Urethral stricture - my experience
Posted , 9 users are following.
About a month ago I was due to have an optical urethrotomy, prior to which I visited this site looking to gain an insight into what I could expect. I was very grateful to other people for having taken the time to share their experiences although most of them seemed to be tales of woe. For this reason I decided to tell about my own story which, so far at least, is going well.
For some years I have had a poor urine flow which, following examination by my GP was diagnosed as an enlarged prostate. I took the prescribed Tamsulosin which made no difference. As the symptoms gradually deteriorated, I was referred to the Royal Berks Hospital for prostate surgery. The consultant thought that my prostate was not too big after all and decided to use a camera to look at my urethra in order to confirm there was "nothing else going on". Bingo.... a urethral stricture in the bulbar region of my penis.
So I underwent the procedure and was supposed to remain in hospital for at least one night but, due to a lack of beds, was discharged the same day. A catheter had been fitted during surgery and I was given instruction in how to empty it, fit the night bag and to change the bag for a new one. The plan was to return to hospital after a week to have the catheter removed following which, if I could pee properly, I would have a 50% chance of being a free man. Everything went well, but what I didn't expect was to then have to self dilate for four months before seeing the urologist again for a progress report. That was a shock; naive of me I suppose.
The self dilation was daily for a week, then every other day for a month, then twice weekly for three months, then a follow up with the consultant. I am now nearing the end of the first month and soon will be dilating twice weekly. I can't deny that this process is difficult for me although not painful at all. The hardest thing to deal with is what is going on in your head. It's just not right to have to insert 3/4 of a 40 cm long tube into your bladder via your penis. However, I've managed so far and although I have to do this again in about an hour and am beginning to worry already, I will continue to manage.
The upside is that I can pee normally. I had forgotten what that was like and I'm amazed every time I have to go. Hopefully this will continue and I can lead a more normal life.
A huge shout out to the NHS staff at The Royal Berkshire Hospital in Reading. They are doing an amazing job under very difficult circumstances and I am extremely grateful.
Hopefully this account of my experience is a help to others. I will update as necessary.
0 likes, 30 replies
Franpanman hobnob1871
Posted
Hi, What do you think was the reason you got the stricture?
hobnob1871 Franpanman
Posted
No reason that I can think of. I was told that this can occur following an impact of some sort, a urology investigation or surgery or, as in my case, for no apparent reason at all.
Kellc1 hobnob1871
Posted
hobnob, happy to hear of your success. My stricture was located further up, in what we jokingly refer to as the "tween" area. this was nit a fun surgery, or recovery process. However, being able to pee is such a treat! I literally empty my bladder completely in about 10 seconds every time. No more peeing on my shoes. LOL Sex is much better as well.
Believe my stricture was caused by a bicycle accident when i was 10 yrs old. Over time it simply grew closed. Dont think I have urinated normally since around highschool. I am now 61.
congratulations
carlo86905 hobnob1871
Posted
ei mate, glad The Royal Berkshire Hospital did a good job, and that you are feeling better. Both tamsulosin and self dilation are by far the worst treatments, as for horrible side effects and recurrence of symptoms, especially with sd. How are your strictures at the moment? did doctors gave you the option of bulbar urethroplasty ? I will soon undergo a two-stage penile buccal mucosa urethroplasty, had LS pretty much demolishing 2cm of my urethra tube. Last year went through already a few cystoscopies and useless sd....
hobnob1871 carlo86905
Posted
In the last few weeks I have found dilation slightly more difficult although I'm still peeing perfectly. I have a follow up appointment next month, so will find out what happens next.
No, I wasn't offered urethroplasty but I guess that may be the next option if the stricture recurs.
osakadan hobnob1871
Posted
Thanks for posting your experience!
You are right about the mental component of catheterizing. It did my head in. I did it for a year and it does a job on you. Alters who you think you are. I wish I had talked about it more. It caused problems in my relationship etc. And as much as my partner wanted to talk I couldn't.
hobnob1871 osakadan
Posted
Sorry to hear that Osakadan. I think it helps to talk about anything that worries you. A problem shared etc.
symno56454 hobnob1871
Posted
hey buddy . how is your stricture now
hobnob1871 symno56454
Posted
Did the final catheter yesterday, having reduced the size to 16ml a month ago. Everything is still fine, but I guess the next few weeks will be telling. The consultant tells me the stricture was so big that the chances of success are dubious and so the next option would be urethroplasty. We will see...
symno56454 hobnob1871
Posted
when did you start the dilatation . how long was the catheter inserted
carlo86905 hobnob1871
Posted
any info you need regarding Urethroplasty, let me know, just had 1st stage reconstruction 3 weeks ago due to LS destroying a big part of my urethra. It all comes down to the recurrence threat factor of your own strictures, and the Urologist should be able to assess the recurrence threat levels. My reconstruction urologist told me clearly due to high risk occurrence I had to go for the procedure that protects you the best vs recurrence of strictures Urethroplasty
hobnob1871 symno56454
Posted
About five months ago. I haven't measured it, but around 30 cms.
josh1738 carlo86905
Posted
@carlo86905 I just had 1st Stage Buccal Mucosa Urethroplasty 8 days ago and still have both catheters in for 2 more weeks. How is everything going for you the last few year since you’ve had this? hopefully no recurrence!
carlo86905 josh1738
Edited
Will you proceed to 2nd stage?, a few days ago was precisely 2ys from 1st recon bmg, but have decided not to proceed with second stage for quite a long list of reasons and risks factors. Fistula damage, with any kind of recurrence all procedures are much more complex, in my case I have LS and had urethral strictures, so if post a potential 2nd stage closing urethroplasty i m pretty much FU...lol, The 2 ys mark is very important both for urethral strictures and LS, beyond this time mark, come backs become more rare...How s the pain now ?
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Happyhacker hobnob1871
Posted
How do you use the self inserted catheter? Like do you need a bag and leave it there? I am going in to have the urethra stricture (after TURP) cut. Thanks.