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urethral stricture

Posted , 32 users are following.

s
s

hi

i am a 59 year old woman suffering from urethral stricture, are there any women that have suffered from this. i would be interested to hear their story. it seems to be all men that are posting on this forum. i know it is very uncommon in women about 2 cases per 600,000.

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  • sarafurn
    sarafurn s

    Posted

    Hi again,

    having urtheoplasty this week under Tamsin greenwell have any women had it done? Would really grateful to hear your stories.

    sarah 

  • jennifer4ley
    jennifer4ley s

    Posted

    Hi there, I am sorry to hear that many of you are experiencing problems .I am a 24 year old female , and I was diagnosed after 2 years (while trying to attempt a cystoscopy) with a urethral stricture November 2017, since then i had 3 surgeries one in November 2017, then in November 2018 and this june 2018 , I had the dilation again. I have the same symptoms as many of you, the urge to urinate with only dribbles coming out it was so bad in june, I stopped urinating completely ,and then i had a catheter for 6 weeks before my dilatation again, and then i had the catheter in 3 weeks after ,during this time i also contacted mrsa in my bladder , thankfully it has now cleared up again . I also have a bulge in my bladder . Every time i get this stricture I get a burning sensation in my kidney ,the only way to describe it is that it feels as if my kidney is filled with a bucket of ice , for example if you hold ice cubes in your hand and they start to burn and stick to your skin (my apologies for the poor description) .i have had many tests done , a voiding cystogtam , to check if i may have renal colic , which came back clear, apart from not completely voiding, a ct scan and that also came back clear , an mri , which came back clear, and lots of blood work and urine samples , I also had an sti check which was clear. It is now just the end of august and Iam begining to get symptopatic again. While urinating frequently is annoying the burning sensation is very painful , even after taking oxynorm I can still feel the pain. I feel like the consultant may be missing something because i have no answer to this , I was wondering if any of you, may experience this sensation also? I would be so so grateful if any of you may have any information, or have experienced something similar to this. I would also like to ask if any of you would recommend uroplasty ,as it is happening so frequently and my consultant believes that this isnt a solution for me right now as there has been many failed attempts , and feels that i may end up worse. He also does not think that a stent would be a solution either.Thank you so much for taking the time to read my post.
    • deb2722
      deb2722 jennifer4ley

      Posted

      I do sympathise - I have a stricture and have had umpteen dilations to deal with it.  I am meant to self catheterise every  week to keep it open, but this just leads to infections which make me scared to do it, so I'm back to dilations again.  I am very interested in the uroplasty route - it hasn't been suggested to me, but would like to hear from others that have gone that way.  Very best of luck x

    • jennifer4ley
      jennifer4ley deb2722

      Posted

      Thank you for your reply, im so sorry for your troubles! It sounds very stressful .i have not tried self catherising yet as honestly i am afraid to try, may i ask you how long the dilatation works for you? As i have just had one done in june and now am experiencing pain again. And if you get flank pain when you are symptomatic? I would also like to know more information , as I am from ireland and the health system isnt great here.Thank you so much and i wish you the best of luck x
    • jennifer4ley
      jennifer4ley

      Posted

      Also on other threads i have seen someone recommending bee pollen? Have you ever heard of this? Thank you smile
    • deb2722
      deb2722 jennifer4ley

      Posted

      Keeping up with the self catheterisation does make it longer between dilations.  Without, it varied from a few months to more than a year.  For me it isn't so much pain as becoming really difficult to get much urine out at a time, and eventually becoming unable to pass urine at all.  I think the whole urethral stricture thing is an area that doesn't attract much research, as there seems to be no other options than the dilation and catheterising.  I have heard of uroplasty, but no doctors have seriously suggested it.  Take care x

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