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urgent query before appointment

Posted , 3 users are following.

samantha94482
samantha94482

Hi sorry if this is the wrong place but I've had longstanding bladder and kidney issues since I was 7 years old. I now have Interstitial Cystitis and have had my bloods back which show my egfr is at 84. This is down from 3 years ago when I was well over 90. I have blood in my urine, vitamin d deficiency, numerous issues with urination, extreme fatigue, bone pain, skin itches constantly and for the past 4 years my alkaline phosphotase level has been over 220 and unexplained.

Please help. What are your opinions on this. I struggle to get my GP to listen and take me seriously due to my extensive (proven) history. Everything gets put down to the IC.

Pleas whelp me on how to approach this subject. I know the level is 89 and above for normal but I'm concerned and would like your opinion. I'm 30 years old and female.

Thank you so much.

0 likes, 3 replies

3 Replies

  • trollking
    trollking samantha94482

    Posted

    Hello Samantha, welcome to my world :-( i have similar problems since i can remember,  Are you under a consulatant for your kidney / bladder issues, if yes what does he say ?  You could call you local hospital and they will have people who can help if not they would be able to point you in the right direcion.  Otherwise could you change your doctor ?  I must be honest my GP is really good with me but i do know people who have the same issues with their GP.
    • samantha94482
      samantha94482 trollking

      Posted

      I spoke to my GP and she told me that my level is normal. It's been as low as 77 apparantly but she said it's normal as it depends on how much I'd drank that day.

      I don't know if that's right but I can't argue without knowing what to say really!

  • trollking
    trollking samantha94482

    Posted

    In my experience unless you are on deaths door the doctors and consultants are just happy to monitor you.  I am not playing down your illness however a egfr of around 70 / 80 is actually not to bad so i would guess they are not too concerned about you.  Although the doctors / consulatants are really good with me my last blood test on Friday last week came back at EGFR 18, and to be honest i saw the consultant yesterday and he wasnt overly worried. 
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