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I am in the process of researching possible steps to take to help me and others get a better understanding of Urethral Strictures. I know there is a lot of information out there, but nothing is better than getting feed back from people who share the same issues. Ill give a bit of background of myself to help understand what it is I exactly have.
I am a 30 year old Male who has been dealing with urethral strictures my whole life. I am blessed in the sense that I am able to pass urine on my own, but with slight discomfort, and higher frequency. My symptoms include: Slight pain/sting while urinating, sense of having to go often, UTI at least once a year, and what feels like a small bladder.
Up until last year, I would ignore it. Some days were better than others, and I was able to get by. Last year my UTI was pretty intense, and I was unable to pass urine. It was down to a dribble, and this caused severe pain. UTI had passed and I was able to urinate.
Fast forward to last month. I decided to be proactive about my issue, and speak to a specialist, at the urology office I frequented. I met with a specialist in Urethral Strictures. Upon his investigation, he found that I had a stricture from almost the tip, to about 2-3 inches in the penis. He ofc requested we do a cystoscopy from the bladder in, because nothing was going to be able to pass thru the tip. He also told me I have a case of Lichen Sclerosis. A condition that doesn't have a cure, but there are ways to relieve symptoms.
He set me up for surgery to see if we could Dialate the stricture, and so He could proceed with the cystoscopy. When I arrived he decided to change the procedure and install a SP catheter. I was totally taken by surprise as I didnt even know what a SP catheter was. I proceeded to continue thinking this was the correct step.
I woke up and realized I had a tube coming out of me, and informed I was no longer going to urinate the normal way. Instead I would use a bag, and hose. I was in shock but motivated. That motivation didnt last long, as i was stuck on my couch. I felt helpless, and couldnt move. I am an active guy, so for me to be on bed rest, is absolutely unbearable. I figured I would give this a chance anyways. 3 days later, I was in severe pain, and felt my bladder was full. I tried to urinate, and even drank plenty of fluid, hoping the pain would pass. Finally I had enough, and went to the ER. I was informed that my bladder was emptying but I was experiencing severe spasms. The ER doctor asked If I was able to urinate myself, and I said I was. He decided to remove the SP because of the pain. I was immediately releaved and thankful. Just 10 hours after I was myself again.
I want to ask members if they have similar conditions and what they did to help. I know that a complete cure is not available but what can I do to help the symptoms. I have heard of dilation, steroids, and surgery.
Thanks for the support!
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