new urologist who was wonderful. Took the time to explain everything to me, gave me options, he even drew me a picture to explain where exactly the stone was located. I asked about the Flomax and he said it was up to me to keep taking it, I chose to stop only because I felt it wasn't helping much. If they do prescribe it to me tomorrow and it will help with the uncomfortableness and/or pain I will take it again. 

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  • Posted

    I had the same problem with my first urologist. While he took care of my first kidney stone and believed in my pain, he still ran a cattle call operation and it felt like all my treatments were designed to maximize profit on his end. He didn't let me ask questions, rushed our appointments without me getting a word in. He had me unnecessarily put under sedation to remove my stent when it's actually a simple outpatient procedure that took a few minutes. So I also changed urologists and love my current one. He talks to me, explains things and also drew me pictures lol. And most importantly ran the tests needed to figure out why I'm making stones. The other urologist gave me no info, probably so I would come back and spend more thousands of dollars.

    Flomax isn't the only dilator available. I'm looking in my cache of leftover meds and I think tamsulosin hcl is an alternative to flomax. I've also taking another kind that starts with a V...can't find the bottle though. Maybe you can use an alternative that doesn't make you nauseous?

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  • Posted

    Okay I looked it up. Tamsulosin is flomax (flomax is the brand name). But some alternatives to flomax include: alfuzosin, nifedipine, doxazosin and terazosin. Maybe one of those will be more agreeable to your system? I've used nifedipine before with no problems, but flomax also doesn't bother me.

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    • Posted

      Thank you for all your help. I will try to remember to ask about the alternatives tomorrow. I am on Accuretic for high blood pressure so I make sure to check the interactions. I can’t wait for this to be over & I can finally calm down. 

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  • Posted

    Thank you to all who responded. I was so nervous this morning, but everything went well. They got the stone out! I even asked the dr 3 Times to make sure. Lol

    The stent is in but will be removed Friday. I have some discomfort in my flank area. A little burning when I pee but they gave me a prescription for that and for antibiotics. I am so relieved now. Sending good thoughts and prayers to everyone. I hope everyone feels better. 

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