Urge to pee all the time after Cystitis!

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Im a 23 year old female and i have the constant urge to pee. Its been going on for 2 months. This all started when my boyfriend was touching me and put his fingers in the wrong hole and then immediately in my vagina. Which is big no no obviously but we were both drinking and got lost in the moment. He fingered me for a long time and i told him to stop after i felt something burning really bad which i now know it was my urethra i think is called? It felt like too much fiction and stinging.

After that we had unprotected sex . I didn't have any discomfort til 2 days later when I woke up and my bladder was super painful and felt like it was going to explode. I went to the restroom and I peed blood and it burned horribly. Went to the doctor got tested for stds and uti. No stds but positive for uti. They gave me doxycycline hyclate she said it was just in case I had bv or std? But It would also help uti apparently. I've never had a infection like this.It was 7 pills once a day. It helped a bit but still felt pain and urgency to pee. I came back did another test still had uti. They gave me Sulfamethoxazole / Trimethoprim once a day for 14 days after this I didn't have pain peeing but the urge didn't go away. I then went to the gyno told her I had urge to pee. She checked me she said no uti but I had blood in my urine. she ended up sending my urine to get checked and told me shed get back to me in a couple days to tell me the results. Gave me nitrofurantoin twice a day just in case. Got results no uti but I have bv.

Got metronidazole twice a day, was told not to take the antibiotic anymore. I'm down to the last 3 pills for bv and I still have the horrible urge to pee all the time. I use the bathroom all day sometimes I pee a lot and then sometimes I dont. The urge goes away a bit after I use the restroom but quickly comes back. I got d-mannose and crannberry pills, i also got probiotics bc I heard it might help but I don't know the urge does not go away sad does anyone have any idea what this could be? After the meds im going back to get checked but any help is greatly appreciated.

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  • Posted

    Hi SailorVee, I am not sure what is going on but at this stage I think it’s important that you be seen by a specialist...a urologist. I suppose you might have gotten an infection but after all of the meds it should have gone away. Also, you don’t want to be taking lots of antibiotics so it’s good that you are using probiotics. Make sure you are taking a 50 billion strain and take them every day. In addition, make sure you are drinking lots of water, filtered or spring. At least 8 full glasses...more if you can. I just think a urologist might be able to get to the source of your problem, at this point. I have IC and when I was diagnosed last year the doc gave me a list of foods to avoid. Now, I’m not sure that this is what you have but it certainly couldn’t hurt for you to give it a try. Go online and look up foods to avoid with interstitial cystitis. The idea is that acidic foods can bring on a flare. When I have a flare it is very painful in the bladder area and can sort of wrap around to the lower back area. When the flare is bad it can be painful or spasmodic going to the bathroom as well as just afterward. I have been having a bit of a better time managing this and I feel it is due in large part to changing my diet. Avoid acidic foods and keep the system with a good ph balance, more alkaline. Just to give you some idea, some foods to avoid are citrus, anything with caffeine (but I still have my coffee cause I’m stubborn like that). In addition, things like wine are bad (unless it is a sulfate free wine or organic). In addition, things like tomatoes should be avoided, fermented foods, anything really spicy. And please stop taking cranberry. It is very acidic and not good for what you may have. You may want to consider a freeze dried aloe Vera capsule that gets the system in a more alkaline state. If you are in England there is a brand called Pukka that sells freeze dried aloe Vera capsules. Some women on this site swear by them although since I am in the states I cannot, unfortunately get them...wish I could. As I said, if you go online you will get a more definitive idea of foods that can bring on a flare versus foods that won’t. Now, even though you haven’t been diagnosed with IC perhaps it would not be a bad idea to change your diet up a bit. Also, as a rule, I’d stay away from junk like sugar, processed foods, etc. Any chronic condition can benefit from a healthy diet. Exercise is good, too, if you aren’t in too much pain. All that said, I hope you really consider going to your GP and requesting a urologist if this is still an issue for you. You are so young and I’d hate to see you have to suffer with something you aren’t even sure of what it may be. Well, I wish you all the best and hope things can get cleared up for you soon. 
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    • Posted

      Thank you for your advice. I'll try the diet and I'll start drinking more water. I do notice if i dont drink lots of water my urine is super dark with a slight reddish color now. I'm so scared I might have greatly damaged my body bc of that mistake. I read about IC while googling uti. Is it possible that this might have triggered that? Is that how it works? I also think I had a kidney infection too when they gave me the second round of antibiotics idk if that matters bc my back started to hurt. I will go back to the doctor and ask to be referred to a urologist soon. But thanks, just talking to someone about this brings me comfort.

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    • Posted

      Please don’t be scared...just know if you have the right doc(s) going to bat for you, that means everything and will get you on your way to wellness. The problem is IC is not something many docs are well versed in. That’s why I think it’s time for you to see a specialist. You didn’t say if you are in England...if you are I’m not sure how NH works in terms of easy access to a specialist. Make it clear that you are not well yet and need to see a specialist sooner rather than later. I don’t know what brings on IC. It happened to me last year while I was in New York and by the time I got home I thought I had a full blown kidney infection. The pain was outrageous.  I have no clue why it happened but my gyn said something I first thought was strange. She said IC is “endometriosis’ sibling.” I had endometriosis really bad at one point so thought there could be a correlation there. I’ve read docs don’t really know how or why people get IC and that there is no cure. But you haven’t had a proper diagnosis yet so that still needs to happen. Just do your best to be proactive until you can see that specialist. Try the diet changes, drink your water and rest if you’re in pain. You also may or may not know that bad stress can bring on an IC flare. As far as the darker urine color, I do know that this can indicate dehydration. Not sure if this might be your problem but when you see the urologist they will take a specimen. Just try your best not to worry..I’m sure once you’re given a proper diagnosis they can get you onto the correct meds and get you well. If it does turn out to be IC, for most people, diet changes help immensely. You’ll be back on track before you know it. Best wishes and take care.
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  • Posted

    Did you ever get any relief from this? I had a normal bout of cystitis, had to go to the out of hours because it was so painful & on a weekend. They gave me 3 days of antibiotics. This cleared the burning almost immediately but I still had a bit of discomfort & needing a wee. So I was put on a week of something else. Still had the sensation. Was put on a week of what I was on first time round just in case & still feel uncomfortable! All my cultures have been clear since so it’s such a mystery as to why I still don’t feel right. Wondered if you had any answers? I have now been referred to gynaecologist but the appt is ages away! 

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