Urine retention and upper right abdominal pain with neurological problems, anyone else?

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Hi all,

Small background to get everyone up to speed. I'm a healthy 25yo woman who has been dealing with hospital trips for around 5 years. My symptoms consist of vomiting, bowel pain, anal bleeding, I leak fluid that smells of ammonia, I have consistent kidney and liver pain, plus I have urine retention. They've done blood tests, ultrasounds, and urine collection. I'm awaiting results from the urologist, however he has now mentioned he believes there is a neurological issue. Does this sound familiar to anyone? I have no knowledge or history on nerve issues so never considered this as a possibility.

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  • Posted

    nuerological issue in what sense ?

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    • Posted

      Thanks for your reply! That's the thing as i don't know. They're suggesting there is a condition in which the messages from my brain aren't being received properly to my bladder.

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  • Posted

    Have they mentioned MS to you? I have random numbness and tingling all over, fatigue, brain fog, and I also have the ammonia type smell that suggests I'm leaking urine. All of my urinalysis' have come back okay. My brain MRI came back normal too, but my primary care doctor wants me to see a neurologist to make sure we're not missing anything.

    I hope they get to the bottom of your symptoms. It's terrible to not know what's going on.

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