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the clobetasol worked to clear up symptoms which were very mild but the burning pain in just one small area came back, and there is redness there
I will go back to the doctor as soon as I can but is this something that happens, is it a flair up?
should I use more clob? I'm currently using it once a day, 3 times a week
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When this happens to me my Doctor told me to use the Clob. 2 times a day. Once the burning and itching is gone continue for 2 more weeks twice a day then stop. If it comes back repeat the cycle again.
oh thank you! then it's probably the same with me, I'll check with my doctor to be sure
I have been using the clobestasol (steroid) for 3 years now...was told to use 2 times a week and the size of a "pea"....if u r sore or red in this area - try a bath once a week (doctor told me NOT to bath too often as warm or hot water can dry u out even more) and I found "airing" my "V" area out - such as sleeping in the nude and not wearing pants (workout pants) too tight has also helped along with very gentle washing (with Dove or Cetaphil) also helps...hope things improve for u....
thank you! I also think I might not be using enough clob...
I've had Lichen Sclerosus since 2013 (also have Celiac Disease for 8 years prior) and though the clobetasol initially strengthened my vulva tissue and took the unrelenting pain away which was due to the receding flesh (it had cropped up on other parts of my body in various formations a couple of years prior which a walk-in clinic doctor told me to expect more appearances elsewhere but she didn't tell me the whole story). The only way I have kept the LS from returning is being on a very low dose HRT (BHRT estrogen/[progesteron - I have my uterus]). If my dose levels get too low my body warns me via a painful ear canal, painful sphincter cramping and finally the painful receding flesh event on my vulva tissue and in my mouth! When I first started on this sight it looked a lot different and there were many women who talked about hormones that helped them, now there seems to be no cross referencing on this subject and even searching the open internet now compared to 2013/2014 on the subject of hormone replacement seems to be an unpopular solution. I am 60 years old in Vancouver, British Columbia Canada - I pay a premium per year for a HRT specialist as most family physicians haven't the education in this area. She can give instruction to a family doctor to prescribe her recommendations or she can be your doctor for female health.
thanks so much, I'm in seattle, I'll ask my doctor about it when I finally get in there
you can sat in a sitz bath with 1/2 tsp soda and borax in warm water for 15 minutes that should help
Similar thing happened to me - check with whoever is looking after you that the LS is well suppressed/under control and ask whether it could be Vulvodynia that is now causing the burning.
Long story short - i got very confused about the burning and patch of skin that looked slightly inflamed sometimes, sometimes what I felt didn't match up to what i could see in that it felt red raw but was only slightly pinker - was it a flare up ?
It was a Dermatologist who diagnosed Vulvodynia - the nerves have been irritated ( no surprise there ) she could see no evidence of LS and said she wouldn't have been able to diagnose it at that visit it was well suppressed. She confirmed everything I was describing was classic - my GP suggested Amytriptelene ( lots of people get on with it ) i tried it but didn't really like the idea of having to keep increasing the dose when i felt i could cope with Paracetomol or Ibuprofen when needed - everyone has to decide for themself. Much like LS - reducing stress, not sitting for long periods, going without knickers when possible all help. I've found a great Physio who gives me relaxation and stretching exercises and we're working on getting a firmer bum so that i sit correctly ( i've been sitting awkwardly since being diagnosed a year ago ) and take the pressure off the vulval area.
Apparently it will go when its ready but it is slowly easing - it's a long process but it helps knowing its not a flare up.
Best of luck - x
thank so much for all that info! I will look into the vulvodynia and the rest
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