Urethral opening no longer visible?!
Posted , 10 users are following.
Hello, I am new to the group. I have not received a formal diagnosis, but have been informally diagnosed by a family doctor and have appointment with a gynecologist tomorrow. My clitoris is complete fused closed and I am rapidly losing my labia minor on one side. My question is this - where I used to clearly see my clitoris, the urethral opening just below it, and the vaginal opening, my urethra (pee hole) has now vanished. I suspect maybe it has been fused over? On further inspection I discovered that my urethral opening has moved or been pushed into the cavity of my vagina, so I am in effect peeing out my vaginal opening. If anyone else has experienced this please help.
0 likes, 8 replies
donna60875 laurie99738
Posted
hi sorry to hear this im the same and fused in the same area it happened so fast when i pee it sort off sprays as its closeing the area i use the cob on my worst days
i have tried to massage it in pulling slightly at the fused area to losen the fuseing it hurts when i do this!
but it seems to make a slight inprovement i know in really bad cases you have to have a operation to open it but hopefully i can get away from that by the masage also use caster oil this helps
marnie91241 donna60875
Posted
Hello to you both! I would like to encourage you both to try soaking in water with borax added. It's very soothing to the area and also has helped some ladies I hear of, un-fuse and re-plump the area. We have a group on fb called healing through borax. check it out. ☺
Bridge_of_Sighs laurie99738
Posted
Hi Laurie, I have a similar thing, I'm using a dilute borax spray after every toilet visit and that is very gradually unfusing bits around the edges. Look up 'An Experiment with Borax' in this forum - I think it might be pinned to the top. If not a quick google search will find it. I now have quite a clear seam which has appeared on the fused bit since I started using the spray (there was no sign of it before), and am hoping that eventually it will open. It has taken a very long time (over a year), but something is clearly happening, in a positive way. I also use dilators, I got mine on prescription (I am in the UK), but you can get them online - even on Amazon. They were a big help. There are five in my pack and I started on the middle one. I am now using the largest and if I use it 3x week (it only takes a minute or two) I stay open. I put it in and out in about 30 seconds (if I leave it in for 5 mins I get a UTI - I must have a very sensitive bladder). Sometimes there's a little tear which I put Manuka honey on and then make sure I wash or use borax after very pee.
Before the dilators, my pee hole was completely hidden, now it's quite clear and I can pee normally again. Don't rush it though, use the dilators to stretch, not tear. My motivation was an upcoming smear test, which wasn't painful at all in the end.
Good luck
Bridge
laurie99738 Bridge_of_Sighs
Posted
when you say your pee hole was hidden, was it sort of inside your vagina? i feel like the fusion has covered and pushed mine downwards. did it get in the way using the dilator?
Lodge laurie99738
Posted
Yes mine feels like it is more inside the vagina than where it used to be. Keep feeling pressure and fullness which makes me want to go more often. I am just hoping that it doesn't prolapse:(
It's all very scary and uncomfortable.
Over the past three weeks I have been treated with antibiotics for a UTI and provided about four samples, but now they don't think it was a UTI. Haven't actually been able to see a GP, just a brief phone call.
I asked for an appointment because it is uncomfortable, plus I have been feeling constantly sick for the past week, but have to wait until 27th November:(
Getting to see a doctor in our area is a complete joke.
Lodge laurie99738
Posted
I think this may be what has happened to me. It sounds totally ignorant, but I can't even remember where my pee hole is meant to be:( It now looks like it is inside the opening to the vagina - is that the wrong place? (Will have to look up some pictures on Google).
For the past three weeks I have been having bad pain which GP thought was a UTI and I had a course of antibiotics, but the awful burning sensation just inside the vagina won't stop. I have to go back with yet another urine sample tomorrow.
If it isn't a UTI then I simply don't know what is causing the pain - feels like period cramps in my abdomen and have felt constantly sick for the past five days.
When I was talking to the duty doctor this evening she said that it is quite common to have traces of blood in your urine if you suffer from LS, I wonder why this is.
Anyway it is all absolutely awful - in my case no sex for over four years because it is so painful, lucky I have an understanding OH.
If only they could come up with a cure for this horrible disease.
alison066 laurie99738
Posted
Hi I am in the uk Gp gave my diagnosis about 6 /7 yrs ago i have lost my labia and clitoris not i can see my pee hole starting to fuse I am so scared I hear people say about borax but what is this and is it available in the uk ? Is there anything that will help I am symptom free mostly just a bit sore today and using clob and coconut oil.
Bridge_of_Sighs laurie99738
Posted
Hi Laurie
I can understand that you are worried. I can't give medical advice obviously, but I can say what I have done. My vagina was fusing closed from the clitoris down and it covered my pee hole. I have been using dilators which gradually opened things up again. They are available on prescription (I rang up to buy some and they told me to get my doctor to check because they supplied them for prescription too), or amazon.
Borax has helped me. I ordered it on Ebay - 20 Mule Team, the one the American women on here use. It arrived fine, though it's always a risk it'll get stopped. Some soap making companies in the UK supply it too, it's a standard ingredient in cosmetics. It's really important that you don't use Boron or Borax substitute - they are entirely different substances. To start you could try using Bicarbonate of Soda (NOT baking powder) it has a similar effect, though not as strong. It made me feel uncomfortable, like I needed to wee all the time, but no one else has had that so it must just be me. Each of us has different reactions to things. If you go to the thread 'An Experiment with Borax' there are lots of discussions oh how to use it. Personally, what I've found suits me, is the tip of a teaspoon (no more than a small pinch) in a 100ml spray bottle - the sort you get in the travel section of any pharmacy or large supermarket, topped up with water, and I spray after every toilet visit. If I feel a bit sore, it's too strong and I pour half the water out and top it up.
Where in the country are you? A support group is starting in Bristol if you are anywhere near.