Urodynamic tets booked for male who is CIC
Posted , 9 users are following.
Hello to you all. As you may or may not know I have been on this site for about 3 weeks in total and have found it - YOU ALL to be invaluable! My partner who is 65 and who was being monitored 'watchful waiting for a rising PSA level - started at 4, then went up to 5 a year later and was this year at a 6, until he got 'suspected' prostatitus in July this year when it rocketed to 12. In July he had to go to the emergency hospital as he was totally unable to pee. His bladder was drained by catheter and he was eventually sent home. Next day he was back at A and E with exactly same issue - totally unable to pee and in much discomfort. He was again catheterised and bladder drained and sent home with catheter in situ. He was told to attend an out patient appointment a weel later where the catheter would be removed. He attended and despite drinking large amounts of water was still unable to pee at all. So he was recatheterised and told to come back in a few days and they would show him how to CIC. He has been doing this (CIC) for almost 3 weeks and he has an appointment next Thursday where they are due to perform urodynamic tests. I can't find any information on the internet re urodynamic tests in men who are CIC and I am quite worried that these tests may cause more problems than they solve. Have any of you gents had this kind of experience? If so a reply would be VERY MUCH apprecieted by me. He has BPH or at least that is what we have been told, but has never had anything other than a digital rectal exam where the consultant said it was 'BIG'! A couple of years ago we refused a biopsy, and they said no biopsy - no scan so we really have very little - well no accurate information re his prostate size etc. I have read that in urology testing they fill the bladder for numerous bits of these tests, but I am scared that they may damage his bladder by overstretching it. He is currently peeing between 150 and 300 mls when he CIC - which is usually 4 times per day. Any information or advise would be brilliant!
?Deb x
0 likes, 48 replies
robin25259 deb2792
Posted
derek76 robin25259
Posted
When I had my second biopsy around 1997 it caused a bit of a hemorrhage afterwards and I was kept overnight. During the night a urologist was doing ward rounds and asked why I was there.
He asked if I had read a Norwegian report on PSA terrorism. I hadn't he said that it said that it was a very unreliable guide and reason for the procedure. People say PSA testing but there is another test less mentioned and more reliable one the Free PSA Test. The NHS seem not to do it due to cost. I got my GP to take the blood and send it to one of the few UK labs that do it and paid the cost of it. I then had to explain the result to my GP.
deb2792 robin25259
Posted
Thanks again for you reply Robin, and the bit about 5 cups not being enough to damage the bladder!
Take care you!
Deb x
derek76 deb2792
Posted
How did the consultation go last week?
deb2792 derek76
Posted
Hi Derek, his bladder function is fine, its just a wopper of a prostate (85) thats wrapped around the urethera. Urolift is not an option due to size of prostate so we are going for HoLEP as we can't afford PAE. But consultant has been doing HoLEP for years so I thik that we are in safe hands. But we are just really pleased that he will hopefully be able to pee again naturally. Watch this space. Will let you know how we get on.
Take care you.
?Debx
derek76 deb2792
Posted
That is mainly good news. Not that much of a whopper mine was 75grms at the time of the GL but 135 when I had the second procedure eight years later. If it is round the urethra they should be keeping away from the bladder neck.
Where is he having it done?
It really is a simple procedure with a fast recovery like GL. I was at the races on day three another was was down the pub and playing snooker on day two.
Quote from a friend who went to London for his GL.
"The other thing I must report is that I feel so well, I can't believe I've had an operation. I have to keep reminding myself to take things easy. So far I have had no pain whatsoever and have no sensation of having had the PVP except for a slight tingling on urination. The downside of this is that I spent yesterday being dragged round the Kings Road by my wife looking at clothes. I tried on lots of pair of trousers etc and kept thinking 'how can I be doing this less than 24 hours after what is supposed to be a serious operation"
He did have some bleeding a couple of weeks later that he put down to doing too much as did someone who trained gun dogs and took people deer stalking about a week after and had to push his Land Rover after it got bogged down.
You get freedom again after the procedure. We went to NZ soon afterwards and travelled around for a month on busses that had no toilet facilities!
deb2792 derek76
Posted
Hi again Derek, oh my goodness your was a 'monster' at 135! We are having it done at Whiston hospital in St Helen's. The whole team have a good reputation there, and as I have said before, the consultant was a really nice guy. Would have been nive to go for PAE but with a PSA level of 17 which started at 5 a couple of years ago, hubby is worried and wants the check that they do with HoLEP to test for cancer cells. His decision not mine, if I had a prostate I would have remortgaged the house and gone for PAE, I did suggest this, but he is not up for it. The irony is that we are off to Portugal for a weeks holiday tomorrow. And I did keep trying to pursuade him to have it done with Dr ? at Lisburn whilst we were in Portugal - but again, he would not go for it. So, his prostate, his choice, I hope it sorts the begger out as he is so fed up of self cathing. Just wants to feel 'normal' again - whatever that means!
?Take care Derek
?Deb x
robin25259 derek76
Posted
Robin
derek76 robin25259
Posted
I'll let you know if there is a next time. We will want better weather:-)
We started from Christchurch. We thought that we would get the last month of Summer but we were told that it was the first day of an early Autumn and to buy warmer clothes. We then had gales blowing down trees in the botanical gardens and rough seas that cancelled dolphin watching trips. The next week going to Milford Sound the driver said that he had never seen snow on the hills so early and it was snowing when we were on the boat.
When we went up to Bay of Islands we got two days of the tail end of a hurricane from Austalia.