Urinary Stress Incontinence

Posted , 16 users are following.

Hi, I suffer from stress incontinence.  I haven't been doing my pelvic floor exercises as much as I should but it's getting a real problem now.  I love exercise, I teach classes and also am training to become a Personal Trainer so really need to get this problem sorted.  I went out for a run yesterday and couldn't stop weeing.  It's getting really embarrasing.  I also have to hold myself before I go to the toilet to avoid wetting myself.  Has anyone else been this bad and have you thought of the surgery? And if so, was it successful?  I'm awaiting a private appointment but it's not until end of April.  Please help!! Any advice would be great.  I'm a woman in her early 40's and had two vaginal deliveries 10 and 8 years ago....

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  • Posted

    Hi I am so sorry you have a problem. I would advice you not to have a TVT mesh sling or tot as it is plastic mesh that cuts threw you like a razor. Doctors to sharp to offer this as they make more money out of it. If you are offered this Google "TVT MESH SLING COMPLICATIONS". Ask your doctor

    how many implanted,

    how many full tapes have you taken out.

    Will I suffer later with urge incontinence

    Can it cut threw my nerves and organs

    He best web page to go on is

    Messed up mesh

    Home page has what the Scottish goverment has done and other things that doctors can do. Hope this helps xx

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    • Posted

      Hi, a local friend had this operation and hasn't had any side effects or pain from it. I'll wait and see what the consultant says. Think I need something effective more than exercises now though x
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  • Posted

    Hi,  I have exactly the same problem to the extent that even fast walking makes me leak!  I have tried a bulking agent (Bulkamid) which worked very well for a few months but then the effects wore off and I was quickly back to square one.  I am now considering the TVt surgery but I am concerned about the mesh, which I know has a bad reputation for side effects.  I understand that it is possible to have the operation using your own skin or donated skin, which has fewer problems.  It's something I will discuss with my urologist on my next appointment.  I wish you luck with whatever course of action you choose because this problem really interferes with life¬!
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    • Posted

      It's a very cruel condition isn't it. I think I'll opt for the operation. My friend had it and it's turned her life around. I'm trying to cut down on alcohol and caffeine which aggravates the problem. Good luck!!!
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    • Posted

      Hi I had the TVT mesh in 2013 as I had chronic mixed incontinence and had no life what so ever. Lived with it for years and made me a recluse. I got offered the tape in 2013 and jumped at the chance December 2013 for a normal life with Botox injections afterwards for the urge incontinence. I have been a&e no one new how to treat me for my pain my gp had never hurd of it I was on my own. i am waiting for a op now 450 miles a way from were I live as it is cutting threw a nerve, tests show there is fibres in my bladder wall of the mesh and what ever else it's done that can't be seen until they go in. The pain is so bad I am on a nerve blocker and pain killer and morphine. It has been suspended in scotland and I think it should be in the uk until the mhra has finished the investigation on how much damage it can cause. After 6 weeks it goes hard and is meant not to be removed there are a only a few that can remove them. It can shrink, erode, cut threw the vaginal wall, nerves, bladder, womb, uretha, and a lot more and the pain is worse than the Sui. I wash i never hurd of it never mind had it.
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    • Posted

      Hi Claire

      I'm sorry this has happened to you. I must admit I've not heard very good things about the mesh. Did the Botox injections work for the urge incontinence as that might be a good option for me?

      Thank you x

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    • Posted

      Hi I don't know if the Botox works that was the next step. But I do know that the urge inconinence is a lot worse since I had sling. And I didn't think it could get any worse. Inconinence nurse said there is only the patches left which go on your buttock and refuse them as of all the pain in the right buttock and leg. But can't have Botox until the mesh is sorted out. But I do know it needs doing every so often every so many months not sure how often though. Xx.
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    • Posted

      Hi mary. Was there any pain after bulkamid op? I am offered withe tot or bulkamin however I m very confused between the 2. I read bulkamid success rate is 30-40% however in tot there are other complications like pain in thighs or growing tissues around it
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    • Posted

      Hi mary. Was there any pain after bulkamid op? I am offered withe tot or bulkamin however I m very confused between the 2. I read bulkamid success rate is 30-40% however in tot there are other complications like pain in thighs or growing tissues around it
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    • Posted

      Hi sneha - no pain but, to be honest, I can't recommend it as the effects lasted less than 2 months!  It's a procedure you have to keep having done which is a bit pointless.

      ?I personally wouldn't have either TOT or TVT because of the many problems associated with both of these.  In August I had a colposuspension, which is a major operation supporting the bladder.  It's the best decision I ever made because I am now totally dry and there were no side effects at all.  It's around 3 months recovery time but worth it for a permanent solution.  Urologists are starting to recommend it more and more these days but many still try to steer patients towards TOT and TVT because they are much simpler and cheaper procedures.  Maybe mention it to your urologist.  Good luck!

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    • Posted

      Hi mary, Thanks ever so much for all the information. I really appreciate your help and information. Did you go private or through NHS? Can you recommend your urologist or doctor you went to please?

      Kind regards

      Sneha

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    • Posted

      You're welcome Sneha. I was treated under the NHS. My urologist is Melissa Davies. She operates in Salisbury District Hospital and also does private operations in New Hall hospital nearby.

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    • Posted

      Hi Sarah,  I was given a general anesthetic before my bulkamid because my urologist said it was " a bit uncomfortable ". M sure if you're having a local it will be okay though. 

      As to whether it's worth it. The effects only lasted a few months for me and then I was back to square one. So in my opinion probably not. 

      Take care. 

      Mary x

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    • Posted

      Hey so is general were your put to sleep? Can I ask where

      You had it done? My doctor

      Assures me it last ten years, I'm so nervous about the whole thing!

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    • Posted

      I had it done in Salisbury district hospital on the NHS.  I was given the choice of either a light general or a local anesthetic and opted for going to sleep but I'm sure a local would have been okay too so don't worry. 

      My urologist told me before the op that the body would absorb it and the best I could hope for was 2 years. In actual fact the effects began to wear off after about 6 months and by a year I was back to where I had been before.  This may not be the same for you, perhaps people react differently. Either way there's no problem giving it a go you have nothing to lose and it doesn't prevent you having something else done later if you need it. 

      Best of luck and I hope it goes  well. 

      Mary x

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    • Posted

      I'm off on holiday for two weeks now Sarah. If I can help in any other way get back to me then.  I'm sure you have no need to worry about being hurt. Local anesthetic is powerful.  Why not speak to your doctor about a general though?  

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    • Posted

      Just had the bulkamide on Monday

      Generalal anaesthetic no problem with that and I think they put some uppers in it as I felt great for the rest of the day. Felt I could have gon e dancing.Not even sick or even tired and no pain.

      2 connsultanats did it other doctors there a nd even the bulkamide rep.

      So I would not have liked to have been awake.

      A day job but it turned out that my bladder was having g a little problem emptying so I was catheterised and stayed over night.

      Absolutely no problem with the catheter. Did not feel anything a d it kept me safe.

      As to how long the bulkamide will last really worries me.

      I have been incontinent for 8 years and just to be dry in the house for 1 day is so wonderful.

      The con sultant said It can last 8 to 10 years.

      Oh I do hope so.

      The op is nothing to worry about.

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    • Posted

      Hi Jo,

      I was 100% perfect for 2 months and then now about 98%.

      Need small liners now but considering I love fast dancing, salsa, and fast waltzes and polkas, then I am not doing bad.

      Definitely recommend the bukamide. I am probably back to where I was 8 years ago. Losing weight might help me. I was desperate for help before the op as I had some embarrassing moments. Good luck.

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