Urgent Help Regarding Colonoscopy and Endoscopy

Posted , 7 users are following.

Hi All,

So quick summary here of my issues...Past few weeks I had abdominal cramps on one side and I lost a few pounds (maybe from worry). Had more BMs than usual but they weren't unhealthy ones. Anyway, doc recommended i get a colonoscopy and an endoscopy on Monday bearing in mind i am going abroad for 2 weeks to Cyprus on Wednesday morning!

So I'm feeling way better than I was when I reported the issues to the doc and very concerned that the procedures may make things worse! e.g. could cause problems like bleeding that will stop me going on holiday, could cause problems with my stomach for days/weeks due to the healthy bacteria being flushed out or from unclean endoscopes being used etc.

So I really need to know what folks suggest bearing in mind the above and the fact I will be away from the UK for 2 weeks following my procedures. Need to know today as if I decide to cancel the procedures it will need to be done Friday by 9am UK time!

Any help will be appreciated.

Thanks smile

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  • Posted

    Hi it depends what you are having a full bowel colonised I would say no don't go away I've just had one and make you feel rubbish but depends how much u want your problem solved or go away I'm sure u will do the right thing for your. Self good luck anyway.

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  • Posted

    I would say that maybe you want these endoscopys but surely you can delay them until you return. It makes sense to not do invasive procedures that carry a small risk of purforation etc wihout having access to the British NHS to immediately follow up any complication
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  • Posted

    Yeah I could probably delay them...only reason I initially asked to be brought in for them so quickly was that I've been worried sick for 2 weeks but now the symptoms are getting better so now on the fence about it all!
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    • Posted

      A win/win situation is if you could secure another appointment tomorrow morning for when you return - so that you don't suffer some excessive waiting period trying to re-book when you return from holiday. Once they realise that you have good prudent reasons to defer, I hope they re-book there and then on the phone when you speak to them at 9am tomorrow.
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    • Posted

      Yeah does seem like the best bet really doesn't it... As I say the only issue is I've been worried sick, almost had a panic attack etc. From the worrying earlier this week and last...not sure if that's down to the symptoms I was having or just me over thinking them!
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  • Posted

    So I rang the hospital just to double check what they thought and they're saying there's no reason I shouldn't have it done before going away... It's a primary hospital, not sure that makes any difference but just meant i got to speak to someone other than my specialist and they confirmed what the specialist said... That it wouldn't be an issue... Still though, you've all had these before so know better than anyone of the side affects following the procedure so thought I'd just ask here
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    • Posted

      Re side effects, I only had the bowel prep and un-sedated colonoscopy. The bowel prep was unpleasant. No side effects of the procedure. Took about a week for normal movements. I would not want to be abroad with new menus after cleaning out the bowel. I think it makes sense to consider carefully how/what you eat immediately following. As you say, interrupting the natural bacteria balance etc. needs to be considered.

      All the best - whatever you decide smile

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  • Posted

    These types of things are worrying - but it's not like you are considering ignoring it altogether, just deferring it due to the holiday and symptoms decreasing. After a certain age (in certain circumstances) they recommend colonoscopy for screening, I don't know your age - but there may be good reason to follow through with these physical checks when convenient.

    In my case I am 50 and had visible blood (for 5 + months) and anaemia so had the colonoscopy. They found nothing. I am somewhat relieved - but it's a diagnostic journey that takes time. So you weigh-up what symptoms warrant what checks and in what timeframes.

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    • Posted

      Oh wow! I feel daft now for having mine! I've lost 6 pounds in a few weeks and have had cramp/tension for 2 weeks in one side of my stomach... Also very hungry right after eating but other than that there's nothing else. I'm only 26 and have had stomach problem's for years but never like this... I think they're only sending me for them because I'm private and they send you very every test and scan under the sun when it's private
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    • Posted

      Oh I see - well at 26 you haven't got that statistical worry to add on. Loosing weight and pain is an issue too of course, it's not daft. But there's nothing like getting a clean bill of health, so it's great to have that private health care to safeguard things. Waiting lists should not be an issue if you need to defer either.
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    • Posted

      Hi lady67208,

      I read you saying you have been bleeding for 5plus months and they found nothing.I'm 61 and have visible bleeding for about the same time.I have had a colonoscopy too and they also found nothing!..can I ask if your still bleeding(i am)and what if anything has been suggested re further investigation?..So far I haven't heard anything 're further investigation but my symptoms are still ongoing and there has got to be some reason for continual bleeding?

      I would be grateful for any input on this please.

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    • Posted

      Hi Heather56512,

      I sympathise - it is indeed worrying. They suggested an upper endoscopy but because my symptoms did not relate to upper, and I am not keen on endoscopy's I asked for the capsule.

      This delayed things because their procedure goes 1) Colonoscopy 2) Upper endoscopy and only then 3) capsule

      They eventually agreed to the capsule, which I had last week and I am now chasing the results.

       

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    • Posted

      And yes - still bleeding, though not as much - and it is a shame really because the capsule is best done whilst the blood is visible and it subsided a week before the capsule. I hope they still find the cause.

      The whole process has taken so long though between tests and chasing results.

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    • Posted

      Hi lady67208,

      Thanks so much for your input.I haven't as yet been offered an endoscopy and like you don't want one !..I have never heard of the capsule. Could you explain what it does?.and what symptoms does bleeding coincide with the stomach ?

      Sorry for bothering you again with questions but Google is informative but not a human so can't give u actual experience of this! :-)

      Thanku

      Heather.

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    • Posted

      I sense some fear of endoscopy which is not warrented. I have had two of them done a few years ago and it was no big deal. All the doctors did was to spray my throat to overcome my gag reflex and that was it. I get propofyl for my colonoscopies and my guess that if I have a double exam in the future, it will be done while I sleep, thanks to the propofyl. In most cases the only concern should be the findings and not who gets to see our butts or fear the almost total lack of pain. The discomfort in these tests is similar to a dental cleaning, but of course in a different location in the case of  colonoscopy..
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    • Posted

      Hi Heather,

      The capsule is a camera very small like a pill. You swallow it and it takes images as it travels all along the digestive tract and it will eventually be passed in the toilet. They do not expect you to retrieve it wheh it passes but you also wear a belt around your waist which is recording the images over a period of about 8 hours. The belt is what you return to them.

      The day before the capsule you stop eating around mid-day and you hopefully have an early morning hospital appointment to swallow the capsule with a cup of water and can leave the premises - you return the belt to the hospital at the end of the day - the images are interpreted by them from the belt. The capsule passes when it is ready.

      There is a small risk of retaining the capsule - so they will ask you if you have symptoms of bowel obstruction. It is not that serious if you do retain it though, because they can retrieve it at the same time as they treat the obstruction that it detected. But that's all part of your consultation re. consent & risks.

      I refused the upper Endo because logically blood that passes throught the stomach is likely to be black (because of bile etc) plus I have no intigestion, vomiting, reflux etc indicating upper issues. The blood is dark red and mixed in, plus of course the capsule will re-check the colon in case anything was missed on the colonoscopy. The bleeding symptome I have are mostly related to symptoms described with small intestine and colon.

      If stool is thin - pencil like etc or there is pain - this may indicate an obstruction, in which case a capsule might not be best. The cases I read of retained capsule was with people with crohns but it is rare.

      The capsule is best taken while there is still visible/active bleeding, so it can detect the cause and location.

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    • Posted

      Joel, 

      while I am sure you are trying to be helpful - there is a lot more entailed then who gets to see your butt and whether you are successfully sedated through pain - plus Heather and I have both had colonoscopys.

      The issue is about whether to have the upper endo and whether, upon weighing up all the issues, you feel to accept the procedure.

      Many people have had awful experiences of both upper and lower endoscopys and all procedures carry risk - I was fortunate with my colonoscopy, but for some it does turn out to be quite a big ordeal, which is a 'big deal'

      I know you mean to be kind - but you can never guarantee how someone else's experience is going to go - so all you can do is offer information towards them achieving informed consent or discussing alternatives.

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    • Posted

      Thanku so much lady 67208,your information regarding the capsule and stomach symptoms have been extremely enlightening.

      I also have had none of the stomach symptoms you descibed so if the bleeding persists I will certainly go the capsule route.

      As you said to Joel,everybody's personal experience is different and I wasn't in fact querying the pain of an endoscopy only the necessity of having one.

      I truly appreciate you taking the time to explain fully the purpose of the capsule and your own personal experience and symptoms.

      Let's hope we both find answers soon.

      Take care and very best regards.

      Heather.

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