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Urticaria every day for a year!

Posted , 10 users are following.

hanneke54158
hanneke54158

Allergic to anti-histamine tablets so what can I do?

When this first started my GP immediately gave me Fenofexadine... Yet the hives just got worse and worse! Eventually I realised it was the anti-histamine tablets making them worse. I used to wake daily with hands / knees / wrists covered in hives... When I started taking the anti-histamines I would then become covered head to toe for at least 36 hours. Luckily I took photographs as the GP initially disregarded my idea of being allergic! I eventually got my appointment at the hospital and saw a junior junior, who, despite my protests, prescribed me that same anti histamines.

I knew what would happen when taking them so I took one, took photographs or the reaction and waited for my three month follow up appointment - this turned in to a 6 month follow up - NHS! I saw the consultant this time and told him of my reaction to which he said he'd never seen this before and I'm going to refer you to our urticaria specialist. 8 weeks later I saw a consultant, not the uticaria consultant although he did pop in! Anyway, they basically said it isn't anything that we can cure but if you really want us to look in to finding a treatment to help ease you then we can!

Honestly! They were really hoping that I would say no, don't worry about it!

They prescribed me montleukast but this had no effect.:: I am now waiting for my follow up appointment - should have received it by now but as usual I am going to have to chase them up!

So what happens next??

I think I've noticed that drinking white wine makes them worse ...

I suffer terribly from hayfever and thankfully my GP was happy to give me the Kenalog steroid shot which has cleared my hayfever symptoms, and strangely, my hives have calmed down a lot too! Shame they can't keep giving me that shot through.

I just feel as though the specialists at Norwich aren't at all interested ...

1 like, 38 replies

38 Replies

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  • madeinholt
    madeinholt hanneke54158

    Posted

    Just found this...

    Prednisone is used alone or with other medications to treat the symptoms of low corticosteroid levels (lack of certain substances that are usually produced by the body and are needed for normal body functioning). Prednisone is also used to treat other conditions in patients with normal corticosteroid levels.

    Maybe getting patients tested for corticosteroid levels should be a standard practice for Chronic Urticaria cases!

  • Guest
    Guest hanneke54158

    Posted

    I had trouble controlling my asthma. Turns out because I'm IgE to milk, the lactose in the tablets were aggravating my symptoms. Liquid cetirizine is what I'm on now. I had to work thorough on my own to figure this out.
  • nadia24241
    nadia24241 hanneke54158

    Posted

    Hello - mine started November 2015 and it was a horrible journey to where I am now. Was stressed at the time and was drinking lots of white wine. GP prescribed 1 x 180mg fexofenadine daily which did nothing, I just got worse and had facial dwellings, throat closed up and anaphylaxis a few times. I didn't go to a&e but Sat outside in the cold which helped. Saw specialist through bupa who increased gradually up to 4 x 180 fexofenadine each day but still had then and angiodaema. Went back and saw a different specialist who was urticaria and immunology expert. He asked me to go off the meds for 5 days before tests! Worst time of my life, terrible burning and itching huge large raised patches that looked and felt like I had been branded. All prick tests negative. Bloods taken but he changed my meds to 2 x 180 fexofenadine and 10mg montelukast in morning and same at night, tranexamiic acid only when had dwellings and low salycilate diet. That was 6 weeks ago. Woke next day and nothing at all and completely clear until last week when I deviated from diet and drank wine. Since then i have had one or two hives on 4 days but nothing like before. Had follow up appointment and test results showed vitamin d deficiency and borderline auto immune disease so he did more bloods. Results next week and he added prescription vitamin d3 1600 units daily for a year. He said it's not going to go away but it can be managed and he feels mine is now as I have quality of life back - just have to careful what I eat and drink. I think it's a lot of things that affect us and there is a level if toxicity that once reached tips over and BAM outbreak. Stress and hormones definitely play a part for me too. We are all different and respond to meds differently. Keep your chin up and don't just accept what the doctors say - hope you find some relief. Accepting this is something you have to learn to live with also helped me as the frustration I felt and crying about it made my stress worse and the CSU and angiodaema got worse. Good luck, I will post about the vit D3 soon as I only started on that yesterday. I hope that the other meds continue to work - consultant said they would but I'm keeping everything crossed. Good luck x
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