Urolift this week by the NHS

Posted , 19 users are following.

Hi all,

been a bit of a struggle but I'm down for a urolift op this coming Thursday. My area "Dorset" could only offer the TURPS procedure but at 51 feel this a bit like playing Russian roulette with my sex life. After much badgering I managed to persuade my GP to refer me to Basingstoke Hospital which is the closest one that carries out the urolift procedure.

At the moment I'm not taking any medication but I have to pee maybe four times in the night and occasionally wet the bed. Thursday can't happen soon enough.

2 likes, 132 replies

132 Replies

Prev Next
  • Posted

    "The doctor, one who did the trials in the US for FDA approval, said I was a "borderline candidate but he had a hunch it would work."

    It's interesting to see how many times this type of comment is associated with unsatisfactory results.  Although I suspect there are unpredictable factors that lead to unsatisfactory results, there are, based on numerous posts here, a considerable number that were associated with a doctor either ignoring or pushing the envelope on the manufacturer's specifications and recommendations.  Whenever one hears the doctor say " I think it should work"...get out of there. 

    Anyway, I hope things work out for you. Even though I have urilift in, I too have my eye on the iTind procedure in case the future has more issues for me and will be interested in it as it matures. 

  • Posted

    Hi , My Urologist wants me to have a turps but I feel the posssible side effects are a bit scary,also it seems qiute a severe treatment when other are available.HE IS ???? politely ? obstructive /reluctant to refer me elsewhere out of the trusts area. How have you been since the uroliftaand how does it compare to HoLep. I'm a phisicaly active fit 69yr old diagnosed with Gleeson 3+3 Sept 2015  PSA now down to 4.35 which I'm informed is actualy 8.7 due to Dutasteride.He has reluctantly accepted that a template biopsy (again out of our trusts  area)is better than the conventional  biopsy due the position of the cancer.

    Does the referal decision lay with the GP or the Urologist. !!!In his letter to the GP he states

    " the patient will let my specialist nurse know whether he wishes to to undergo Turp OR  wishes to be refered for a template biopsy.      EITHER OR !

    In light of your experience can you offer asny advice. 

       Cheers Eddy

     

    • Posted

      steady, you have cancer and they're discussing TURP? Have you looked into Focal laser ablation for you cancer?

    • Posted

      First of all is the cancer fast growing or slow.  Can you just do watchful waiting.  You should be able to do what you want.  He is telling you what he wants but it is up to you to deside what you are going to do. Tell him no to the turp and they tell him what biopsy you are willing to have  It is your body.  And if he does not like it get another doctor. The doctor should do what the parient want  Good luck  Ken   
    • Posted

      PS  There are many other procedure out there for cancer that do not have to distroy the prostate.  Ken
  • Posted

    You'll love Urolift.  Expected blood and some initial pain to be expected with any such surgery.  Peed a lot up front.  Lady drove me home with me with my penis hanging in a portable urinal with a blanket over my lap.  Once healed was up much less to pee.  Now pee like a drunken teenager and ejaculate like one too.  Takes a few months to get use to having the little thingies inside but no pain.  I'm 19 months post op now and most pleased.  Hope you are too.

    • Posted

      Mine is about 21 month's and doing great.  I had a catheter put in while I was asleep Had it for 3 day.  burned the first day after it can out  Been doing great  I would do it again If I had to  Ken

    • Posted

      Hey Riverkilt,

      I just had the urolift 5 days ago and I was wondering how long you waited before the doctor told you that intercourse was ok to have.

      I have read 2 wks. up to 4 wks. for some people. Thought you could shed some light on this. I haven't been able to talk to the doctor since the procedure and dumb me forgot to ask before the procedure.

    • Posted

      Hello DD  I had my urolift in april of 2015.  My doctor told me 2 week if I was up to it.  I waited 5 day and masturbated  all worked well and felt great.  It all up to your body.  Ken  PS  the first couple of times you may have some blood ing the seamen.  I did on that first try.  After that no blood  Take care  Ken 
  • Posted

    Hi guys - I'm an otherwise healthy 48 year old and have been suffering poor pee flow for about 10 years.  I've only ever used Tamsulosin to help but the effects are no longer as good as they were. I recently came across Urolift and, to cut a long start short, have a date for surgery next month. The only bit I'm worried about is, following a cystocopy my urologist said my prostrate is not that enlarged, my issues are more bladder orientated (it's stretched apparently) and his fear is I'll notice little difference following Urolift.  However, on the plus side self catherterising would be easier post op should I not notice any improvement. Also, I could come off the Tamsulosin at some point which would also help with the quality of my sex life!

    It seems a little strange to me having a procedure on the basis it probably won't help but I'm also wondering what if it does help?  I've suffered for many years and sick of feeling full of pee all the time, taking ages to pee and pushing my belly to get things started. Has anybody going got any advice / words of encouragement?

    • Posted

      Hello.  I had the uRolift done 2 12/ yesrs ago.  It has been great. And it  would make CIC easier for you if you have to do it.  I was told that by my doctor.  Also getting off the Tamsulosin you will not have retro anymore.  MY orgasm are more intense then theyw ere when i was younger.  Im 61 now  Good Luck  Ken.  Any question just tex me
    • Posted

      Hi Kenneth - thanks for the quick response. That's quite reassuring and gives me more confidence I've made the right decision. I was also offered the test where they fill your bladder with fluid and drain it to understand better how the bladder is performing but I don't see the point of this. If he says your bladder is knackered and urolift won't work at all I'd still prob press on on the basis I can drop Tamsulosin. He also said I can start CIC instead straight away but then I'd forever be wondering if urolift would've helped - and urolift won't stop me CICing in the future - and may even aid it!

      The other things I'm keen to know is how long will I need off work? I'm not one of these who enjoys being off work (weird I know) and would return the next day if I could. The ops on a Wednesday so I was thinking of taking the Thurs/Fri off, relaxing over the weekend then going back on Monday. Also, I really like my real ales and wonder if I can get out for a jar or six on the Friday post op with the lads and without uncontrollably peeing my pants! Feasible?

      Cheers

    • Posted

      Hi Shnicko,

      I would not do it ( I also have a stretched bladder) if it is not very certain that it would help ... a lot. Sure it did work for Ken but I am not sure Ken had the same problem you are having now. I would start CIC and take more time to investigate. Hank

    • Posted

      Thanks Hank - did you have the Urolift procedure yourself then and now regret it?
    • Posted

      No, I did not have any procedure because I am not sure if any but time would help my stretched bladder. Even your urologist express fear that urolift may not help. I've heard many people having a procedure and still ended up taking Tamsulosin. Hank

    • Posted

      Hi Hank. My feelings right now are I have nothing to lose although still feeling a little apprehensive hence seeking solace from the internet! If I don't do it I'll forever be wondering if it would/could of helped. Urolift seems the lowest risk of all my options other than doing nothing and carrying on with the Tamsulosin. I think it's a risk worth taking.

    • Posted

      Heh heh. I am not as brave as you are so I am still waiting and looking. Actually, right now FLA seems to be the best choice. I wish you the best and I will monitor your progress. Hank
    • Posted

      I'm in a similar situation. Now aged 50 I've suffered for years with a distended bladder and more recently weak urinary flow and prostatis. In the past (before the urinary flow problem) I was advised the only solution would be CIC which I really wasn't keen on. Anyway, I went to see a consultant recently who did a cystoscopy, rectal ultrasound, urine flow tests and advised I have a small prostate (35g), but my urethra is a bit twisted (at least that's what I understood) & as the prostate grows it's growing inwards. He prescribed tamsolusin & low dose cialis (which has helped with the flow issues), but advised surgery is the only solution. 

      His preferred recommendation was 'ejaculate preserving laser surgery', or altered urolift. I've opted for the urolift since I was advised that whilst not a guaranteed long term solution, it would solve most of the problems and help with the urine retention.

      in any event, I'm pressing ahead with this privately and will keep you updated on the results. When is your surgery?

    • Posted

      Hi Mark

      Had mine done 2 days ago - on Wednesday morning. I'm currently convalescing at home resting and repairing.

      Seems you've arrived at the same conclusion as I having opted for the Urolift. I think you've made the right decision. It's early days for me in terms of recovery but the signs are so far so good - had a few cracking pees so far. Better pressure and far less stop/start.

      Fingers crossed for us both.

    • Posted

      Hi Shnicko

      Thats good to hear, and hope you make a swift recovery.

      How long did the surgery take, did you have local or general anaesthetic, and how have you been advised to take off work? 

    • Posted

      Markiebaba........Happy your going for Urolift you will be very happy with it.  It does the same as the surgery make a tunnel and releave the pressure on the bladder neck.  And no side effects.  I had mine done 2 1/2 years ago.  There was a 5 years study on UROLIFT and all the men are still doing great and no side effects.  Good luck  Ken
    • Posted

      A general. The nurse said I was 'under' for 35 minutes. Discounting the small prick (no puns please!) I felt in the left hand when the anaesthetist administered the pain killer before I went into a drug induced kip, I felt absolutely nothing and was very comfortable. My urologist said he'd used just two clips, one either side, to pin apart my slightly enlarged prostrate.

      Work wise, they'll sign you off for up to a month a believe but I've got to be honest - I don't think this is necessary and is milking it a bit. However, everyone's different so I suppose I've just been lucky. I also have an admin / travel based job - nothing manual so there's no risk of my popping the ties or anything by over exertion!

      I'm sticking to my original plan - op was Wednesday, take Thursday and Friday off to recover, then a light weekend and back to work on Monday. I have asked for light duties though and my boss has allowed me to work from home for the first week which is helpful.

    • Posted

      Thanks for the details. It sounds a straightforward procedure and I'm hoping mine goes without complications - at least its been sold to me that way by the consultant. I too was informed I may only need two staples, but possibly up to four, and since my insurance won't cover I'm opting for local/twilight anaesthesia so I can have the procedure as an outpatient.

      I'm also hoping to schedule it for a Wednesday so I can be back at work the following Monday. I do a lot of travel with my job and have some vacation coming up so would be interested to know if there are any restrictions placed on flying after the operation?

    • Posted

      Thanks Ken. I did a lot of reading about the different procedures available before settling on urolift - mainly due to the reported lack of side effects, quicker recovery time, scaleability (more staples can be added) and reversibility if alternative surgery is needed in the future.
    • Posted

      That is what I had.  Glad all is going well for you.  Yes all men heal different rates.  Had mine on a Monday had the catheter out on Wednesday............  ( I have a problem peeing on demand )  Burned that day but was good to go by Saturday.  Rest and drink alot of water  God bless  Ken
    • Posted

      I had implants put in and it works for me you can go up to 9.  Never feel them.  take care  Ken   
    • Posted

      I wouldn't have though there'd be any restrictions on flying - unless it a bi-plane with no onboard toilet facilities!

    • Posted

      You will have a card that tell them you have them.  Sometimes they show up and sometimes they don't.  I travel all the time.  my lady friend thinks it funny when they tell me by grotch is lighting up  Ken

    • Posted

      So how is the recovery going - did you make it back into work on Monday? 
    • Posted

      Hi Mark

      Yes I did. In fact on Saturday I also went to the pub for a few hours with the lads to really test it out! Things are starting to really settle down now as I come to the end of my antibiotics. I still think I'm retaining, I've noticed it takes a few seconds to get going and the stream seems a little weaker than last week but it's still a significant improvement on my life pre-op.

      I've got another week and bit of Tamsulosin to go, the end of which will be the next big test.

      I can still feel a constant very mild tingle at the tip of my penis and some odd occasional feelings in my stomach but guess this is entirely natural at this stage of recovery.

      Right - best get off to work!

    • Posted

      Hi Shnicko

      Good to hear you're on the mend and it's promising you've noticed flow is improved compared to your pre-op situation. To be honest in my own case I'm not expecting miracles so will gladly accept reduced urine retention compared to now if my flow increases and I can drop the medication.

      Have you suffered much pain, urgency to urinate or leakage problems post-op?

    • Posted

      I am happy both of you are doing well.  Give yourself some time.  It will get better  Ken  
    • Posted

      Hi Mark

      Remarkably no. The procedure itself is painless (although I recall you saying you'll be staying awake for yours - brave man!).

      After coming round I can say I wasn't in any real pain just ever so slightly uncomfortable. Looking down at my poor old todger I could see/feel blood weeping out but it was no big deal.

      The only time I felt any discomfort was that first pee - that's not pleasant although very necessary. Once I'd started it came flowing out but suddenly I went very light headed the room started to spin and I felt a bit feint/unsteady. I quickly got back into bed and my wife said I was white. For about 10 mins I felt quesy but it soon passed.

      I did go to Boots the night before the op to buy some incontinence pants. I wore them for the journey home (approx 45 mins in car) and for the rest of the day/night including in bed. I didn't really need them as nothing happened but it did give me some piece of mind. I've got 11 pairs left if you want them lol!

      And I can't say I've really suffered an urgency to pee. I've been able to control it it in the normal way although I have been working from home and so always seconds from a lavatory. I wake up in the morning dying to go but have still avoided any accidents or pain holding it in. Maybe it's because I'm still only 48 - don't know really.

      We sound very similar in that our bladders rather than prostrates are the main problem here. My prostrate was slightly narrowed and slightly enlarged but post op the urologist showed me a pic of his handiwork - my prostrate looked almost diamond shaped with a stinking great gap in between!

      I've no regrets thus far mate and look forward to hearing about your experiences. It's such a relief to push at your belly and feel no liquid slushing around.

    • Posted

      Thanks Ken. I think you're right. I'm guilty of wanting to get back to normal asap instead of being patient. Typical bloke huh

    • Posted

      Hi Shnicko

      thanks for the update. Your recovery experience is exactly what I wanted to read, and since we're at a similar age and I'm suffering from what seems to be the same problem as you were I'm hoping that my urolift will also prove relatively incident free.

      Thanks for the offer but I stocked up on incontinence pads at the weekend in case of any unforeseen accidents.

      It would be good to hear how you're getting on a week and a couple of weeks post op - 17 days and counting for me and then we can compare experiences.

    • Posted

      Hi Shnicko, how's the recovery going?

    • Posted

      Hi Mark

      Going well thanks - it's just over two weeks now since the procedure.

      It's also 48 hours since I last popped a Tamsulosin capsule and I have noticed a decrease in pressure / slower stream today along with a bit more pushing (using my tummy muscles rather than pushing on my belly like I used to though).  I'm also more conscious that I'm still retaining but I don't think it feels as bad as it did before.  I'm still happy I went ahead with it as there was really nothing to lose. I'm hoping in a couple more weeks that my body gets used to no meds and improves to the level it was post op. It wouldn't be he end of the world to return to taking the tablets but I'll going to give it at least until my follow up on 4th Sept to see what the urologist says. 

      I'll be giving it a good test this weekend as I'm off to Hamburg on a stag do! 

      Make you let us know how yours goes. Not long now. 

    • Posted

      Positive news. Fingers crossed the improvements continue or at least maintained - I read that it can be up to a month or two until the full benefits are realised.

      Enjoy Hamburg and I'll let you know how I get on.

    • Posted

      Hi Shnicko, how's it going? 

      I had my urolift done a few days ago but unfortunately my experience hasn't been so positive - 3 tags put in, hole opened up and advised it all went well but when the catheter they put in after surgery came out I was unable to naturally void. Catheter out & tried again after a couple of days but the same so a foley put back in. 

      Anyway to cut a long story short I'm now trying CIC - have since managed a few tiny natural voids but generally p*** poor. Dr seems to think some prostate tissue at the bladder neck may have filled the void created by the urolift. So now it's a case of continuing with CIC & see if over the next few weeks this problem corrects itself, or having this problem tissue that's causing the blockage resected. Long term CIC is also an option and so far it's not too bad - thanks to the great advice of Jim on this site.

      Anyway, hopefully your positive experience is continuing?

    • Posted

      Hi Mark

      Really sorry to read this.  I was wondering how you'd gone on and hopeful we'd share a similar experience.  Mine's not perfect by a long stretch but I'm happy with it.  The stream is still weak but better than it was.  The best bit for me is there's far less stop/start and I'm sure I'm voiding much better than before (i have a follow up booked for the 4/9 to find this out for sure though).

      Isn't it simply a case of it being early days?  I hope so. I reckon I'll need to CIC as some point when things start to slow again but I'm doing well enough without that at the moment and not missing the Tamsulosin either as things stand.

      Surprised to read you awoke with a catheter fitted - I wonder if your problem is a little more complex than mine?  Anyhow, keep your chin up and report back in in a weeks time.  Hopefully, things will improve for you.

    • Posted

      Hey there.  It is up to the doctor if he feel a catheter will be helpful.  We talked about it before hand.  I have a problem peeing on demand.  Had it for 3 days.  I would rather have one put in while I'm out they when I'm awake.  Had no problem.  After she filled the bladder I shot it out all over the room.  Been 2 1/2 year for me.  For Mark  you may still get better in a few week remember you are swollen  Gook luck both of you....Ken 

    • Posted

      Mark - how's it going?  Hope there's been some improvement since the last update. 

    • Posted

      Hi Schnicko

      unfortunately no improvement - my natural void is between 0 and 30% of my total void and every drop is having to be pushed out. So I'm having to catheterize 3 times a day which isn't getting any easier and to top it all I've a UTI - aches and pains in the joints, fever, burning eyes, the lot. So to be honest I'm feeling pretty miserable at the moment.

      saw the video of my surgery and whilst the urolift clips opened up the middle of the prostate, because my bladder neck was already quite tight apparently some prostate tissue near the bladder sphincter has been squeezed up as a result of the urolift and is blocking the flow. So as its too far up to add any more clips the plan is to shave a small amount of the offending tissue away - whilst preserving erectile function, ejaculation and continence.

      i hope your experience is continuing to be positive?

    • Posted

      Oh no! I can't imagine how you must be feeling right now. I'm so sorry. Hopefully, the follow up surgery will help - when will be able to have this? Soon I hope.  Isn't this basically a TURP? 

      Mine is about the same as the last update - there's been little change since then. Not perfect but much better than before the procedure. 

    • Posted

      Sorry that your still having a problem.  Did your doctor tell you how he is going to get rid of the tissue.  Like Shnicko said it sounds like he is going to do a Turp on you.  That is not going to save anything.  I hope he does not damage the bladder sphincter because it will not close right and you will end up with retro.  Please think about what your letting him do.  Give yourself a little more time to heal   Please  Ken  
    • Posted

      Thanks for your replies. The way it was described to me was more of an incision rather than a TURP. I still have a couple more weeks before the procedure which will make it around 4-5 weeks since the urolift so I am hoping I will get at least some improvement at which point I would be able to cancel.
    • Posted

      Mark  I'm sorry but that sounds to cut and try.  I Bet he is going to do a mini turp on you.  You know once you sign the papers for the surgery he can do anything when he gets in there.  I never give my doctor full control.    Cancel for now and give yourself more time to heal.  Please before it to late he do does more damage then good    PLEASE  Ken 

    • Posted

      Thanks Ken.

      I'll see how things go as regards healing - at the moment it's not looking too good: pretty much no NV, with painful CIC 3 x day.

      I really thought I was doing the right thing getting the urolift done, but it seems to have had the opposite effect so far.

    • Posted

      Mark  Did your doctor want to do an different procedure on you and you pick UROLIFT.  Never heard of the problem that you are having.  I think he put them in wrong.  I would tell him no cutting.  Tell him you want them re done.  Also if your having a problem with CIC ask Jim.  He did it for years.  If your doctor put the implants in right the catheter show go right through the prostate and into the bladder.  Think before you have something done before it to late to go back.  Once he starts to cut away at your prostate I think you will have more problems.  ken 
    • Posted

      Also, Mark, do you know the difference between straight tipped catheters and coude tip?  The wrong tip can be PAINFUL, with or without a UTI.  THe supplier set me a box of coudes by mistake when I was a newbie (3 years ago), and I used them all, suffering all the way.  Using the straight-tipped models causes me zero pain.  Just asking, just checking, with your painful situation!

       

    • Posted

      Hi Ken, the recommended procedure was green light but I wasn't really keen on having this so I opted for something minimally invasive, i.e. Urolift, hoping that would help. The clips are in ok since the catheter passes them without problems.

    • Posted

      Hi cartoonman, I've tried a few caths both straight and coude and agree the coude hurts. The pain when I cath is not in the prostate, but more in the shaft of the penis, although since I've switched to the speedicath flex over the last couple of days it seems to be getting a little easier, and the antibiotics seem to be kicking in.

    • Posted

      Mark  I still feel the UROLIFT will help you..  You just need to give it more time for your prostate to calm down.  If the catheter is going through the prostate and into the bladder there should not be anything blocking the way.  Don't let this doctor go in and start cutting.  I still say he want to get you in the room and do a GL on you.  Once you sign that paper he can do anything to you.  Why cause more problems.  With the catheter you may need more lube.  Please think about what your doing.  Because once you start cutting at the prostate that is when more problem can happen.  PLEASE  Ken 

    • Posted

      Ken, thanks for your reply. I guess I'm worried, angry and frustrated (noto mention depressed) since I went from urinating ok (albeit aided by tamsulosin and cialis) whilst retaining a massive amount to being unable to urinate whatsoever after the urolift. I've received some great advice from Jim and since I switched to the flex cath a few dats ago it's a little easier getting past the bladder outlet obstruction.

      As I mentioned before the problem is the urolift clips can't go in any further up and the bladder neck is too tight, so whilst the urolift has dealt with the problem within the main body of the prostate there's no place to fix any at the bladder neck and the problem will remain. 

    • Posted

      Yeah, anger, frustration, disappointment.  My Urolift (Dec 2015) initially had me peeing like the proverbial race horse IMMEDIATELY, and of course I was super happy.  But it lasted only a couple of months, and then I was back to full-time CIC.  Because for me, cathing is a minor inconvenience (and usually not painful), I have settled into watchful waiting mode, as I wait for the iTind to be evaluated.  Probably my next choice, for which I'll have the Uro-clips removed.  It has helped for me, to focus on the philosophical: things are what they used to be, but at my age (68), I'm much more alive than many of my dead friends, and still able to travel and do slot-canyoneering, my new passion.  So, as my (late) friend with ALS used to say (sardonically), "Things could be worse..."  :-)

       

    • Posted

      I know you are frustrated.  You do know that if he does anything to the bladder neck you are going to have more problems.  Retro ejaculation is a given.  If you are doing CIC better now ( Thank god for Jim ) do that for a little while.  let your prostate heal.  Are you on any meds still.  Try to take something that will relax the bladder. I still think it will repair it self.  Please think before you do anything.  Let I say before Don't let him do what you did not want in the first place.  Give it time  Ken  

    • Posted

      Hi Mark,

      I just joined this discussion after reading your experience.  How are you doing the past week?  I wanted to share that I had Urolift last week and after the catheter was removed I could not urinate on my own.  The doctor wanted to recath after a couple of hours, but my wife and I remembered that the bladder was completely emptied in the bag and I wanted to wait longer.  After a couple of more hours - I still could not urinate and the doctor again recommended I go in, but I decided to wait once again because my wife looked up the side effects of all my meds and it turns out that the medication they prescribed for spasms and pain all could cause urinary retention. I stopped all the meds temporarily and took 2 of my old flomax.  An hour later, I was able to urinate a tiny little bit - drops with a tiny little bit of a stream -less than 25cc. I knew I was internally swollen still and thought I might have blockage but wanted to give my bladder and prostate time to start working.

      I decided to wait and see if I can continue pushing out a little at a time and I would go in to get catheter again if I could not.continued forcing myself every hour to try to push out drops to 25cc. I was very fortunate to be able to fill almost 800cc overnight with this method.  I know it was not the smartest to refuse to recath at that point (and don't recommend others to follow suit), but I had read about some men who did not have much of a stream for

      some time after.  I had my first real stream today.  It is almost a week since the cath came out. 

      I certainly was not prepared for this type of recovery.  Unlike many experiences I read, I was in a lot of pain.  Every time I urinated my spasms were so bad that I was literally yelling. I went back on the pain meds for a few days.  The first few days I kept saying this was the biggest mistake I've made.  I still do not know if it was worth it for me - I'll give it more time to make that assessment. 

      I really hope that you are doing a little better and that soon you will be fully recuperated from this experience. It seems your prostate needs time to heal.  Wishing you the best.  Hang in there!  

    • Posted

      Hi Rick

      Sorry to read about your experience and I hope things are settling down for you now - I share your disappointment as most of us pick urolift due to its reported quick, relatively painless and mostly side effect free recovery. It really goes to show that we're all different, heal in different ways and a lot depends on the underlying problems we suffer from.

      In my particular case my natural void is still virtually nonexistent and it's now more than a month since surgery, so I'm having to self cath 3 x day which is still uncomfortable and often painful. As a result I've very reluctantly opted for a bladder neck incision to further open things up in a couple of weeks.

      All the best and hope your recovery picks up apace.

    • Posted

      I just thought I'd post an update on my situation.

      Background: Massive chronic retention (>1 litre), high IPSS score, regular prostatitis.

      Diagnosis: small prostate (30-35g) ingrowing and pressing on urethra, most likely cause of retention 

      Treatment 1: Flomax, cialis, cipro (when needed)

      Treatment 2: early August had urolift anchors implanted. Didn't fix the problem so started IC 3x day. Very painful experience.

      Treatment 3: mid September ejaculate preserving bladder neck resection. Didn't fix the retention problem so started IC 4-5x day. Catheter experience now more bearable. 

      Currently trying to rehabilitate my bladder (attempting to ensure it always contains <500ml) and will get a referral to a neuro-urologist to check out what can be done.

    • Posted

      That’s not good news Mark. Sorry to read about the ongoing problems.

      Maybe not want you want to hear but I’m still happy with my Urolift. Still have a very weak flow and usual retention issues but nowhere near as bad as before. And I can enjoy a continuous stream rather than the pre-op stop / start.  

      Hope life gets a bit more bearable for you soon. 

    • Posted

      I'm pleased that your experience has been better than mine and that you're still experiencing relief from symptoms - hopefully it will last indefinitely.

      I actually don't regret having the surgeries which were probably always a bit of a long shot given the years of abuse (retention) I'd submitted my bladder to, and now since I've been bored out a bit it makes the IC much easier. And who knows, after rehabilitating my bladder I may be able to come off IC like Jim James has.

       

    • Posted

      Mark,

      Sorry also, to read of your misadventures!  (I also have a failed Urolift (Dec 2015) in my resume.  

      One strong recommendation:  aim for PVR of 300ml (or less)!!!   That's what normal bladders hold.  I had 2.5 LITERS RETAINED when my problems came to a head.  And NO sense of natural signals when I started CIC three ears ago.  I now get 'em (they finally came back after some months of CIC, as my bladder began shrinking per Jim James' method) at 25-300ml.   Worth considering...

    • Posted

      Thanks Cartoonman. It's encouraging to read you've got bladder sensations back - how long did it take to get this sensation back & do you now naturally void?

      i'll try to further increase the frequency of IC - I recently tried some sample Hollister vapro & vapro pocket & find these much softer than the Coloplast speedicath & speedicath flex so will get a prescription & give it a go.

    • Posted

            The sensations first appeared a few months into the CIC.  Notably, these sensations are different from the earlier. "GOTTA PEE!" sensations.  I can't quite explain it, but it's almost as though DIFFERENT neural pathways are being utilized. But when I started paying attention, I noticed the new sensations correlated with a 300/350ml voiding.  

             I now get those sensations at times when I am UNDER-hydrated (rare) and the liquid is too-something, and my body wants to expel what I do have.

              The FR 14 Coloplasts I use allow me to employ the JimJames World-Famous Dive Bombing Technique.  For this reason, I stick ones that have the rigidity to stand up to my sometimes-obstinate prostate; I'm not sure an FR 12 would!   

            And with my own Easy-Peasy Prep Procedure, I add only THIRTY SECONDS to peeing with CIC, over the normal approach of whipping it out and peeing.  Achieving a sense of normalcy has been my goal since Day One; limiting myself to the essentials gives me that!

    • Posted

      PS  I naturally void rarely, and only in cases where I wasn't able to void via CIC when I felt the urge, always when traveling and a roadside pit stop was not doable.  When I'm carrying more that 450 or 500ml, the rest will void naturally; the rest I must cath for.

    • Posted

      Thanks cartoonman. So, is your voiding now a mixture of some NV & some IC, or do you always try to do both?

    • Posted

      Nope.  I try to keep the voids down to 300ml.  Because my bladder is stretched out, it only responds (contracts) when it's holding more than 450 or 500ml, at which point I can "NV."  But like I said, I like to keep the amounts down to 300ml.

    • Posted

      I would be interested in finding out if anyone who has suffered from urinary retention, had obstruction removed by surgery (urolift, turp etc) but still suffered retention problems has any experience with sacral neuromodulation
    • Posted

       Hi markiebaba, I also would very much like to know the same thing.Kindly, let us know if anyone had the obstruction removed by surgery{turp,urolift,etc] still has urine retention problems?

      Also what is sacral neuromodulation?

      Thanks 

      frank,

    • Posted

      Just FYI:  Implanting an InterStim™ System (or similar)  has risks similar to any surgical procedure, including swelling, bruising, bleeding, and infection. Talk with your doctor about ways to minimize these risks.

      Medtronic Bladder Control Therapy might cause you to experience some of these side effects:

      Pain at the implant site or new pain

      Infection or skin irritation

      Lead (thin wire) movement/migration

      Device problems

      Interactions with certain other devices or diagnostic equipment

      Undesirable changes in urinary or bowel function

    • Posted

      Frank

      Do a google search for 'interstim urinary retention' and you'll find a lot of information about the device and how it works through sacral neuromodulation.  Apparently there is a test phase where patients are monitored over a few weeks as the sacral nerves are stimulated and if there's a significant decrease in retention symptoms then a device is implanted.

      As cartoonman mentions, there are risks associated with this procedure but the testing phase does allow patients to 'try before you buy' which is not the case with urolift, turp etc.

    • Posted

      Thanks for this info. I have complete urine retention,{no natural void}  i do cic 6 times a day.I will look into this, however i don't believe its the right option for me.Have you heard about ;"Pemp Magnetic Pulse Therapy for prostate problems?Just heard about this on this forum.Do you have any info  about this? perhaps heard about someone who has tried it?

      frank,

    • Posted

      I hadn't heard about Magnetic Pulse Therapy and couldn't find any reference to it treating retention/prostate problems - do you have any links you can share?

    • Posted

      Hi, I heard about this on this forum. Go to Google check this" Pemf Magnetic Pulse for 

      Prostate . Also check You tube?

      frank,

    • Posted

      Hi Mark

      I’ve not posted for a while but guess what - I’m now self catching too. I hate it but it’s necessary as the Urolift seems to of ground to a halt and I’m retaining a huge amount of liquid. 

      Would be good to hear how you’re doing. 

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.